Diabetes and hypothyroidism - questions?

Now that I've been a member for a few days, I think it is about time to try the blog-function here ;-) I'm a bit lazy, though, so the post here is a copy-paste version of the one I've posted on my blog, but I figure that maybe a few more people would step by in here :-)

I need some information the interaction between these two ailments, and what better forums to turn to than the DOC and TuDiabetes? ;-) I know you guys and gals have a lot of experience to share, so I will give you some background to support my specific questions.

When I moved to Odense more than 6 years ago, I needed another D-team. I had arranged with my former team that they would send my chart to the university hospital in Odense, but here they wanted to start their own chart, only keeping the chart from my former D-team as background reference. Therefore, I received a chart for blood sampling, and I have never before or after seen that many marks for analyses to be performed! It required 9 tubes of blood, almost leaving my arm drained ;-)

When I saw my new doctor at the hospital for the first time, I was informed about the results. Most of them were normal, but among those requiring attention was my TSH-level. It was marginally increased, 6.3 or something like that I believe – the normal range being 0.5-5.0 mU/L. The doc felt my thyroid gland being somewhat enlarged and referred me to an ultrasonic examination and a pin needle biopsy. The ultrasonic examination showed that my thyroid was indeed a bit enlarged, but the biopsy didn’t show any malignancy.

My D-doc (endo) has kept requesting thyroid analyses with most of my blood draws ever since, but otherwise there hasn’t been any follow-up on this. I have rarely seen the results of the analyses, but a couple of times within the past 2 years or so my doc has asked about my dose of Eltroxin (I believe it is called Syntroid in the States) – as if he shouldn’t be one of the first to know if I received any such treatment!

A months and a half ago I had my last appointment with my endo. When he showed me the paper with the most recent lab-result – for me to view my A1c – I noticed that the TSH-level was still off, having been as high as 9.37 in November last year. I was a bit shocked about this, but was told that treatment wasn’t initiated until the level was above 10 (so has my TSH been at this level the times he asked me about my dose of Eltroxin in the past?). He continued asking about my asthma, something that he has never done before, and I could tell him that I have had more problems during this spring when playing soccer. Still, he seemed to conclude that no immediate action needed to be taken, and just set me up for another appointment in 3 months (usually I go 6 months between appointments).

Ever since the realisation that my TSH-level apparently still isn’t normal, thoughts about the consequences of this have filled the back of my mind. I have searched the Internet about it, actually finding a site stating that with hypothyroidism diabetes could be hard to manage, but no case studies of the effect(s) of hypothyroidism on BG-management. I have found my old pathophysiology book, re-reading the section on hypothyroidism, and found some interesting information that put some things into perspective for me.

I’ve been diabetic for 17+ years, and the first 5-7 years were not much of a struggle. In contrast, the past 8 years or so have been very challenging BG-wise. I don’t know if my former D-team ever screened for other autoimmune disorders, but at least they didn’t tell me about it. With the initial result of my TSH-level 6 years ago, I cannot help but wonder if some of the problems I’ve had with maintaining a stabile BG, and not least avoid serious hypoglycaemic episodes, could somehow be related to the fact that an autoimmune attack has been taking place in my thyroid during the years as well. With swinging TSH-levels the levels of the important thyroid hormones have likely lingered around on the low side for the same amount of time as well, and since thyroid hormones among other actions increase the rate of carbohydrate absorption from the gut that may explain why it has sometimes taken “forever” to correct a low BG. As a side note, I can tell you that I have had a synacthen test performed to evaluate the functionality of my adrenals because for some time years ago, I had a lot of severe hypos, requiring a lot of ER visits as well as paramedics attending me in my apartment, at Jimmi’s place, at work – you name, it probably happened. The synacthen test came back perfectly normal, though.

What annoys me, though, is the fact that without saying – and not least doing – anything, I have apparently been “diagnosed” with “myxoedema without specification” and “autoimmune thyroiditis” years ago! Leafing through all my medical documents, ER- and paramedics notes, I found a piece of paper that I cannot really remember the context of, but the information in it seems clear (the diagnoses listed above). Looking at the date of this paper, I infer that it is from around the time where I switched from Insulatard (NPH) to Lantus, although I cannot really see, what the information about thyroiditis and the like has to do with this switch.

I have an appointment with my D-nurse again tomorrow, and I intend to bring the above-mentioned piece of paper, and ask her about it. She arranged for me to have another blood draw, so that she could discus the newest thyroid results with a doctor prior to our appointment. Although, I don’t like the idea of having to add yet another chronic illness to my chart, I don’t like the though of anything going untreated with the potential of causing additional problems either. I am not sure if any or which of the BG issues that I’ve experienced within the past 8 years have anything to do with a possibly wacky metabolism, because I haven’t found any specific cause-effect descriptions of the effect of untreated, low-grade, hypothyroidism on diabetes, but I would be surprised if there isn’t a DOC-blogger or two out there who has experienced this on their own body. So if any of you have been diagnosed with hypothyroidism – after being diagnosed with D – and can remember any D-related symptoms that subsided once the hypothyroidism was treated, I would like hear from you.

I am tired of having to act as my own doctor, but apparently it is necessary, so the more facts I can collect the better my argumentation for and questioning about lab-results and/or treatment will be. After all, I cannot write the prescription myself, I need a licensed doc to do that :-)

My husband, who is T2 was dx’d with hypothyroidism about 10 years ago (pre D). I can’t be much help about how the hypothyroid affects BG, but I can tell you that getting a diagnosis of hypothyroidism was not easy. His doctor had labelled him a hypochondriac for his constant complaints of general sluggishness and malaise.

Eventually his hypothyroidism was diagnosed when he got tested to be a kidney donor for his mom, who died from T1 complications.

I hope you get it sorted out. Getting treatment for his thyroid helped my husband enormously!

I was diagnosed hypothyroid about 13 years after I got type 1 diabetes. Once thyroid levels are corrected with synthroid (or another medication), it shouldn’t affect diabetes management. Whenever I adjust my synthroid dose I do have to do a bit of tweaking with my insulin doses, but I haven’t noticed any big changes. Compared to diabetes, hypothyroidism seems like it isn’t a big deal.

There’s a thread somewhere in the forums thyroid and diabetes if you want to look for it.

Yes, check the Forums - we started a discussion on hyothyroidism and got several inputs.
I have had db for 33 years and hypt for about 6. There was no difference in the db after I began taking synthroid.
The main symptom I had was loss of hair, which improved after I started treatment. I also had some myxedema i my lower legs, which disappeared.
Because most endos also have thyroid patients, I have found that they take a pretty good interest in hypt.
But, what confuses me is that the "normal " TSH range is very big, and sometimes I’m at the top of it and then the next time at the bottom. But, I guess it’s insignifcant.