I am an occasional lurker on these forums but not new to diabetes. My 14 year old son has has diabetes for 14 years (dxd at 9 months) and he’s been pumping for 10.5 years. I was dx’d with LADA/Type 1 8 years ago and I just started pumping in September. I had a horrible endo who provided no pump support, so I have found a fantastic new practice and my dr really wants me to do official basal testing. It is not turning out to be an easy thing. I was able to test overnight successfully and repeat the test with similar results so I know my 12am-6am rates are set fine.
Now I’m testing the evening: 5pm-11pm and I am stuck. I’ve failed the test 3 times, and I’m currently trying again today. My endo has been great and we are adjusting my rates accordingly. I am just discouraged. My lunch was at noon today – I’m eating a little more than normal, so I end up feeling really full for a while. The test will start at 5pm, when I’m hungry, and the evenings are just horrible because I’m starving. I’ve failed the test 3 times because I go low (lowest was 62, so not an emergency, I’m watching it closely). And when I do eat again I am so hungry I just can’t catch the hunger and eat so much I feel sick. I’m altering my entire routine because basal testing requires little physical activity and I’m normally quite physically active all day.
Any tips for successfully doing this test and not feeling miserable for hours and hours? I have diet sprite and sugar free jello, but that does very little. I’ve spend the evenings during these tests just laying on the couch feeling hungry and fuzzy headed and unable to function. It’s really affecting my family. Today was “Oh great, mom’s doing another basal test…get out of her way tonight!”
I’ve never had my son do this kind of strict testing – he’s always growing and his rates are always changing so it would not be worth putting him through this. Especially since his A1C is in a good range.
I have learned a lot so far – I need much less basal and quite a bit more bolus than I thought – I just had my rates kind of flip flopped. Could really use some tips and advice on making it through the testing though.