You could have not said it better. Everything is type 2 or type 1s who are just dx’d when it comes to research. We are the forgotten group. Even the support group in San Antonio for type 1’s are mostly children and their parents. That’s ok and they need the help but there are many type 1s who can use support as well.
wish i had a answer for you. i posted about this on another site. sounds like the same thing but alas no real answer.
my endo is stumped also. we can see it happen and it is random and it takes forever to bring it down. you are not alone
as i have talked with other long time t1 s some on pump and the others like me on mdi. its frustrating as hell! it disrupts everything. lol i have since taken to “blaming” it on global warming!
good luck and i will be watching to see if you get a good answer.
We have an adult pump support group here in Reno, but it is not well attended. I really don’t know what the problem is!
And I am disheartened to learn that perhaps growth hormones come out in adults, as well? I do know cortisol is active in adults in the mornings, so insulin resistance then. Our times of greatest insulin resistance is between hours of 6pm to 11pm most evenings in general (though the higther basal works well). It is when a growth spurt kicks in when the extra basal takes hours to take effect but that is because we don’t immediately ramp it up to 100 plus percent. The highest dose does work, just no crystal ball so we will do 50 percent and 1.5 hours later go up to the full plus 100. So that’s 3 hours to figure out the proper increase and it will then usually come down by the fourth or fifth hour. Nohing to do with food. This will last more than one day when it occurs so I am then prepared for the subsequent nights.I am bummed; figured this would end when she was an adult.
Could it be early menopause? Horomones reeking havoc? Just a thought
I’ve had this happen occasionally and usually just assumed it was some kind of absoprtion problem. After the first correction doesn’t work, I usually end up taking a bunch of small injections spaced out over time rather than a second large one to correct because I hope it might absorb better.
The only thing I would suggest, if it happens often enough, is to take note of what else is going on with your health/life at the time it occurs to maybe see if there is something not directly d-related causing this.
Since the spikes are erratic I was going to suggest the same thing as Marci and ask if you were possibly perimenopausal. That can wreak havoc on any woman’s body and can last for several years. As far as insulin resistance, I was having severe issues after my pregnancy and my doses of insulin were getting a bit obscene. My doc put me on 400mg of Metformin/day about 10 months ago around the same time I switch from MDI to a pump. It was reduced to 200mg/day about 4 months ago and I’ve now been off the Metformin a week and so far so good…we’ll see.
Have you had your Adrenal Glands looked at or them tested? Since you were in a sport that caused stress, because getting boxed does make you release a bunch of Adrenaline, you might have burned them out.
I don’t understand. “R” as in Regular (insulin)? Did you run up/down stairs to help distribute the insulin?
What is IV R & Cheap-a-log? (Gosh, I hope I don’t sound like a dummy!). All sounds interesting…
Ahhhh, I love that!!! Global Warming! (Put a silly smile on my face, thank you!).
I’m soooo sorry that you’ve been dealing w/ this too. I find it much more frustrating that my heart attack(s)!!! It is terrible. But it helps to be twisted, doesn’t it?!
I think it is somewhat isolated, rare. And we are probably on our own… (Global Warming!)
I thought you said she was a teen?
Anyway, adults have lots of hormones cycling during the day and night, and those hormones do affect insulin requirements. Just not as drastically or unpredictably as teens, although still not entirely predictable. Adults usually have more discernable patterns than children and teens, although things can still go screwy because of stress or illness, or just because. We think we are following the same pattern every day, but we actually aren’t because there are little things that get in the way. You just have to deal with it as it happens, and expect the unexpected.
Jan, I’ve had my D since I was a kid (12 yrs old) and am now 41 (almost 42). This just started for me about a year/year 1/2 ago, I don’t remember going thru this before… So it is new for me, in my 40’s. That’s what makes it so darn awful, I think it is unusually random & completely unpredictable. I don’t get it…
You seem to be so knowledgeable which is a huge plus! I keep re-reading your post because it is so informative & I feel like I’ve been in the dark (?). It’s good to learn & advance. Thank you! Gosh, i hope things change for your niece soon. It makes me sad to think that a young person is having to deal w/ this type of frustration.
Gosh, idk. I suppose I should look up the symptoms of menopause…? I don’t know a thing about it, other than I’ve heard it’s no fun! Smart idea though.
I don’t feel like anything is different though…
Hey Kelly,
I’ve been Type 1 for 40 years and the one thing that jumped out at me is the possibility of a rebound effect. If your blood sugar drops too low your body will release glucose. I had this problem and the doctor kept on bumping up my insulin levels with terrible reprocussions.
Just a thought as we don’t seem to know where your glucose level was before it jumps up to 300. I went on a CGMS for 1 1/2 years to get everything back in order. Blood sugar usually is higher in the mornings for most. Be careful and don’t over medicate.
Hormonal changes could also be a factor. You are young but you could be in perimenopause and the hormones may be jumping around a bit shaking up your BG.
Animal insulins are no longer available in the US… I am pretty sure even the one labeled for veterinary use is gone now too.
I want to go out on a limb though and suggest that this sounds somewhat like the intermittent allergy issues I tend to have. I am allergic to one of the preservatives that ALL insulin manufacturers use, and when it gets bad, it seems like the insulin just doesn’t work for me… I will have days and days of #'s in the 300’s and 400’s regardless of how much insulin I inject (we’re talking 4-5X the normal amount for me… topping 200u in a day when I normally use 40-50) usually switching brands for a little while usually helps, but it can take a couple of weeks for everything to go back to normal.
Have been D since 1976, and for the first time my BG spiked at 6am after fasting to 261 and within a 1/2 hour dropped to 67. and stayed under 140 the rest of the day. This past Saturday at 6am after fasting Bg went to 261 and at 9:45pm made it down to 100. My normal range has been 80 - 100. these to episodes are the only ones since 1976 that I have found in my journals.
Why, I have no idea. Both my basal and Novolog were fresh and not expired. Truthfully I feel like I have been hit by a Mack truck. My estimated A1c this morning was 5.9%, am eating Low Carb for 6 months now and have had no problems with that.
I am way past menopose, not pregnant and no chest pain but, plenty of stress.
Kelly if you find an answer let me know?
Chele
I change insulin types every few months and it helps a little. How did you discover that you were allergic to something so specific? Gosh, seems the Dr.'s can’t figure out these random high BG’s, yet it amazes me the things they do figure out. No offense meant at all, I just don’t get this stuff… If I have the same problem as you I worry that it will never be determined at the rate I’m going…
I’ve seen this with my daughter, and yes it sucks. I’m actually surprised you haven’t seen it before now (makes me wonder what’s different about the insulins we use use now). Sometimes it can be a bad site, or hormones, or if she eats carb crazy for a few days, or if she eats a good % of fat – any of these can make her insulin resistant, and it just takes time to bring it down. We don’t always know why so we just fix it and move on.
Shortly after the last episode occured I started a new Flexpen. so perhaps the Insulin in the previous pen was goind bad.
Maybe this is the reason the warning to discard after 28 days is listed in the product info. Yet, as I said these spikes have never happened before. Who knows??