Scary incident

El_Ver above has the right answer. You can solve your problem in less th a 30 minutes, and if you chose xdrip, rather than the fixed Dexcom app, you will have much better BG control.

1 Like

I got a receiver!!! Thank you for your kind offer.

2 Likes

LOL. I have something called oral allergy syndrome. It causes my tongue to swell (as well as my tastebuds) when I eat many fruits and vegetables. My dopey immune system thinks I am eating allergens. For instance I am allergic to ragweed. The enzymes are similar to those in cucumber so if I eat cucumber, my body thinks I am licking ragweed.

1 Like

My blood sugar was so low I wasnā€™t thinking straight. I remember I was standing in my hotel room trying to think what to do. I was very sluggish, mentallyā€¦and Iā€™m a critical care nurse!!! I should know what to do to treat hypoglycemia!

1 Like

@SusanS:

Iā€™m pleased to hear that you finally got a receiver. Hooray!

While I donā€™t have either the inhalable Basqimi or the new shelf-stable glucagon, I do maintain a collection of the old-style two-part glucagon. If youā€™d like one for ā€œjust in caseā€, let me know.

Good luck with your new receiver.

John

2 Likes

Yes I have something similar thatā€™s why one of the comments I mentioned other people sound like they tell some of my issues
I have had multiple skin, blood allergy tests. The works. I also have very bad ragweed allergy I was put on inhaled corticosteroids.
Iā€™ve needed breathing treatments in the ER before. In the beginning I guess I just was in denial or was too foggy headed to realize but I had mowed over ragweed and ended up getting inside not feeling well. Then before I could react I was on the floor grasping for air. Luckily someone was there to think grab my rescue( I didnā€™t understand that this gradual worsening breathing issues related to allergies. No one explain).

Some fruits get me the worst. Also during certain seasons. The reason I mentioned vitamins and possibly minerals because I had deficiencies Also Along with allergy. It made me feel worse dealing with any health issues. I didnā€™t know one person could have so many problems like Iā€™ve had. Then the docs dont explain why I end up in hospital I had to figure many things out on my own.

When I got b12 shots it helped with lessening the effects of allergy cross reactions. Like bananas for me. It doesnā€™t solve the problemsā€” it improve overall health.
Even though I found a really good inhaler it doesnā€™t eliminate all problems but many.

Can u imagine how many people have low levels of vitamins, minerals or even toxin, heavy metals wearing down health on top of things like blood sugar, allergies or whatever.
Hope all this makes sense :slightly_smiling_face:

1 Like

50 units of Tresiba is a lot. And while itā€™s supposed to be a flat 24 hours insulin sometimes it will have an unusual peak at an unusual time.

Iā€™m not sure if your endo has the ā€œhypoglycemia talksā€ with you on every visit or occasionally or ever. I get hit with the talks a lot pretty much every visit. Although Iā€™ve been through the school of hard knocks (two ER visits for hypos in my past 38 years as T1) in the past and am doing my best I I still get lectured.

And sometimes the right thing to do is really to cut your insulin dose. If you arenā€™t used to changing doses yourself then talk to your doc about the hypo.

1 Like

I try to go to bed with sugar at 155 or better, as it drops at night. I use freestyle libre and I read sugar when I am up to visit restroom at 3/4 am. I use Wal-Mart $1 little glucose packs, small jelly beans, grapes, 1/3 banana , or 4 ounces of grape juice( not sugar free).

2 Likes

It makes sense. I deal with a lot of that. I do a lot of self management because often times doctors do not do a good job explaining things. That is one of the reasons why I joined this group. To learn from others as a jumping off point for my own researchā€¦and quest to live a better life. My medical issues are many and make management more difficult. Itā€™s sometimes overwhelming but, not impossible. Dieticians do not know what to do with me. Iā€™ve seen three. LOL.

1 Like

I understand. I do not feel well when I am below 85. I attribute it to being high in 300s for almost 3 years. I have been relatively normal for 3 months. So, I work within the parameters that make me feel OK and let me do my job without feeling foggy.

