My appointment with the endo went really well. They feel pretty sure it is type1 but are running a c pepetide, Gad antibody and another A1c. It will take two weeks to get those results back. I was given a calorie king and another book with meal ideas. They were going to set me up with a nutritionist but insurance will not pay until there is positive diagnosis. I still question the type 1 diagnosis. I know that I have some sort of diabetes or pre diabetes but I don’t feel like it is type1. The endo feels pretty confident that the antibody will be positive. I just wanted to thank all you all for the words of encouragement and support that everyone has given. This forum has an awesome bunch of people on it and am glad that I can be apart of it.
Thanks for the update. Been worried about how you were feeling. How are you doing?
I’m guessing that your endo hasn’t given you any meds or insulin awaiting the results.
Not to be an alarmist or scare you, but if you aren’t feeling well call your endo right away, or go to the hospital.
I am still very tired,hungry and thirsty. I hate having to wait two weeks but it is for the best. I want to be sure and have an accurate diagnosis before being put on meds. You have been so great in helping me and I really appreciate it!!
Waiting is really hard. I hate you going through this for two more weeks:( Wish I could do more. I know how you feel because I went through the same physical symptoms until I ended up in the ER near death. Because of this, I was put on insulin immediately without test results.
Please do as low carb as possible. The meal plan book you were given is probably ADA guidelines & that’s too high for any diabetic, especially without meds or insulin to help control BG.
Thanks for the update… patience is a virtue (not my greatest though…LOL) Until they give you the results and actually prescribe meds or insulin, just take care of yourself (be aware of how you are feeling, watch carb intake, read and learn about the condition, etc…). Gerri is right…if you are not feeling well, call your doctor or go to the hospital just to be sure…
I agree with all the posters; but I do not advocate a wait at all… If you are truly insulin -deficient and “very tired, hungry,and thirsty”, two weeks, IMHO, is way too long to wait. :You could go into DKA. I suggest you go and buy some Ketodiastix( they may be called something else in your area, they are urine ketone test strips) from your local pharmacy; no prescription is needed in my state, Ohio. You test your urine… If the strip color turns medium to dark, you are spilling ketones and this is not good… If so,.I suggest an ER visit with your test strips and medical history as evidence. If you are truly Type one, you need insulin RIGHT AWAY… If insulin is needed and you are treated with it,You will feel so much better you won’t believe it… Please consider my suggestions
God Bless,
Brnetta
DKA is diabetic ketoacidosis, a VERY serious condition where the continued high blood sugars lead to all sorts of medical disorders and bodily dysfunctions. I am not trying to scare you, but I have had it ( about three times , and it is NOT FUN). I would not want anyone to go through DKA . Please test your urine and see.
God Bless,
Brunetta
Gerri’s suggestions is very important. You actually are one very lucky girl. Most rapid onset type 1s find out they are diabetic on a gurney in the ER. Everything will be ok, but as Gerri notes, you probably should eat low carb. Part of why you may be hungry is not being told what you can eat. Let me suggest my favorite, the “Steak and Salad Diet.” You can really make this a treat, I recommend Filet Mignon. Here is what you eat for the next two weeks, although boring, it will keep your blood sugar better controlled.
Breakfast: Eggs, sausage, bacon and coffee (in any quantity you want).
Lunch: Tuna salad and a green salad (I like spinach), make the tuna salad with mayo, mustard, sugar free pickles) (again any quantity you want)
Dinner: Filet Mignon, green veggies and salad (OMG. Any quantity you want).
If you are hungry between meals, snack on nuts, cheese (including cottage cheese).
Drink at least 64 oz of water a day. Make sure that some of that is sugar free gatorade or a sugar free electrolyte replacement.
If you follow this, even if your poor pooped out pancreas just gave out, you can make it through two weeks.
That being said, it would be safe to call you endo or his nurse and make sure that they know how you are feeling. Make sure you describe all of your symptoms.
Best of luck. If your husband gives you cr*p about all those expensive Filet Mignons, remind him of how expensive an ER trip is.
I just want to say: Please listen to the folks here who are so kind as to share their expertise, and their concern. I know you are in denial, but this is a very dangerous situation, and I would trust THEM even if you do not trust your diagnosis right now. Honestly, I would go to the ER today, and not wait for the doctor. I am just a firm believer that we don’t play with life. Health doesn’t wait for when we have money, or for when someone has the time to see us, sometimes…
Maybe it might be a good idea to discuss why do you think you may not have Type 1 Diabetes? Do you know it can happen to anyone, at any age or stage in their life? Regardless of whether or not there’s a history of any Diabetes in their family? And that even if your family has a history of Type 2, that doesn’t mean the type you get will always be Type 2? Do you know most doctors are never convinced something is Type 1? If you’re Endo is already convinced… There’s a big chance you just might be. Even though we wait for tests, know that it is very possible… And do not ignore caring for yourself – doing the things others have suggested – and paying extreme attention to your body at this time. Please make sure you tell a loved one or someone close to you in case something happens and you are not able to make a choice for yourself… to call the ER.
Lizmari & the others are right.
If I had gone to the hospital right away (thought I had the flu) instead of waiting until I was almost dead, I would have spared my body damage, not to mention the agony of DKA. I was diagnosed T1 at 53 with no history of either type diabetes in my family.
The possibility of dehydration is real, no matter how much fluid you take in. Electrolytes become imbalanced & that can lead to a coma or heart attack.
Feeling starved & exhausted is the result of high BG. Your cells are not getting the energy needed for life because of lack of insulin, if you are a T1. The body is in a starvation mode–weight loss, lethargy, thirst.
I agree with Gerri. You already have said you know you have some type of diabetes or prediabetes. At this point, you have no actual diagnosis, but you know your body is telling you something is very wrong. The fluids, the low carb, the keytone strips, those are all pieces of advice I would not dismiss. Unfortunately, no matter what type of diabetes you have, things can go downhill VERY VERY fast. Two weeks is a long time if your body is already screaming what it is! Did you at least get a glucose meter?