15 strips a day! Or: Dexcom Cold Turkey

Well maybe not that many. But I’m losing count. Why, you ask? Because just shy of two weeks ago I got the low battery alert (“order a new one now!”), and unfortunately it came on a Saturday when Liberty Medical (shudder) can’t take orders, and on Sunday my sensor of 23 days started to go flaky, so I had to change it, and once you’re inside the Low Battery Warning period you only get ONE sensor session, meaning no roll-overs chucko, seven days and that’s IT, the transmitter shuts down. And is Liberty capable of delivering a new transmitter within that time period? Does the Pope sleep in the woods?

Therefore it has now been four days of NO CGM FOR YOU, and man I am jonesing. First world problems, yeah, but I hadn’t truly realized how dependent on it I’ve become over the, what, two years since I started using it. I mean, I didn’t USED to test this much in my life before CGM so you’d think it wouldn’t be such a big adjustment to go back to that. But aaagggh. It’s like flying blind. Thing is, it’s not just a problem of not knowing where I’m at at any given moment, it’s the lack of any sense of how things are trending. Big problem for pre-bolusing, tracking post-prandials, exercise. The only way to get a rough approximation when things are changing is to test, then test again 15-20 minutes later, then test again then test again… How come this didn’t matter so much to me before?

You really don’t know what you got till it’s gone. Hope that delivery gets here soon.

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I completely understand your situation, @DrBB. When my CGM readings go dark for two hours every week, I find I finger-stick about four times for that period alone. If I had to go off CGM fully, 15/day doesn’t sound like too many checks to me.

For many years I was checking 10-15 times per day while also running a CGM. I now finger-stick about six times per day. I totally understand the feeling of flying blind and the lack of trend info. I hope your package arrives soon! Maybe you should keep an extra transmitter on hand so you don’t have to do this again.

I’m on Day 4 of my first-ever sensor, and for me the trend info is hands down the biggest advantage of a CGM. A week ago a fingerstick at bedtime might have told me I was 5.5, but I wouldn’t have known if I was going up or going down or holding steady. Now I can see at a glance where I’m headed, and can take appropriate action.

The high/low alerts, the rapid rise/fall alerts, the look-back are all nice, but this trend feature is a little miracle.

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Crazy thing is that a day after I placed the Dexcom order I got a call from Medtronic wanting my final decision on the 630->670G deal–said I was pretty much against the deadline to get everything processed in time. I’d been dithering but I made the call to go for it. No reason to cancel the Dexcom order because my script was valid and I had no idea how long it would take MedT and BCBS to grind their wheels and actually get me the stuff, not to mention they want you to have a training session before using it. But to my surprise the MedT process went really fast; I just got the Enlite system last night, and was just now notified that my Dexcom package has been delivered this afternoon.

Feast or famine!

Only my first-world problem goes on: do I go ahead and initiate one of the Dexcom transmitters knowing I’m going to switch over to MedT in a week or two, or just go ahead and hook myself up to the MedT system (I’m sure I can figure it out without the “training”)? The former seems kind of a waste of a transmitter… but maybe I can run them both–a side by side comparison! Somebody else around here said they’d tried that. Hm…

Either way it looks like I’ll at least have one unused Dexcom transmitter (not to mention several boxes of sensors) as a back up if I need it.

I have a similar comfort bump built into my D-supply. I think this is entirely rational behavior given the systemic uncertainties built into the US “health care” system. First world concerns, to be sure, but rational nonetheless.

Good luck with your new 670G. If it were me, I’d tear into it now and get it going. I’m not a patient patient. Please report your experiences.

So would I, except the deal is I get the 630G now and am guaranteed one of the first wave of 630Gs when they’re officially released in June. Unfortunately the 630G uses the current Enlight system, while the 670 uses the new Guardian3, which I believe is closer in ease of insertion as well as accuracy to the G5. My preference would be to just keep using my G5 in non-integrated fashion the way I’ve been doing with my old M-t pump right up until I get the 670, but I was told they require using the Enlite/630 system before transitioning to the 670. Gonna try and get a little more info about that tomorrow and see how hard a requirement it is.

I am really curious about having a CGM. There are a number of things that I am unsure about. I have low vision at about 20:250 and dexterity/touch issues in my hands and fingers. Would I be able to handle this device and associated items by myself? I’m not a real fan of the idea of being hooked up to something 24/7 either. But the feedback from a CGM is very appealing. Can you give me a basic idea of what it costs to use one of these? Last question, what else don’t I know about this?

