I’m glad I found its site. I hope I can keep up with it. 8/2011 was my son’s diagnosis date and if you talk to us today you would think it was 2017. He is so super smart. He can rattle off the medical jargon and tell you all of the horror stories of non compliance and really impressed the heck out of you, then go home and act like he doesnt know the first thing so everything has to be done for him and he eats without checking and is 7 years old again. I am frustrated that he holds no accoutablilty for his illness and I do want to punish him because he is ill, emotionally as well. He already had ADD but when he was diagnosed we enter the depression realm. Having depression myself I was slow to recognize his. Anger. Alot of anger towards everyone. I’m stugging with his anger again and we are now doing a med change… his sugars are uncontrolled, his A1C is 12. Something… I’m sorry, I’ve not had a forum to vent to. I don’t mean to whine. I do have good things to offer from our journey for those who have not be as far and could sure use some pointers from those who are more successful. Thank you
Speaking as someone on the spectrum (ADD) and a Type 1 (and I have Asperger’s), trying to separate these things is an impossible task. I understand your frustration. But the frustration he feels is annoying to him, too.
I can’t explain some of my struggles because I don’t even fully understand them. I can know what I want to do, but I don’t know how to get there.
Think about how you can help him get to where he wants to be. Break tasks down to help him understand the steps to success.
Just a little success in one area can make it easier for him to succeed more.
For example, my thing is music. Over time, I’ve been able to connect MANY things to music to make them easier to do and understand. Finding where you can praise him will help him immensely.
Has he met any other kids with Diabetes, or gone to camp ? It made a big difference to me when I met another T1D, and it was 15 years after my diagnosis, and was in college.
Thank you for sharing. He loves music. I will try to break things down smaller. Hopefully I can get a handle on the aggression because he can be so awesome to be around and helpful.
No need to be sorry! This forum is meant to help and support, so vent away!
I’m sorry you are going through this. This sounds really challenging and understandably upsetting, angering, frustrating…
My son is 14. He has type 1. If he starts to stray with an aspect of his care, we focus on the care aspect - boil it down to clear expectations and come up with an agreed to plan on how to meet them. If he doesn’t comply with that agreement, then punitive action may be taken, but it’s never based upon the bg, just the adherence to the agreed to care action.
We don’t have the added challenges you describe. This all seems big - perhaps bigger than you can be reasonably expected to manage on your own. Is counseling an option?
The other suggestions above are great. However you proceed, I would just take it one day at a time and look for progress in any way it comes and celebrate it. Then look for the next step in progress. Then the next. Just one thing at a time.
I am also new to the site.My daughter was diagnosed 2 yrs ago she is 11yrs old now. I am going through the pre-teen hormonal changes and her mood swings are very challenging to deal with. My biggest issue is that she refuses to rotate injection sites…Any tips on how I can encourage her to try the back? In addition she finds the Lantus injection very painful, and cries every night when I give it to her. It is very challenging to try keep her in check when she is not on board…her last A1C was very high! I feel distraught at times but the battles and arguments are very draining…
Welcome to the site. Hopefully you are able to find answers that will help you out here. For the issue of Lantus being painful, you may want to take a look at the following discussions:
(As with many discussions, posts go back and forth and often cover multiple topics but I think there is a lot of good relevant information if you read through them.)
Thank you very much…
Lantus worked for me in the beginning say 2 months then it started burning when I injected it. I reported to my endo and asked him to swith me to Levemir. No pain with Levemir. Then there is also Tresiba which is newer and last longer than 24 hours. The key is find the insulin that works for you. Unfortunately in the USA, your insurance might interfere with your choice.