I am mom to Dave. He was diagnosed 12/2/2008. We’ve made it to the year mark however I’m having some worries that I’m not doing what’s best for David. We live in a very rural town. When he was diagnosed luckily we were in a larger city which is about 90 miles away from us. They have and endo office that serves our region (SE idaho, montana, wyoming). We really like our Endo and CDE and I feel like they do a good job. However often there are still lots of questions that I come up with all the time. I try to keep track of them but never think to ask them at appts. We can call when we want to talk to Dr. or CDE and I felt like we were in good care.
However there is another mother in our community who has a T1d child that travels to Salt Lake City to their pediatric endo. Every time I see her, all I hear about is how bad our Endo is, how much she hates him and how wonderful the Endo is down there. I have family in SLC so if necessary we can travel (300 miles) to appts and stay with family but I wonder how important is it to see a pediatric endo? She kept telling me that I just don’t know what I’m missing because I haven’t been to see them (ped. endo). Usually I just listen to her as a friend and then stick with what we have because it seems to be working.
However this last time I talked to her I cam away feeling like a terrible mom. Our last a1c was 8 (up from 6.4). I keep thinking what if I’m not doing everything I could by not finding a pediatric endo? Am I being selfish in thinking things are fine with our regular endo?
I guess what I’m asking is, we live far enough away that we’ll be crossing state lines and could have insurance issues if we switch. Do you use a pediatric endo or regular endo, have you done both, or are there resommendations as to why I should consider switching.
I know that it’s my sons health, but I feel comfortable with our current situation, I think he’s a good man and good in his practice. Because I have questions though do you think I’m not informed enough as a mother about diabetes and that by switching it would be better for David?
Sorry it’s so long winded, I’m just frustrated about this topic that keeps coming up between this woman and I.