5 year old daughter diagonsed last week

@cynthia_rogers thanks for your encouraging words. Encouragement is what I need the most, I think, at this time. I have been testing her at least 7-8 times a day. As for milk, I believe it is not thirst-related because post diagnosis she was demanding a lottt of water to quench the thirst that comes as a result increased BG levels. Also, today (Day 4) post diagnosis she is not been demanding as much food/milk as she had been in the initial 3 days. Any thoughts/recommendations are most welcome!

@jack16 thanks for sharing these resourceful PDFs. I will spend time reading through them. As for the long acting insulin, my endocrinologist and diabetes educator have reduced the dosage from 4 to 3 units. Let’s see how that works. The team also educated me about corrections and this education makes me feel a lot more in control of the situation. Thanks again! :slight_smile:

@Timbeak48 I still need to learn to count the carbs; will get on to it ASAP. Feel free to share any resources that you feel may help with my education on this front. And, thank you for the kind and encouraging words! :slight_smile:

@Priya1 I am always saddened to learn of a new diagnosis, particularly in the little ones. Reaching out to others is a very wise move. The support I found online was invaluable in the early months of my daughter’s diagnosis, & I continue to learn from groups like this.

The books recommended above are excellent resources. You will most likely have to order them online so in the meantime, I’m providing a link to an excellent basic primer. The pages are not printable, but the complete book is there.
http://www.ucdenver.edu/academics/colleges/medicalschool/centers/BarbaraDavis/OnlineBooks/books/Pages/UnderstandingDiabetes.aspx

Hang in there, & keep reaching out.

I was actually taught by a dietitian. Does your insurance cover something like that? The dietitian was able to determine what my nutritional needs were and that helped me to figure out what would be good for me to eat. He/she can also teach you techniques like how to figure out how many carbohydrates are in a food by its size.

I found it very helpful to use a food scale and measuring cups. I was only diagnosed in 2009 at age 43 . But my oldest brother was diagnosed in 1971 at the age of 13. My mother still had his scale, so I measure out my food to make sure I’m getting an accurate idea of how much insulin to take.

Ask your doctor/ diabetes educator about what resources he has for nutrition training. Once again, hang in there. You can do it!

Hi Priya,

I hope your daughter is doing well. My son is 3 and was diagnosed 5 months ago. It is still a roller coaster everyday. Early on we were told to keep the same diet and don’t restrict carbs. Young children need carbs for development. We are still trying to get my sons levels in the 100’s during the day so know that it’s a process and it takes time. Over time you can make modifications to diet as you start to learn more about the condition and how certain foods affect her levels. Be sure to get a food scale that shows the number of carbs and the Calorie King book.

Also, you may want to look into getting a continuous glucose monitor (Dexcom). We got this very early after diagnosis and I think it’s an invaluable tool, especially since she’s so young and at school most of the time. Just take it one day at a time!

It will get easier. once you get to counting and weighing carbs, It will make life smoother, as well as measuring scoops, there are also ‘smart’ scales that can help a lot

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@msmina63 I’m sorry, but whoever told you that anyone ‘needs’ carbs and don’t restrict carbs for development is wrong, There are essential fats and proteins, there are no essential carbs.

It may not be necessary to go this far but this group, among others, has taken carbs to a very low amount. This is the FB group, you will need to join to get full access

you may need to find a happy medium with carbs, If the bloods are all over the place and on a rollercoaster.

“Big inputs make big mistakes; small inputs make small mistakes.”

I would say the first couple of months would be the best time to keep the carbs low, with low carb recipes, swapping out some carbs for more protein and fats, till you learn carb counting and insulin adjustment.

I would actually suggest the best thing to do is consult your endocrinologist about this.

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most definitely, everything should be done under medical consent and supervision, as I first said above

Your daughter’s body was struggling to process energy before diagnosis. Now that she has more insulin it is happily processing energy. She may be building back energy stores that were depleted. Being hungery is normal.

Many others have spoken to the feeling of being overwhelmed. Real normal.

You are on the right path. The good news is you have a medical team and now that you are here and emotional sounding board. Use both. It is very easy to read ten thousand things on line and being a good parent, you may feel compelled to explore them all. Diabetes is different - in every child, adult, and in between. Maybe those in betweens the most. It is different day to day in teh same person. My 2¢ is to learn early that Your Diabetes May Vary. YDMV.

Read and absorb and take small steps Just last week I was talking with a woman who has lived for 53 years with type 1. Long and productive lives are not only the goal, they are the reality.

All my best.

BD Dad of 4, 2 are T1.

You will find a lot of useful advice here. may daughter was diagnosed december 29 2014, and I am still learning. The hardest thing I have found is to not let diabetes dominate your life, and just get on with it. Enjoy life!

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Thanks! We will complete 2 months post diagnosis on May 17. I agree - it is just so hard to not let Diabetes dominate your life. It is so overwhelming for me even now. I just hope that these feeling get better with time.

It will get better. And easier. Never easy, but easier, especially if you stick around on this Forum. This will all become your new “normal”.

Thanks for the encouraging words. Desperately waiting for it to become the ‘new’ normal for us, The good part is that my daughter has adapted really well to it!

On a separate note - I got my copy of ‘Think Like Pancreas’ early this week. It is an interesting read, Hoping to learn a lot from it. Any good reads that you could recommend for my daughter? She is only 5 - probably a light picture book would be good. Do let me know if you have any suggestions.

here’s a little video for kids

and Disney has a cartoon character with type1 - here are some books with “CoCo”

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Thanks! :slight_smile: