Hi Everyone! I just wanted to share with you a little about our story and how we FINALLY overcame that dreaded Dexcom rash!!
Our son Leighton was diagnosed as a T1D last January at the ripe old age of 9 months. AWFUL. It was, by far the scariest experience of our lives, and we are thankful that after going into DKA with a BG of 404, the local children’s hospital (A.I. duPont) was able to bring our precious son “back to life.” Anyway, Leighton has since been on the Animas Ping pump (changed every other day) and the Dexcom G4 system which has been bittersweet for our family. While it is nice to have a general idea of his BG at all times with the CGM, it has also caused a lot of heartache for my husband and I, mostly because of the HORRENDOUS RED, BLOODY RASH IT HAS CAUSED ON OUR SON’S PERFECT, NEW SKIN. The adhesive from the Dexcom was causing our son such pain and skin irritation that he would even scratch it in his sleep and it would often times bleed and cause him to cry. It was absolutely heartbreaking for us and we looked to our endocrine team for any sort of answer…with no luck, at first. After coming online and reading what other parents had written about their experiences with Dexcom, my husband and I decided that we should ask the team to back our decision to try a “combo therapy” based on what we had seen work for different families of CGM patients. Well, I am proud to say that FINALLY, we have found the “holy grail” of CGM rash prevention (at least for now and for our son’s young, super-sensitive skin) and we could not be happier!! Please forgive the rhetoric and excessive use of capitalization in this post, but I am assuming that all of you have experienced the frustration and heart-wrenching pain associated with watching someone you love (or yourself) deal with the pain of this incessant rash. Below is the step by step technique my husband and I use to ensure that our son does not get that dreaded rash, and I am hopeful and prayerful that this technique can help at least one of you (if not all) in your quest to conquer this rash!
-Bathe him and DO NOT USE ANY LOTIONS OR OILS ANYWHERE NEAR THE AREA WHERE WE ARE GOING TO INSERT THE CGM.
-Soak a large cotton ball in isopropyl alcohol and thoroughly clean the area (even outside the area where the patch will adhere…I mean we pretty much wipe the alcohol all over the entire side of his body where the patch will go, just to make sure there are no oils/impurities which might hinder the adhesion)
-Let the alcohol air dry (you will see there are no more “shiny spots” on the skin once it dries.)
-After this, we apply several sprays from a corticosteroid inhaler (yes, an inhaler…it helps to create an additional barrier over the skin prior to insertion and has been the most important addition we have found to help prevent the rash)all over the area and make sure it is completely covered where we will be placing the patch. The type inhaler we use is called Qvar 40mcg (beclomethasone dipropionate HFA, 40mcg) and that is just one of the brands available at the pharmacy when your doctor prescribes a corticosteroid inhaler for you to use. The brand hasn’t seemed to matter, however, so don’t worry too much about that. The key for us was that we had to get this prescription from our pediatrician rather than the endocrinologist because they are not authorized (at least not in Delaware) to write Rx’s for medicine that is not historically known as a “diabetes medication”, so we had to get an Rx from our primary care physician…not a problem, just had to ask.
-We wait about 1 minute, then apply a Duo Derm patch that has been pre-cut with a small circle the size of the Dexcom insertion point to make sure the CGM enters the skin properly. The best way we have found to do this and ensure a complete barrier against the Dexcom adhesive touching the skin is to take the Duo Derm out of the packaging, and place the Dexcom sensor over it, making sure to place it diagonally right across the middle of the patch, the only way the whole thing will fit. I then take 2 fine-point black sharpie markers to trace a circle on the patch,(one to hold in place on the patch, the other to trace around the end of the marker to make the correct size circle) right where the Dexcom will enter the skin and then fold the patch in half and cut the circle out carefully.
-We then apply about 2 more “sprays” of the inhaler directly over the hole where the open skin is exposed and allow that to dry for about 30 seconds.
-We remove the white paper from the Dexcom sensor adhesive and place the circle (where the sensor goes into the skin) DIRECTLY over the hole that I cut. We have not attempted insertion through the patch, and have found that as long as we use that extra spray or 2 of inhaler, there seems to be little to no irritation in that small circular spot…without that extra spray from the inhaler, however, we did still see some irritation, so make sure you do not miss this step!
-I insert the sensor, place the transmitter (little gray piece that clips in) on top and remove that small, plastic piece. We then apply IV Prep wipes all around the top, white area where the adhesive from the Dexcom is, so that when we apply the clear Tegaderm patches, they will stick for quite awhile.
-As aforementioned, we use Tegaderm patches on the top to ensure that the Dexcom stays in place for as long as possible (longest we have gotten from one sensor is a week) and I pre-cut those, as well, so that they are surrounding the Dexcom, but not covering any part of the transmitter (grey part). I fold 2 of the Tegaderm patches in half, and cut a half-rectangle shape in each and place one vertically around the Dexcom, the other horizontally. This may seem like overkill to some, but it really does wonders to keep that sensor in place through bathing every night and general toddler activity.
That’s it! Haha…I realize it might seem like a lot of work, and it kind of is at first, but it is MORE THAN WORTH IT when you take that patch off after a week of wear and there is no crazy, itchy, bloody red spot for them to scratch and cry about. This system has been a God send for my husband and I and there is nothing better than the feeling of accomplishment you get when you take it off and their skin is hardly irritated, if at all.