The Docs asked for an article on how diabetics influence medicine through unconventional means, like Loop and patient built APS systems…but also all the unique things we do as a community. I think I’m gonna write something like this. If you have input about something that I should not forget to add, let me know.
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The Doctors are killing me today. I’m changing what I planned to write.
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We need to be creative in additional ways. I am MDI and have been using wonderful digital pens that dose in 0,1u for near 20 years. These pens are not available in the US, but I have been happy ordering them in Europe or China as they are all made in Korea or China. They are, of course, not FDA approved but who cares. They work great and that is all that matters.
I have also ordered my insulin from Canada, self pay, for many years because even self-pay was a lot cheaper than my US insurance copay.
Necissity is the mother of invention and as long as we are willing to think Globally out of the box, we have an ever increasing number of options available to better control our condition at a lower cost.
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Do you think that the Doctors lack the “necessity” to change anything? I really struggle with this. Sometimes it feels like they are just sitting back, collecting a paycheck at our expense. Look what they are writing now:
I don’t think they have forums to discuss problems like we do. How will they ever problem solve? @DrBB, what platform is Tu build on? Looks like wordpress. They need something like this. They are using FB. That’s no good for complex problem solving.
Thanks for the feedback on this. Gaining access to supplies IS a big deal and people do a lot of creative things to acquire meds.
The Docs are on the move. They are moving down the rabbit hole trying to figure out if they can make a legislative move. They are discussing their options. You can watch them on linkedIn. Dutch Rojas on LinkedIn: “Price transparency won’t work.” That’s what fancy people keep… | 66 comments They will primarily need to discuss all this on their own and try to wrap their hands around it. They are doing that. All I can do is feed them information about the legislative landscape so they develop the best strategy that they can.
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