What scenario do you fear the most because of your type 1 diabetes

I was recently watching that show lockup , only because there was nothing else on tv. This is a reality show that documents real life criminals behind bars. Believe me I’m not interested in becoming a criminal ! However I couldn’t help and wonder what happens to someone who is not only a type 1 diabetic but is also on a sensor and a pump . Common sense tells me that they wouldn’t let that person die , because I have never read a news report about an incident like that ,but I wouldn’t be surprised if there were many type 1 diabetics out there that came close to death while in jail . Here’s probably what I can imagine is a common scenario when a type 1 gets arrested … I believe that the officer would force the person to take there pump off and sensor and as they are demanding this there telling the person to shut the beep up because the person is trying to explain that if they take off their pump they have no longacting insulin in their body nor do they even have 1 needle along with some lantus . Now the officer ( if he doesn’t know someone personally with type 1 ) is gonna scream at this person and then tell them something stupid like " nobody ever died from missing one nights worth of their medicine .I get all anxiety ridden just thinking about how this persons night would be and just imagine that they got arrested right after correcting a high blood sugar because I know with me personally 9outa 10 times I always end up going low at least 2 hours later . Another scenario , imagine a diabetic gets arrested on a day that they were suffering from insulin resistance and were having one of those days when there running 250 all day no matter how much insulin they keep taking to get it down . These are my worst fears as a type one I’m not worried about this ever happening to me but I have heard of those people out there who get wrongfully accused
I really think that there should be a law that a type 1 who has a pump should be aloud to keep it on at least until they meet with the staff doctor about what kind of method they will be required to switch to . There is not enough knowledge out there about diabetes people who don’t have this think that all you have to do is stay away from sugar and them you’ll be ok

i was arrested and brought to jail....for failure to pay an a$$'s bill....the arresting officer wouldn't allow me to take my gear with me (pre-pump days). it ended up that i had to stay the night in jail....around 2am, after hours of telling them i needed to check my sugar.....they finally came. i was 26.

then, in the morning, they didn't get me any insulin at all.....i was well about 300 by the time i was picked up.

they DO NOT CARE. they create medical emergencies. and will only treat medical emergencies.

it was terrifying.

That is exactly how I imagine it to be… I don’t think it’s fair that a diabetic has to not only due the time but they also have to fear for their life . I wonder how many diabetics have died while just in the holding cell .

I've watched that show and had similar questions myself. I assumed that a pump user would have to relinquish the pump, but I wondered how they would adhere to an insulin/meal regiment. I guessed that the care would not be consistent and bare bones. I just don't expect that unless the correction officers have some level of education about the dangers of diabetes that they would be too concerned with monitoring blood glucose levels or insulin delivery.

A lot of prision's are staffed at least with nurses. While not great it is better than nothing. But um to be fair, WHY should a diabetic if they commit a crime that is punishable by jail time NOT have to serve that time. Im sorry but I don't see where being diabetic gives me free reign that if I were to commit a crime I should be given a pass on doing time.

I don't think you should be given a free pass and you should do the time but I don't think you should suffer from sub-standard care either. For a police or prison agency to deprive a diabetic of their insulin or their ability to test even for a short while would be morally wrong.

For a police agency not to know in this day and age would be hard for me to believe so I was consider any act to deprive a diabetic an act of malice.

What I was staying in my discussion had nothing to do with me believing that diabetes should be a get out free card from jail . I was just stating that taking a diabetics pump away probably happens as soon as the handcuffs go on the hands . So that diabetic is probably without any insulin in their body for a good 24 hours until the nurse makes her assessment of this newly booked person .

I guess for me MY worst fear would be something out of my control. Im not stressing being in jail cause Im not doing anything to GET in jail for. But for me I'd be more afraid of I don't know being held at gunpoint, abducted something totally out of my control.

I went to the hospital with kidney stones and they put me on morphine and a glucose drip for 6 hours. My BG was normal when I checked in and my wife told them I was insulin dependent. Finally my wife went home and got my meter and some insulin, when she checked my BG it was 400+ and they would not let my wife give me some insulin. It took about 4 more hours for them to get a Rx for a Humalog pin but even then they said I would have to wait for breakfast because the orders said to administer it on a sliding scale with meals. They gave me 3u with my first meal my TDD at that time was about 40u and there plain was 9u a day and no basal insulin. I told my wife just take me home they are going to kill me.

If your checked in to a Federal prison it's possible that they will put you on a pump, I know a pump trainer that does training at a Federal-prison. She said the pumps belong to the bureau of Federal prisons and the inmates do not get to keep them when they leave the system. They have outstanding medical benefits.

My worst nightmare is riding on a tandem bicycle with Winne the Poo while flaming buckets of honey are raining down from the sky all around us....;-)

If I was arrested I'd probably overshoot myself with insulin and go into a coma, In the end I would win!

