This isn’t directly T1 related, except insofar as everything is T1 related, but it’s driving me a little nuts–a little scary in fact–and I haven’t gotten much in the way of useful explanation from my PCP or specialists yet.
I’m really struggling with a bizarre, self-contradictory problem with my BP. In general I’m hypertensive. Been controlling that for decades with Losartan and exercise. Recently I went in for a nurse practitioner appointment for something unrelated to any of the above, and the routine BP they took was 160 over 80. Caramba. So my PCP called me in for a second appt to discuss wtf is up with my BP all of a sudden. At the same time, though, I’m having all this trouble with low BP. Going faint from standing up, bending over, but most weirdly of all from exercising in the warm weather. One outcome from my recent Dr appt was to finally get myself a home BP monitor (Omron). I’ve asked about this fainting stuff, saw a cardiologist, did a stress test, nothing turned up. “You’ve got high BP not low BP, so we don’t really get it.” But now that I’m able to test what it’s actually doing I’m seeing it drop, like a lot, at these times.
Most frustrating is that I’m trying to get aerobic exercise in and it’s really interfering with that. I was so looking forward to doing a long bike ride today, but almost as soon as I got out there I could feel the symptoms I’ve been having. Low muscle energy, feeling faint, and weirdest of all an ache across the back of my neck and upper shoulders. Feels a bit like hypoglycemia in fact, though BG was good, 110-120. I pushed on through my regular route but when I came to the point where I’d intended to go out on the longer ride I decided I just couldn’t do it. REALLY FRUSTRATING. Got back home and yeah, my BP was 93 over 63.
I’ve read some stuff about how this thing can happen in aerobic exercise where the big muscles in your legs are actually taking over some of the work of your heart, pumping blood around, and so when you stop you can feel faint. So that’s maybe part of it except the phenomenon seems contingent on heat, or maybe even more specifically bright sunlight (how weird is that) because I’ve had it happen when it was really sunny but mild temps–like today, upper 70s–and without involving much exercise (walking up an outdoor stairway), and NOT had it happen when it was relatively the same temp but cloudy out. It’s also NOT dehydration–I’ve had lots of water today before and during the ride, so I’m pretty sure that’s just not it.
Anyway, it’s driving me nuts–I’m SO frustrated about the ride I was planning to day and just not being able to do it. This is a critical part of keeping my BG in regulation and it’s deeply disturbing not to be able to do it. Has anyone else enountered this?