So when my endocrinologist called me (at 11!) last night, all I expected was an increase in my Met dose (or a fight about it). But after he told me to increase it, I asked,
"Is it just me, or is this bizarre?"
He answered so fast that I knew he'd been thinking about it.
"No, it isn't just you. Have you ever heard of a type of diabetes called MODY?"
I've done my research. People here have said things about it, and I'd heard about it before that, even. I've looked into it. The truth is that there isn't enough information out there to give me what I need. Because none of the one-line descriptions sounded like me, I decided it wasn't worth pushing.
But now I've been asked to research it, and to get back to him as to whether or not I think he should test us for it. (By the way, the answer he's looking for is yes. And he WILL test me for it, unless I can prove beyond the shadow of a reasonable doubt that it isn't.) He's giving me this option because he knows I want to be an endocrinologist and he's...educating...me in a way.
Anyway, a little relevant background:
1. My father was diagnosed with reactive hypoglycemia more than ten years ago. I was diagnosed four years ago. We both have lost the "hypoglycemia" status, but only I'm on medication because I'm more sensitive to the highs than he is and his A1c doesn't reflect the need for medications yet (neither does mine). No one else in my family has or had diabetes, except my mother's mother, who was probably T2.
2. I'm on Metformin, which seems to work...decently. I'm still having highs, I'm just not as miserable as I was before I started it and they don't last as long.
3. As stated before, I'm young, reasonably active and eat reasonably well (most of the time), have no signs of metabolic syndrome and I'm about 5 pounds overweight. Not the "typical" T2, though I'm aware that there is no typical.
4. I had the antibodies done for GAD and Anti-Islets two years ago. No other antibodies were tested for and those were negative. I have a pretty strong personal and family history of autoimmune disease, and I'll ask him to test ALL antibodies if it turns out that I don't have MODY.
5. As of this summer, my c-peptide decided it wanted to be high. It's been high since then, but it's been getting lower (?).
6. I'm VERY sensitive to high blood sugars. Usually numbers over 140 make me tired. 160 or higher means I'll fall asleep in class. Sometimes 130 is enough to make me tired. I doubt this is relevant, but it has the benefit of being annoying.
I'm looking for stories, what happened leading up to the diagnosis, what you do now to control your blood sugar, and what type you have. Any and all information is greatly appreciated.