Need advice

So sorry to bother you guys, but I am very worried about my 3 year old. I have a child with Celiac and her sibling ( the 3 year old) shares the “gene” and is being watched for Celiac. I know type 1 goes hand in hand with celiac often. A few days ago, my 3 year old started drinking and peeing a lot more. It is excessive for her. She has started waking to pee at night (potty trained) but does not ask for water at night. She had just had a CBC done for something else 6-7 days before these symptoms started and not long after a snack (some chocolate milk and something else I can’t remember, but not a ton of food) her bg was 99. So, I know that’s a good number. I tested her ketones yesterday and today before bed with a urine strip and it was negative. Any thoughts? I tried to check her blood last night and didn’t get enough, and can’t get her to let me check it again. Obviously if this behavior continues, I will take her in, but I’m just looking for some advice from those experienced. Thank you so much.

You are doing all the right things. Only yhing I suggest is urine glucose strips, since they would show abnormal before ketones. Easier than bg test for her.

I was diagnosed at age 5, with frequent peeing/drinking water, and being more tired than usual, as the symptoms my mom noticed. That was over 50 years ago.
Mom thought maybe UTI, but shocked when Dr sent us directly to hospital.

Thank you so much for your response. I couldn’t figure out if urine glucose strips were the same as ketone strips, so thank you. I will absolutely do that. You’ve been at this a long time, huh? I bet the resources then were not what they are now. Thank you again for your advice!

Glucose will “spill” into urine when BG is around 160-200. Ketones usually show at higher glucose levels, and when little or no insulin is being produced.

I recall making trips to the bathroom overnight, and gobbling down more water before returning to bed. Tried to not disturb parents, because I thought I might be in trouble. Mom told me I was asking for second helpings and always hungry and tired.

It’s so hard with a 3 year old (or 5 year old In your case) because they can’t just tell you how they’re feeling. She’s not super hungry. I hope she’s just being temperamental. I can’t find any glucose test strips anywhere. Where I google, it just takes me to ketone test strips.

They make them for dogs and cats now… can find them on AZM.

But there are also strips with 10 tests on one strip, that includes glucose, ketones and others. May be able to find at local store.

Yes, I did see those. I will look at those to make sure they check glucose. Didn’t think of that. Thank you!

1 Like

There are also test strips to check for bacteria in the urine because that’s a possible too. I’m not sure if they are completely accurate, but if positive it would tell you there is an UTI.

I had to call around to smaller pharmacies to find the glucose/ketone strips, they aren’t easy to find. I originally wanted them for my dog, but it really was a hunt to find them.

Welcome to TUD @Maria01!

Try searching on “Chemstrips”—that’s the brand name. They’re made by Roche.

The one I found in a couple of smaller pharmacies is

Bayer Diastix
These just show glucose levels

But you can also order them online through walmart and walgreens

Thank you so much!

Thank you very much!