As far as medical staff goes, medicine has changed a lot since I started many years ago, and not necessarily for the better. Insurance companies have waaayyyy too much power and say over care. Would it surprise you to know that insurance companies have benchmarks that must be met by medical staff in order to be paid? This is based on federal guidelines. Not just hospitals but MD offices too. So, patients with chronic illnesses such as high blood pressure, diabetes, heart failure, etc. must meet certain goals or MD must explain why the patient canā€™t meet those goals then possibly not get paid by insurance properly. Diabetes? A1C less that 6.0. MDs have to submit your blood sugars to insurance to show control of disease. They want ā€œnormal looking numbersā€. Unfortunately, this makes doctors into cookie cutter practitioners and doesnā€™t customize care to individual patient needs.

Hospitals are worse. Everyone is expected to follow policy and procedureā€¦individual patient be damned. There is a ton of government oversight, As a practitioner, I am not supposed to make a judgement call. Yesterday was a great example. Patient gets laxatives every day and is having profuse diarrhea. As a nurse with years of experience, I am not allowed to sayā€¦gee, I better hold that laxative today. I have to get PERMISSION from a doctor to use common sense. Imagine how bad it is with a disease like diabetes! No way to customize anything for the individual patient. This is what healthcare has become. If the patient doesnā€™t fit the algorithm, they are screwed.

1 Like

No hypoglycemia talks. But I do not blame the practitioner. Itā€™s a new endo. I was seeing one who left me in the 300s for almost 3 years and would not put me on insulin. (Long story). I walked away, waited 9 months for an appointment with a new endo. I was put on all these new meds with specific instructions to titrate up until my numbers were in certain ranges. I was supposed to return to office in 2 weeks for follow up but covid hit and everything was shut down 1 week after my first appointment. We have been doing this by phone and email. No one expected me to be doing this relatively alone for this long and no one would have thought hypoglycemia when my numbers were so high for so long. Besides, I give the hypoglycemia talk to patients in the hospital. I teach these symptoms to new onset diabetics, I give them their first education handouts. But, It is a different ballgame when it is happening to you. I can say it is changing how I teach my patients.

1 Like

I have never looked for glucose packs. I am going to have to see about them. I am going to see my doctor on Friday morning. Itā€™s going to be a 5+ hour drive but the office is open now. I am planning on asking for a script for something for hypoglycemiaā€¦just in case.

You mention getting instructions on titrating up, and that was great at that phase of getting started on insulin. But now if you are having scary hypos and thatā€™s a good sign that it might be time to titrate down.

Required doses do go up and down and up and down.

1 Like

IDK. That low was unusual for me. My usual pre meal FS runs 100-130 during the day. My usual morning FS varies anywhere from 120s-160s.

I went back and looked at your original post, and if youā€™ve only had 3 hypos in 8 weeks and were able to respond yourself to all of them, maybe your dose isnā€™t out of whack.

For me a string of 3 hypos in a day is a wake-up call that I have to change my dose down.

Broadly Iā€™ve had so many hypos in the past 38 years that they generally occasional hypos donā€™t send me into a loop. I can usually just deal with a hypo and move on. But every so often, yes, there is a real doozy of a hypo and itā€™s not even necessarily just that the bg number is low but because the mental whack knocks off my usual plans for the day.

That is scary. Multiple hypos in a day? Yeah, that would make me think that a change in regimen is needed. It sounds like you have been doing this a very long time and have a decent handle on things.

Thankfully, I do not get a lot of crazy lows. The ā€œscary incidentā€ makes me realize I need a better hypoglycemia plan in placeā€¦especially when travelling alone Iā€™m not sure that reducing insulin regimen makes sense right now since my numbers are usually OK.

Because I am a snacker (according to my endo educator) I do not usually get lots of crazy lows. Since I graze all day long and only have 1 big meal at night, my levels are fairly steady. I do 2 carb mini meals/snacks several times each day and dose myself accordingly. Then I have dinner which is my big meal. Itā€™s a lot more needles but it works for me. I hate artificial sweeteners of any kind and have lots of food allergies (as previously stated). Iā€™m learning a lot from folks like you and I appreciate it.

You could by an old crappy iPhone from eBay for 25 bucks and just use it for your dexcom receiver.

You were 100% correct. I have had to start titrating down due to too many hypos. Iā€™m down to Treciba 44 units from 60 units and using less Fiasp too. I have lost some weight which may also be helping. I am still having lows, especially on work days and am considering decreasing my Treciba again.

Nutritional deficiency by diet or inability to absorb can cause swelling of the tongue and other