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Wow @Randy5 that’s a lot to respond to in a single comment. Cost depends on insurance, or lack thereof. In the latter case, damned expensive. For me, with pretty decent (at least for the moment) BCBS coverage, and stipulating this is for a Dexcom G5, it’s something like $80-120/month. You can extend the life of the sensors by at least 2x beyond the official replacement period, so that makes it cheaper than it might look on paper.

The eyesight thing isn’t something I have experience with, but a Dexcom receiver is no harder to read than a standard BG tester, maybe even easier if you use the smartphone app. But if touchscreen manipulation is a challenge you can do it all with the stand-alone receiver, which uses a 4-direction click-and-select button, similar to a simplified TV remote. The sensor insertion process is also pretty simple but might be a problem if you have lost a lot of fine motor control. There are some finicky aspects to it–getting the adhesive patch smoothed down, squeezing tabs to release the insertion device and so on. I never had or requested a hands-on demo when I got mine but it might be worth contacting their sales dept and seeing if they offer that for people with impairments.

The core question is, “Do I NEED this,” or “How will this help?” Probably the primary use case for an adult is if you have problems sensing lows and/or are susceptible to overnight lows, it will alert you to them. For my insurance, my endo had to certify that I’d had some particular number of hypos in the 3 months previous to her recommending it, which wasn’t a problem. As always, hypos seem to be the thing that officialdom is most concerned about. “We don’t care if you go DKA, just don’t have a hypo!!!” is a slight exaggeration of the mindset, an outgrowth of “We can’t believe we have to let you people dose yourselves with this dangerous drug completely without supervision!!!” But beyond that, it’s enormously helpful for all kinds of things because it’s a dynamic representation of what your BG is doing, not a static snapshot like you get with fingersticks. Which is invaluable for dealing with, for example, what your BG is doing during exercise, or pre-bolusing before a meal, so you can time your carb consumption against when the insulin actually starts to take effect, and so on. For a sugar-normal person there is a whole network of internal signaling loops that regulate this stuff, but since we have to do it manually this is MUCH closer to giving you that kind of information flow so you can approximate that lost capacity

As for being hooked up to something 24/7, well… The sensor is exceedingly fine, like a human hair, so unlike a pump canula you’re really unaware of it except in the rare case where the insertion impinges on a nerve, blood vessel or other sensitive area. But yeah, there’s a thing stuck to you all the time. If that concept has dissuaded you from getting a pump a CGM might still be worth considering–it’s generally less obtrusive than most pumps are.

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I think @Jen might be able to answer some of your concerns. She uses a Dexcom CGM, a G4, I believe. She is sight impaired but I recall her mentioning using optical magnifiers to help.

Yep. I have low vision (about 20/500) and use a Dexcom G4 and an Animas Ping pump. Let me know if you have any particular concerns that I can help with.

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Thank you all for your input. It was actually very helpful. Especially all that detailed information about handling from Dr. BB. For at least the time being this does not sound like a really good plan for me. I seriously doubt that I could consistently manage all of this without assistance. But, it really does seem like a much better way to monitor blood sugar overall. Hopefully the technology and my condition will merge at some point in the near future.

And Jen, at some point I will likely take advantage of your offer. It is always difficult to determine the real value of some of these technologies without actually touching them. Having someone with similar challenges that has the experience with them is a real plus in my book. Thanks for the offer.

Thanks again to all of you. Have a great weekend.

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I agree with that 100%.

COMPARISON!!! I did the same (just to wear out the time I had left with my last Dexcom). When I first started out with using both, the Dex put Enlite to shame. Scared me to let go of the Dexcom. However, I used both for about a month - 1.5 mos…and by the middle, the Enlite was almost…ALMOST…on point as many times as Dex was. And sometimes, even the Enlite was a better reading than the Dex. So…I guess it kind of flustered me at the beginning, but also made me feel much better toward the end when I ran out of my Dex time. The Enlite is much more particular about cals, and doesn’t have the “slightly” up arrow, just one up, two up, three up - so that took some getting used to. And, if you miss a cal, it doesn’t just keep on keepin’ on like the Dex would. It goes blank. And it doesn’t take just until the next read to give you a number after a cal, it takes like, 10 minutes to catch up.

But anyway. The comparison time was helpful in the end :slight_smile:

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There are a couple of groups on Facebook who will replace the batteries in Dexcom transmitters for minimal cost. I use a slim G4 which apparently they have had a lot of practice with. They warranty the battery replacement for 9 months instead of Dexcom’s 6 months. They do G5 transmitters and it could be a back-up to Liberty Medical which incidentally was one of my third party choices when I switched to Blue Cross, my other choice was “Better Living Now”. Thankfully so far I still have enough supplies leftover from before that I haven’t had order yet. Dexcom G4 slim platnium and G5 battery replacement service and help/trades | Facebook