Hey all, it has been a while, to say the least.
I am popping on here because I was recently diagnosed with Hashimoto’s disease by my PCP. I will explain:
I have been feeling very off with tons of symptoms that have lasted over 6 months. I thought it was stress because my husband and I were living with my in-laws until our home was built. However, 6 months here in our home and my symptoms kept getting worse; muscle and joint pain, extreme fatigue to the point of not being able to get out of bed, extreme brain fog (can’t form sentences properly), no sex drive, weight gain, very dry skin, I could go on. So I asked my primary doc (she is the only one I see) for some thyroid tests. She only tested my TSH, which came back normal.
I refused to stand by and take my TSH as a tell-all, and asked her to run a full panel which she did (although I had to ask the lab to run an additional test for my T3 as she didn’t have that on the order).
She ran 2 antibody tests, and checked my Free t4 and I asked for the free t3. My T4 came back normal, but my T3 slightly low, my antibodies very high. I got a call from the nurse who said I have Hashimoto’s; that’s it. I know what it is because my mother has it (another reason I wanted to get further testing), but she said no treatment because my numbers aren’t bad enough.
I personally thought that my T3 being low at all was a concern, but they don’t seem to think so. However, I definitely have Hashimoto’s and I knew I needed some type of treatment or change in lifestyle because I couldn’t go on feeling how I was. I know that the autoimmune attacks which cause high antibodies are probably what are making me feel horrendous. Unless, I have hypothyroid as well? I want to trust my doc but I know that a lot of docs don’t know a lot about thryoid conditions. My PCP is great with trusting me with my diabetes care, which is why I don’t see an endo; I don’t feel the need to. My last A1C was 5.6 (just got it a month ago) and every one before that has been around 6 for the past 2 years, everything since Dx has been below 7. I feel like i have a good grip on my diabetes management, and since there aren’t very good (or very many) endos in my rural area, I haven’t bothered.
However, I’m starting to think that I might need to see one. I am willing to travel to find a good one as long as our insurance allows. The time has come that my husband and I have started to think about starting a family, and I know that not only does my diabetes have to be in check, but thyroid plays an important role as well. Should I see an endo to get further testing or info about my thryoid? From my understanding from what the nurse said, is that I basically have to wait until my thyroid dies in order to go on meds.
I researched a ton about Hashi’s after getting the call and decided to cut out gluten from my diet just to see if it would help my pain and chronic fatigue at all, and I feel like it has actually made a difference! I really wanted a way to lower my antibodies, and I didn’t want to take my docs word for it that nothing could be done right now. The change in diet has me feeling closer to normal, although I still am tired just not as tired. Some days I have more energy than others, and I find that stress is definitely a trigger.
But knowing that I might want a child within the next year or couple of years, I want to make sure I’m doing everything I can possible to make sure my body is in good standing. So what are your thoughts? Should I get in to see an endo for Hashi’s? I know it won’t hurt to see one, but finding one is the issue. I’ve started my search but also with COVID, I’m reluctant to jump into seeing several right now to find the right one.