Perhaps Type 1 's need to learn to clarify their needs better before announcing to they world they don’t want to be around certain people because they don’t share the same experience.
Peace out!
Hello,
I mentioned this in an earlier posting…Are there rules or regulations as to determining a Type1 from TYPE 2 or 1.5? I was suggesting a movement to require more definitive of diagnosis. This is an area I don’t have alot of knowledge about before I make a bunch of incorrect comments. It seems there is alot of misdiagnosis happening!!!
Thanks!
What do you think needs to be done on a short-term and long-term basis Christalyn? What are your ideas?
God Bless,
Brunetta
This is my view exactly!! I think we should all be a support system for each other. I want to learn about other people and their experiences. If a person doesn’t need support than why are they on this site??? Thank you so much!!
I am a organizer for a MMA/UFC meetup group. So I got a noticed that a diabetic group lost its organizer. I was thinking about taking over this group and a person wrote they really didn’t want to be around a bunch of TYPE 2.
HELLO!!! I am a TYPE 2!!! I just thought the gall to announce this and not even care to find it I am the exact type of person you were taking about was completely rude. This is why I posted this. I find it completely funny that it has been Type 1 folks doing all the talking. I posted this on a TYPE 2 forum.
Thanks!!!
this is my point!!! I would like for all of us diabetics to take this energy and focus it on legislation or discounts for supplies not pick and chose what we like and don’t like.
I am working on a activism group about the discounts!!!
Thanks!
Thank you so much!!!
I understand there are differences, and I would like to learn them. I like to know what you did to solve the frozen tubing on a ski trip. I would figure you would put it in the microwave. tell me it this works or not!!
Ultimately, my goal is to get people together and work on some legislation and do some activisim. I can’t do this unless we are all involve. I feel I can learn from a Type 1 and other TYPE 2. I don’t see how having these differences should separate us but should qualify to make us stronger as a group. As a group, I think our involvement would bring about better research and equipment for people.
I wonder why are there so many misdiagnosis of Type 1 and TYPES 1.5 & 2.0? It makes me wonder was I misdiagnosed because I am on so many different meds and injectables. If retailers can get together and have major discounts of electronics for Black Friday than why can we petition some of these diabetic companies to do the same for RED Thursday. This is what I call it.
Thanks again.
I would like for this blog to have a section called Myth’s About the Type 1 and Myth’s about the TYPE 2.
and have factual information and not alot of emotion stuff. Then keep questions like this one off the map completely.
I was going to ask about doing this. I am about learning and education.
Thanks for responding
Chrystalyn , maybe a bit of topic in regard to the title of your discussion , but you asked " aren’t we all the same …" as I mentioned in this discussion I have chaired support groups( type 2 ) , still chair pumpers group , added by having chaired Diabetes Expo’s ( type 1 and type 2 ) , mentor pumpers , do participate with Team Diabetes Canada , including fund raising ,am an advocate with the Canadian Diabetes ■■■’n , through this medium have met with the Provincial and Federal Polititians ( have been nominated by my MLA because of the contacts established …he is the past Health Minister …to carry the Olympic Torch in my community …had it not been because of diabetes and my involvement …someone else would be carrying the Torch here ) I recently received a nice plague from the CDA …as a person with diabetes, I sat on a committee for the dissemenation and implementation of the CDA’s 2008 Clinical Guide Lines.
Last but not least my fellow TU members awarded the 2009 Crusader award of 2009 to this gal .
And I have type 1 diabetes .
Perhaps now is an appropriate time to add the May 2006 The New York Times’ article to this discussion. The article was entitled “Beyond ‘I’m A Diabetic,’ Little Common Ground”. Some food for thought on this conversation!
"Reply by Christalyn on January 9, 2010 at 3:53am
Perhaps Type 1 's need to learn to clarify their needs better before announcing to they world they don’t want to be around certain people because they don’t share the same experience.
Peace out!"
I’m sorry. I wasn’t going to say anything, but this statement is doing the same thing to the rest of us that they did to you. It’s generalizing and that’s not fair. There are plenty of type 1s in this discussion alone who stated that they agreed with your situation and empathize with you.
I really don’t get why you either choose not to understand or can’t understand what I’m saying here - it’s got nothing to with “they don’t want to be around certain people because they don’t share the same experience”. It’s got everything to do with what folks want out of a support group. Doesn’t mean they think you and all the other T2s have cooties or something and don’t want to be “around” you. Seriously - can you help me at all with the only 2 things I want out of a diabetes meetup group - how to determine basal needs before, during and after aerobic and anaerobic exercise and which foods and at what times of day the superbolus can help me?
I don’t want to be mean, but I kind of want this thread closed already… It’s disheartening, and some people get rude, and mean… and I think maybe the whole point was that maybe those people who didn’t want her in the group were probably just not very polite (maybe they were jaded by other people in the past) about stating why they didn’t think it was ok to have type 2’s in their group, and perhaps they were just outright rude and inappropriate about it… Fine, we get it… Type 1’s have different needs than Type 2’s. MOVE ON already. We can’t pick and choose the illness we get, and what type we get… So just let’s support each other, and not be complete jerks about it… We are all in the same boat, with a different paddle. Enough. Please, please, please… CLOSE this thread.
