weird feelings after I eat like I want to “burp” and or hiccup and I feel a little shortness of breath…I can’t puke due to surgery I had when I was 18months old but its almost like my body wants to get rid of it…Idk its very difficult to explain.
sleeping ALL the time. at first I thought it was because I’m not getting enough at night but I just woke up from sleeping 13 hours and it was the same the night before.
aching, specifically, my lower back. It feels tight and sore pretty regularly
weird blood sugars… (this may not have anything to do with it) but am on a pump and was always low, so my doc said to take it off for three days and see where I’m at in my honeymoon with no insulin, and I’ve gone above the 200’s for a teeny bit but then a couple hours later I’m way back down to the lower-mid 100’s and that is after VERY carb-y meals (for testing purposes, I also ate low carb and no carb).
UTI feelings…the only symptoms of UTI’s I’ve experienced were back in April I had blood in my urine and they did a culture but came out negative for no bacteria, the doctor called me a couple months later and said (I’ve moved since then) I should go see a doc and get that looked into because its not normal…I’m still working on that. Also, when I go to the bathroom it doesn’t burn but I have the urgency to go and the weird feeling of still having to go afterwards, too.
and of course I have my regular autoimmune
-t1 diabetes
-vitiligo
-scalp psoriasis
Oh and I got a letter from the blood bank that I donated to saying that I was tested for hepatitis b core total antibody and it was abnormal/reactive but all the other tests for that were negative…probably has nothing to do with it but I thought I would throw that out there.
Yeah but he said if I go overly high like 200’s to put it back on or give a shot. It’s just to see what I’m still producing, which was clear that it was a lot because I was having several lows a day.
The gastrointestinal issues could be a lot of things, especially if you’ve had previous surgery. Is it possible you have Celiac’s Disease? It is commonly seen in people with T1D. You may want to try removing gluten from your diet and see if that helps. I’ve heard the symptoms can be sort of vague with that. I was initially thinking gastroperisis, but I’m guessing you’re recently diagnosed.
Regarding the fatigue - if you’re just new to diabetes, it might be a common thing to have happen upon initial diagnosis. Also, if you’re having a lot of lows, that could make you sleepy (it does me!). But you always want to make sure they check your thyroid. Hashimotos Thyroiditis is also commonly seen among T1D folks.
The lower back pains could be anything. And they could be associated with a kidney infection, UTI, or a host of other things.
The weird BGs are going to happen if you’ve been diagnosed in the past year. When you’re honeymooning, things are really wacky. You will go periods when you won’t require any external insulin at all and then WHAM! Your BG will shoot up to 400. Just keep close tabs and react to the numbers you’re getting.
Hi, new to the discussions and saw your post. I was wondering if you had been checked for kidney stones? They can cause blood in your urine and a back ache. Also, with the stomach issue, I read someone else say Gluten Intolerance or Celiac disease, same gene in our dna, so is Thyroid disease that can cause major blood sugar swings and aches and pains from head to toe. The Celiac disease can cause swelling in your intestines and bloating that puts pressure on your organs including your lungs. My father has had it for many years and it can be quit scary when something slips in on him. He now has such sever bloating that he can barely breath and stomach stuff wants out and intestine stuff comes out and his heart has trouble because of the pressure. Been to the er. Before the years passed his reaction was not so violent. So it can be a silent and insidious disease. It caused damage that will can not be repaired in the undiagnosed years for him. If you take it out of your diet entirely and with in a few weeks are feeling better or not you will know. Hope you find your answers. Seems like with auto immune we get the short stick on getting other things!
First, just because you did not have a UTI in April doesn’t mean that you don’t have one now. Last Nov, I got tested for one and was told I didn’t have one. The symptoms got worse a couple months later and I was hesitant to get checked again since the first one was negative. By April, they were a lot worse and when I went to get checked, I had a UTI. Lower back pain is one of the things that can go along with a UTI. If you had a doctor telling you that you should get checked, I wouldn’t put that off. I would also get a copy of what they tested so your new doctor has that.
Like MyBustedPancreas said, gluten can cause those gastrointestinal issues. When I quit eating gluten, a lot of my gastro problems went away. You should know that if you quit eating gluten, the tests for Celiacs will come back negative. The only treatment for Celiacs is not eating gluten, so if you care about having the label, you should go thru the testing first. I didn’t do the testing because I didn’t care about having the label and I know I have a problem with gluten.
Thyroid causes both tiredness & BS problems. Sjogren’s can cause tiredness, UTI issues and pain, to name a few.
The wanting to burp or having to hiccup can be caused by either kidney disease or gastrointestinal issues. I think with kidney disease it is when your electrolytes get out of whack and you start retaining fluid. That is the only time I have experienced this feeling. Are you retaining fluid? I have read comments about celiac disease. My mom had it before she died, and she couldn’t eat oats or gluten.
I was told by my primary care physician that I did not have kidney disease back in 2002, because my tests all came back in normal range (those ranges are normal for like 95% of the population, btw). I am 5’2 and weighed 220 lbs. I was eating between 400 and 600 calories a day, because there was so much pressure on my organs (stomach) I couldnt’ eat more than half of an orange at once. My doctor told me to eat less and exercize more. I finally broke down and cried in his office when he told me that I might have a heart attack if I walked up a flight of stairs. Anyway, I credit my tears, but my dr finally sent me to a nephrologist (kidney dr) who looked at my bloodwork he had me get before my appt and my blood work from 7 months before. He said “You have diabetic kidney disease. We can fix that.” I cried agian b/c I finally had hope. He said he knew it was my kidneys b/c my cholesterol levels had more than trippled in that 7 months. He prescribed water pills and I lost 25lbs the first week. 25 lbs the next 3 weeks, and a total of 80 lbs in 10 weeks. That is how much water I was carrying around with me. I was so weak and so sick and tired of asking for a referral that I couldn’t ask for help forcefully enough and it probably almost killed me.
My point is even if you think the dr thinks you are a hypocondriac, you should let him/her know what probs you have (meaning symptoms). If I get an idea off of the internet, I usually introduce the idea to my dr as “I do realize you can find anyting on the internet, but I thougth this might be my problem. I don’t have any medical training, though, so I figure you can figure if this is a possibility or not.” The only reason I would think it might not be UTI is that bg’s ususally increase with infection, but who knows?
Actually I did recently get tested for blood and urine and came back again as negative for a UTI two weeks ago… I guess the way I wrote it was a bit confusing!
Turns out I’m coming home for a week and am hoping to get in to see my endo so I can chat about it with her.
Thank you! I really appreciate your post. I’m going to have to be a little more assertive I think.
Yes I was tested twice for a UTI and she said none each time so idk. I’m going to see my endo soon and I trust them to actually listen to my concerns and to tell me what we think I should do so hopefully that will help!
Yes I’m noticing the little things now like my psoriasis and such. Really frustrating. I hope to god I don’t have celicas. That would be the tip of the ice burg for me!
