Multiple Autoimmune Diagnosis?

#1

So, I’m wondering how many of my fellow type 1’s are carrying multiple autoimmune diagnoses, and when they started compiling?

I’ll go first…
Diagnosed age 9 with Juvenile onset type 1 Diabetes Mellitus. Suffered with Eczema since age 12 (2nd autoimmune). Chronic fatigue sometime in my 40’s. Fatty liver at age 45. Lupus at 52. (Although it was present for years but Not Diagnosed). Have been working and managing with all.

Thankfully this past year things have turned a corner and I think I’ll be preventing adding more terms to my chart, but curious how common is this?

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#2

I think it’s very common to have multiple autoimmune conditions. It may be more uncommon to have a single autoimmune condition and never develop a second.

I could list at least 10 immune-mediated conditions, ranging from minor to life-threatening, I’ve been diagnosed with from about age 4 until now (late 30s). Some are straightforward autoimmune conditions, some are straightforward allergic conditions, and some are somewhere in between that researchers are still trying to figure out. A couple, though serious and present for years, have thankfully gone into remission or resolved completely (for which each is known to do; no miracles here). I’ve pretty much resigned myself to the fact that I’ll probably develop more immune conditions in the future.

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#3

Yes. I’m hearing that. Not sure why my medical teams ever mentioned it. The one I’m most happy has disappeared from bloodwork and skin is the Lupus. Simple changes made all the difference. :hugs:

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#4

It is interesting this topic came up as my doc and I were talking about this last week.
I have sarcoidiosis, vitiliga, tested for lyme multiple times, now being tested for celiac and RA( rheumatoid arthritis). I have had these diseases for over 30 years

#5

Wow! Did any of those LYME tests come back as positive?

#6

No lyme disease. I do not think I have celiac disease either based on my research and internet medical degree

#7

T1D - 44 years, RA - 19 years, Ankylosing Spondylitis (AS) 6 years. Check out this organization for more on multiple autoimmune diseases.

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#8

Interesting, thanks

#9

I am a TD2 but have three autoimmune disorders: Hashimoto’s Thyroiditis, Celiac Disease and recently, Chronic Autoimmune Gastritis. I am doing my best to ward off additional AI issues by following a LCHF diet and stringently avoiding processed foods.

I base my health on how I feel and my lab results. The LCHF diet keeps my blood meter happy and Gluten Free non-processed diet has put my celiac disease and Hashimoto’s in remission (recent intestinal biopsies revealed a healed small intestine and I no longer have an enlarged thyroid or nodules). My Gastritis? I am still trying to determine the triggers. Falling off the LCHF wagon may be a factor or stress.

My goal is to prevent another diagnosed autoimmune disorder by diet, exercise and plenty of research.

#10

Yes multiple here. Type1, hashimotos, asthma, raynauds, ezcema, fybromyalgia, something like celiac although I did not test positive yet maybe due to stopping gluten for several months before the last test, ocular rosacea and maybe more. I have arthritis symptoms and my grandfather had ra, but tests are neg currently. Stopping gluten and grain has not helped my hashis, I need meds for that. The autoimmune attack in that disease continues apparentlly even with meds although meds can slow it and diet etc. my thyroid levels are better while antibodies are higher but most importantly bg management is better with the thyroid meds.

#11

My Hashimoto’s has improved, but it was long damaged before I got my celiac disease diagnosis. I will be on thyroid hormone replacement for the rest of my life even though my nodules and enlargement are gone. I think Rosacea is linked to thyroiditis. In any case, I also have ocular Rosacea. When it flares, I can not use my contacts.

I have had a few episodes of autoimmune hives that last about six months. My allergist thinks they are related to Hashimoto’s, but I think it is due to celiac disease (when flaring).

#12

I’ve had random hives on and off for years and was going crazy trying to figure out what I was reacting to, assuming they were related to allergies. My allergist says they’re an autoimmune condition. I think that like other autoimmune conditions, they can probably be connected to a tendency towards autoimmune conditions in general and not liked to any one specific condition.

#13

Type 1 and RA -both in my 20s.