My name is Jay and I'm a newly diagnosed type1. My wife has been stressing that I find a "support group" so I found Tudiabetes.
I was diagnosed 10/24 after spending a week in ICU. Now that I've been diagnosed, everyone tells me I should have recognized the signs, but easier said than done. I was 37 when diagnosed.
I told a few people that wondered why for three months I could only be up for two hours at a time, they all assumed it was because I'm a big boy. I've been active in martial arts my entire career so while I've been big, I can outrun most thin people, as well as out work them. When I tell them I'm type 1, they look me over and most don't believe me. One "friend" said "Oh! I thought type1 happened you know, thinner people and 2 was from people like you, bigger" At that point, I stopped telling people. A1C was 19, bg 422 fasting and ketoacidosis (sp?) put me in icu.
I'm now on the pump and dexcom and doing great with my numbers. My a1c is now 6.5 (one month being out of the hospital it was 12.5) and my Endo has put me on a 100 am fasting and 120 for the day. Although I'm one of the oldest people she's officially diagnosed as Type1, because my numbers have been good, she wants to keep me tested and at low numbers.
I'm a photographer by trade, married for 13 years and proud father of 5 beautiful daughters. My wife has been stressed with this all this so to be fair to her, we packed up and moved cross country. Because of my experiences, I dislike her talking to people, so it's only fair to bring her back to her family.
That is some movement on that 1AC..welcome! I am new here also my husband was diagnosed last March. I found this wonderful website looking for new recipes.
I wish I could take credit for the A1c but my body did it all lol. We made an agreement, my body and I, to not go back to ICU. The 2hour needle sticks are terrible lol.
We are hands on with the girls but we have a STRICT 8 bedtime rule haha. If it's 8:05 and we see you, it's trouble. 9 on weekends. I'm still working on saying no to the girls and meaning it. Right now when I say no, they laugh at me.
And it just so happens that four of the five, are Daddy's girls. ;)
Aren't you lucky to be surrounded by six beautiful ladies.
I was diagnosed T1 at 53 DKA. BG 809. Yea, I should have noticed symptoms sooner, too. Also spent time in ICU & told myself I'd do anything in the world not to ever be that sick again.
Welcome. You are in the right place. I am a Type 2 but we mix pretty freely here at TuDiabetes. I can't help you with the pump, but I have a few low-carb recipes up my sleeve.
13! She is her own girl. Which I guess was our goal? I took her to the bank (to deposit her check for babysitting, she's great in many ways, particularly w/ small children...) and the cashier asked her "do you have your license?"
Welcome. It sounds like you realy were quite sick. I'm glad that you have gotten things under control. I'm really glad you found us. Adjusting to having diabetes is not easy. I think you have a wonderful attitude, and that will help. But it does have a big impact on you. For myself, I suddenly had to face my own mortality. And while all the details, testing and injecting and watching every little thing you eat may not seem that bad, it can drag on you. Many of us tell ourselves that it isn't that bad. That we won't get bummed out over it. But it is hard. Sometimes you will just feel burned out. And while your friends and family may love you, they don't have diabetes and may just not understand.
So thanks for telling us your story and welcome to your new family.
ps. My daughter is now 19 and off in her sophmore year of college. It only seems like yesterday that she was like yours.
Welcome. It sounds like you realy were quite sick. I'm glad that you have gotten things under control. I'm really glad you found us. Adjusting to having diabetes is not easy. I think you have a wonderful attitude, and that will help. But it does have a big impact on you. For myself, I suddenly had to face my own mortality. And while all the details, testing and injecting and watching every little thing you eat may not seem that bad, it can drag on you. Many of us tell ourselves that it isn't that bad. That we won't get bummed out over it. But it is hard. Sometimes you will just feel burned out. And while your friends and family may love you, they don't have diabetes and may just not understand.
So thanks for telling us your story and welcome to your new family.
ps. My daughter is now 19 and off in her sophmore year of college. It only seems like yesterday that she was like yours.
Welcome to this forum; read as much as you can, I found it extremely helpful when I was first diagnosed. By the way, 37 is not "old" to be diagnosed. I was diagnosed at 59, three years ago. I am just beginning to feel confident that I have, and will continue to, keep this thing under tight control
Welcome, Jigga, glad you found us! Please also encourage your wife to join. We have a fairly large number of spouses, parents, etc. who are very supportive. Ask loads of questions, you'll get loads of opinions/answers! I love my pump/dexcom, really helps with control especially if you use the downloadable data.
Welcome! I was dx in September at 35 and have two daughters :). You did a great job getting your a1cdown! I also got on a pump (omnipod) and cgm (Dexcom) right away and it helped tremendously! This group has a helped me more than I could imagine and I hope it does for you as well!
Ya, I was pretty bad. The ER Doc came in and told me "You should be in a coma, actually, you should be dead". I don't remember much as I went back to sleep when he said it, but remember thinking "Helluva way to fall...asleep" hah.
For sure, even though I'm a new diagnosis, I have bad days. I will say the pump has been good and bad for me. It's been good because I can hit my numbers now with out even trying. Bad because it's given me the freedom to eat whatever I want with out sticking myself. Before I thought about every piece of food that went into my mouth, now that I have the ping, I just grab the remote and press away. Starting yesterday I went back to my three square meals per day and felt great all day yesterday.
My Mom's sister died from Diabetes back in the mid '60's and her daughter recently killed herself from diabetes. I say killed herself because she never took her insulin but would eat two whoppers, two large fries and diet coke..for breakfast. While the ping has made me lazy, I'm not that bad. Now I loved my cousin, she was by far and large my fav, but I can't see it as anything other than killing herself.
Some-days I'm OK with being a diabetic, other days not so much. I'm trying to take it one day at a time.
My girls are growing too fast! My teenager used to think the world of me. Now I'm a pest lol. So I'll take her phone (after reminding her I didn't have a cell phone when I was 12-almost 13) and text her friends. They get a kick out of it, drives her totally crazy.
The hardest part for me is when I tell people, EVERYONE has a story of their best friends sister, brother's best friends uncle who got his leg and two toes on his right hand amputated due to diabetes. My Endo says it's not the case as long as one takes care of themselves, but I can't help but think it's a possibility. I plan to live everyday as I did before "Gettin the diabetus" as my Mom refers to it.
I will for sure have my wife join as suggested. I'm the normal one, she's the crazy one fyi ;)
And she'll for SURE be begging for recopies. I stick to foods that I've been eating the past four months as I know what they'll do to my numbers. I'll admit I'm kinda sick of them, but seeing my numbers go high after a meal freaks me out. Last thing I need is to lose an eye for one day of being 205 for an hour :( Endo says it's impossible, but I'm always "that guy"