Not saying that diabetes, or any medical issue for that matter, should be a get out of jail free pass. If you commit a crime you must face the consequences. However, I do believe that medical concerns should not be taken lightly whether it be diabetes, epilepsy, asthma, or some other disease. But as the post asked what was my fear as a diabetic. I have seen the show and have contemplated what it would be like to be confined to a prison as type 1. I've also read stories of type 1's without medical insurance and my heart goes out to those facing this situation. These are two situations as a type 1 that I fear.

Similar to what JohnG describes, I fear most the total lack of understanding by medical staff regarding our needs as type 1s. The few times I've been in a hospital, I have had to literally pitch a fit to be able to treat myself the way I know I need to be treated. Hospitals approach all "diabetes" the same - sliding scale insulin, scheduled "diabetic" meals, etc. The reality is that type 1 is a VERY different condition compared to type 2 and, therefore, requires a different type of management. Also, those of us who live with our disease 24/7 know how it responds, and the resistant of medical staff to simply listen to us frustrates me beyond belief.

From what I've seen, this is getting worse. It's probably because type 2 has become so widespread that medical staff are actually becoming more ignorant of type 1. I am so worried that I'll eventually need medical care and won't be able to advocate/speak for myself. This is what frightens me the most.

Now that's a scary situation. You would think a hospital would know how to control your levels. I think I would be like you and just leave if I was able. If I'm able I believe I could be forceful enough to insist on better but what happens if you're incapacitated. It's scary to think that the place that's suppose to heal you is going to harm you.

Gary S

At least in the US, a pump/ CGM is generally paid for by employer benefits which would generally cease if you were arrested as your employer would likely fire you? There'd be COBRA but it would be impossible to arrange supplies without a phone/ mail so you'd likely be left with whatever state-funded treatment would be made available to someone in that situation.

I was in the hospital 2 years ago for Asma type symptoms and they gave me steroids to help with my difficulty with breathing , in the emergency room they were very good with my type 1 diabetes . It was a different story after I got admitted , because when I woke up the next morning my bl was in the high 300s and I was also starving cause I hadn’t eaten since lunch the day before . So I tool a bolouss with correction and I still managed to stay at 300 all day and when lunch arrived I was around 340 and when I told the nurse that laying in this bed all day with a 350 bl is only gonna make it worse since I’m not moving much and she just looked at me and said you are eating to much and I told her I’m only eating the diabetic foods from the meal plan that they have me on ( very bland food , horrible ) As a nurse she didn’t know that the steroids were making me high , I was even told from the doc that they even make non - diabetics sugar rise above normal

My dad was in the hospital a few years ago and his sugars were consistently between 350 and 400 while he was there. All they are trained to do is keep you out of hypoglycemia because it could end in fatality. When I was in the hospital a few weeks back the doctor told me most diabetics come in with 250 to 300 sugars and they see no reason to be concerned.

I've heard similar things, which really frightens me. With a T2, there is natural insulin production, so while running a BG that high can cause damage, the person is generally not going to slip into DKA. However, with T1s, a BG of 300 can quickly become a BG of 600+ and result in DKA. My endo, who is a bit more knowledgeable of T1 compared to most other adult endos I've seen, told me once that this is a not insignificant problem in the hospital setting. She has always emphasized to me that should I end up in the hospital, she needs to be contacted because of this very issue. Serious quality of care issue as far as I'm concerned, because it amounts to a medical establishment not understanding the basic condition which they might be treating!!!

I think the reason hospitals are hyper about hypos is because a hypo would obligate them to "HURRY!" which is one thing hospitals, except maybe the ER, are extremely poor at? If you "need" juice, the nurse who stumbles upon you twitching on the floor, has to take emergency measures, the doc has to evalute you, then he has to write an order for some dude in the cafeteria to get you some juice, then the juice arrives and, since that will probably take 45 minutes, they don't bother waiting and crank your BG up to 400 w/ IV dextrose and glucagon.

This is so true , about a year ago I was considering becoming a nurse but then I changed my mind cause I would probably get fired . I would be to sensitive to all diabetics needs that when they would have a low I would probably hand them some of my glucose gels and tablets . It seems like the hospital staffs are still trained to care for a diabetic the same way they did before we even had blood sugar monitors . It’s so outdated I think that they should have a wing in all hospitals thAt would only be for diabetics

Marie, now there's a thought. I would love a wing for diabetics, although it would kind of depend on your reason for being admitted in the first place. When I had a knee replacement, my doctor gave orders for me to take care of myself on my pump, and I did. The nurses were interested in what I was doing, but I did it myself. But there was no substitute for being in the knee replacement wing, where we all learned to walk again.