“Whatever the diabetes type, it’s serious and complicated and life-changing and life-threatening.”
Kudos Kelly:) You are so young and yet so wise. We could all learn a lot from you!
Very well said, Lois. You go girl:)
I agree with your thoughts Christalyn. I have read through many of the posts here and am amazed by all of the responses. I think there needs to be more education out there, specific to the types (I am type 1 and was put in a class focussing on type 2s, not a bad thing, but to someone new to D with little other information, it was confusing and kind of frustrating). The media doesn’t help things, but since when do they ever really? My question is who is funding all of the ads on tv anyways?
And there definitely should be something done about the insurance issues. Why should we all have to pay so much for things that we require to live? I’m not saying they should be free, but there should be more help for it. Both types require medication to live. Not all T2’s take insulin, but not all T1’s are on a pump either. Should there not be a middle ground for things like test strips? And as for the diabetic friendly foods? It would be nice to see more than sugar free candy and splenda on the shelves…
So what can we do about it? My brother is in a school in FL that specializes in game design and film art, I am asking him if he’s got friends in film school or at least ideas on who to contact about small projects we can get out into the public or at least online. Any thoughts for an actual organized something to pass on to congress?
The debate between T1 and T2 to me seems small. I have diabetes. Not the bad kind, not the worse kind, not a kind that I inflicted on myself, nor any other stereotypical view of it. I have diabetes. It has changed my life, my view on the world, and anyone who knows me knows how I live. I don’t hold anything against anyone if I can at all avoid it. We are all beautiful. It just takes someone willing to see it.
Hugs everyone
I’m T1. I think my mental makeup is different from a T2 in some ways. I suffer from an autoimmune disease brought on suddenly that turned my life upside down in a matter of months. I led a healthy lifestyle for 46 years- always exercising and eating right. Now, if I stop taking insulin I will be dead in a matter of weeks. From day 1 after dx, if I miscalculate a dose, I risk a life-threatening low.
I had absolutely no choice, no input, no recourse whatsoever before being thrust into this world. Given an option that said diet and exercise would slow or stop my disease, I would leap for joy and scream at the top of my lungs. I would burst with happiness.
We live in a media-driven world. Every day I hear about the diabetes epidemic. The American diet and lifestyle that leads us to heart disease. And I am by default lumped into the diabetes group. The american public has some general understanding of T2. They really, really are clueless about T1. And I’m tired of being considered the same.
From a science and medicine standpoint, we have two different diseases. Yes, they both can end up with the same results. But the origin, the base cause, is very, very different. I wish they had two different names.
No offense but the things people keep saying in here get to me… because you assume that we, as Type 2’s just have it easy… Well I have news for you… My father dieted and exercised, every day, and he still died an excruciating slow, and horrible death because he had Type 2 Diabetes… For many T2’s, diet and exercise does not stop, and does not slow down Diabetes. His kidneys failed, he could not walk anymore for the rest of his life, and he went blind… He was constantly in the hospital with DKA, or some other complication… And he died in the OR while awaiting having a food amputated… I am sick and tired of T1’s acting like our lives are just going to be peachy keen from now on, because all we have to do is diet and exercise… When time is likely to take us away, too, much sooner than the rest of the population. We just want some understanding, and support… Like everyone else with diabetes. Please, please… Just close this thread already… I can’t handle the ignorance, and drama of it, anymore.
In type one support groups that I’ve been to in the past a lot of what was talked about was really more type one oriented - talks of cures, treatment plans, dealing with the disease on a day to day basis, growing up with it, etc. While there are some similarities regarding the emotional stuff that goes along with dealing with either type, a large chunk of the topics brought up in the groups is going to be different and not really relevant to a type two. For example, a cure for type two diabetes is likely going to be different then a cure for type one diabetes. Stuff like that.
However, I don’t think that it is cool for a group to be rude to a type two looking to join. You would think that they would have politely explained why they didn’t want the original poster in the group or at least suggested an alternative. Sounds like the original poster just encountered a bunch of grumpy diabetics. It probably would have been a depressing group anyhow! :-p
(Oh, and I’m going to add one to your list – planning for pregnancy. At some point the hubby and I are likely going to want to start a family and type one is really going to make that process hard. Most type twos don’t have to deal with that).
I can truly understand your frustration, but I think Jen came very close. Diabetes is Diabetes, whether you are type 1 or type 2. How you have to take care of your particular type could be different. I am type 1. If someone would ask me about insulin I could tell them my experience, but if a type 2 asked me about metaformin, I would have no idea how to respond. I don’t know and I will be a terrible person to ask. I believe that all diabetics should get along but sometimes you need to talk with your particular type. It’s like cancer (as an example only), can someone talk specifics with 2 different types of cancer and their treatment. Probably not, but it does not mean one is more important than the other. Just my thoughts. Hopefully this does not come off as being rude, all I can say is that I can talk about diabetes but I can’t talk about specific treatments that are beyond my knowledge. And I agree, some people seem to be on their soap box spouting drival…
By the way, I like that you speak your mind. A lot of people need to hear it.