How did you know that you or your loved one needed to be checked for T1D? Any of the symptoms confuse the doctors at first? My daughter was originally diagnosised with Ketotic hypoglycemia because she was low in the ER with lab work that was consistent with the diagnosis ( c peptide was low and insulin levels low). We have noticed lows now after she eats, not just fasting lows but more commonly and concerning are the highs.
Back story: My daughter is 22 months old, she was rushed to the ER in April for unresponsiveness, turns out her blood sugar was 40. This was the worst episode ( likely because she was also sick) but the hypoglycemic episodes have happened several more times. Sometimes they are first thing in the morning, other times it happened 2-3 hours after eating. The pediatrician and endocrinologist had us begin home monitoring, this allowed us to fix the low blood sugar quickly in the low 70’s before they dropped to low BUT this also gave us a snap shot of another problem that was beginning to develop, hyperglycemia. My daughter has had fluctuating high blood sugar now since mid June. She has spiked as high as 275 while sleeping more than 2 hours after her last meal. Just yesterday her blood sugar after nap was 187, she ate a normal well balanced lunch 3 hours earlier. This has happened much more frequently than I am comfortable with, but she will also have weeks, like 2 weeks ago were her sugar stays consistently below 120. The good weeks are the best, she is happy and energetic, my baby girl. Days like yesterday, were she is elevated, I get a cranky kid who can not figure out what she wants and usually ends up in bed 45-1 hour early due to utter exhaustion. I am seeing that cranky exhausted kid at least 3-5 times a week, sometimes even more than that. Her endocrinologist said that her A1C in July was fine and to stop worrying, but her symptoms of high blood sugar didn’t even start till mid June, so her A1C wouldn’t really be affected till September maybe even October. She was than diagnosised with Ketotic Hypoglycemia, which doesn’t even begin to explain her highs and doesn’t explain her low sugar after eating a meal, it only explains her low blood sugar in the morning which happened 3 times since April. I know this is long winded but I am in the hopes that this might sound similar to someone else who could at least guide me in the right direction. I am afraid this might be the beginning of T1D but doctor’s wont even talk to me when I mention that word. … any help at this point would be a huge help… thanks