36 year young type 1 looking for some friends

You are not alone, James!

I was misdiagnosed as Type 2 when I was 32, just after my daughter was born.
My wife was the only one who understood what I was going through because she had just had Gestational Diabetes during the pregnancy (I now joke that I got post-gestational diabetes :wink:
but everyone else would tell me ā€œitā€™s from all the gummy bears you ate in college!ā€ or ā€œI heard coconut oil can cure your diabetesā€ or ā€œeat a bunch of cinnamon!ā€

I asked multiple doctors to test me for Type 1 (Iā€™m 6ā€™ tall and weight ~165 lbs!) but all of them told me ā€œItā€™s an expensive test and I am certain you have Type 2ā€ā€¦ every single one of them!

After a year and half of trying Metformin + Glyburide to no avail, I finally talked to an endocrinologist over the phone and the first thing he told me was ā€œlooking at your chart, I want to test you for Type 1ā€

My entire life Iā€™ve only ever been afraid of 2 things: spiders and needlesā€¦ so the whole insulin thing was terrifying for me.
When my poor wife had GD, I couldnā€™t even help her inject (she had to do it herself in her big belly, I was so useless!)ā€¦ so I always tell her ā€œthis is what I get for being such a bad husband when you had diabetes!ā€

I remember when I tried to inject my first flexpen in my stomachā€¦ I just sat there and my arm wouldnā€™t do itā€¦ it was just impossible for me to stab myself with a needle!

Luckily, I am now only afraid of spiders :wink: but what helped me the most was seeing Manny Hernandez give a talk at a Joslin Diabetes summit I presented at.
He said something like this: ā€œmost doctors donā€™t know anything about LADA, so I wanted to create a place where those with experience could help othersā€¦ thatā€™s when I created TuDiabetesā€

As soon as I flew back home to Seattle, I joined this amazing website and also found a Diabetes Happy Hour that met about once a month.
It changed my lifeā€¦ thanks to these two amazing resources, I switched to an insulin pump, I got a Dexcom G4 CGM, and realized that I can still do most of the activities that I lovedā€¦ because I would meet people that were on the rowing team with Type 1.5 (they just used the waterproof Animas pump) or ran marathons!
Suddenly playing ultimate frisbee and soccer again, didnā€™t seem so impossible!

And this websiteā€¦ wow, every single question I had about pumping or my Dexcom was answeredā€¦ every time!
I was going crazy when I was forced to upgrade to Windows 8 and my Dexcom software would no longer work (so I couldnā€™t send the data to the CDE that was helping me set all my complicated basal rates and carb ratios).
A hero from Microsoft in Seattle posted a solution to the problem here on TuDiabetes, by writing a program to circumvent the issueā€¦ a year later Dexcom finally had an update for Windows 8ā€¦ still not for Macs though! (and after typing that, I just noticed they have a new program for Macs: Dexcom Clarity | Diabetes Management Software | Dexcom ā€¦nice!)

Donā€™t give upā€¦ as Terry4 pointed out: life is very hard at our age (Iā€™m 38 now and feel like Iā€™m going through a midlife crisis!) and diabetes doesnā€™t make any of it easier, but you have a community of friends that want to help you!
I used to be super active on this site until a new job made that infeasible, someday soon I hope to be able to make it my home page againā€¦ but I canā€™t say enough good things about the people here.

Lastly, I would recommend trying to find a diabetes Happy Hour or support group in your areaā€¦ and if you canā€™t find one, why not start one up!?

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