Diagnosed at age 64

When it comes to diagnosis age is not the matter, remember you are not alone here

According to the Scottish Diabetes Survey 2015 (official figures compiled by NHS Scotland), the oldest person diagnosed with Type 1 was 93 years old!

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I was diagnosed at age 62 (approaching 3 years ago). You are definitely not alone! In my case, muscle mass was gone, weighed 100#, etc. I figured out that things had been happening for at least 4 years before diagnosis…symptoms I didn’t understand, and now do. To my knowledge, the only thing that is known is there is a genetic element. And yes, read Melitta’s research; she has done really good work on this.

Thanks for advice . Have only been on insulin since late March , but feel so much better . Also , I too was dropping weight quickly . I am trying to match my novolog dosage to carbs as precisely as possible and just when I think I have it down to near perfect science , I have a high bs reading . Please tell me it will get easier to get a handle on all the variables !!

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It will get easier! Some people liken the initially steep diabetes learning curve to drinking water from a fire hose. :wink: If you choose the right attitude, the learning will never stop. As author Chuck Eichten says, ā€œLife with diabetes can’t be perfect, make it better!ā€

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I was misdiagnosed as T2 in my mid-40’s. Yes - it’s terrifying and overwhelming at first, but you’ve come to the right place. You will get a handle on it and the silver lining for me, as for many others on here, is that it put me in such tune with my metabolism that I’m now the healthiest I’ve ever been in my life, except for the non-functioning beta-cells, of course.

They just did a fasting bg as well as thyroid and cholesterol. In hindsight, I should have insisted on a comprehensive AIC.

Diagnosed two years ago at 55. No history of diabetes in my family at all. I suggest not trying a continuous glucose monitor until you are out of the honeymoon stage. Read Dr Bernstein’s book the The Diabetes Solution. Pretty extreme but very helpful.

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Hi there,
I was diagnosed at age 55. Luckily, Type 1 was the diagnosis, not Type 2, so I didn’t mess around with the wrong approach. Hang in there, you get better at it and having folks to learn from on forums is the best! For me, eating low carb makes things way easier…

Hello,
I was diagnosed 4 years ago at age 51, like another of the posters, they thought it must be Type 2 due to my age, (although I’m very thin), and put me on Metformin. The Metformin had no effect and after about 10 days, they did the GADS antibody test and I was diagnosed officially as Type 1. Started on insulin immediately, and it’s been a huge learning experience, but don’t worry, you will get more and more confident as time passes. Four years in, I’m on a pump, and have a CGM, and have very good control, A1C varies from 6.1 to 6.3-ish. Good luck, you can do this!

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I was diagnosed at 58. I was originally diagnosed with type 2 and even though I kept asking if I was type 1, because I had had an uncle that was type 1, they ignored me. It wasn’t until I got a new endo that the first thing she did was test me for type 1. But medications for type 2 had made me sick and I was already on insulin for a few years,

To me it is much easier being diagnosed later in life than as a juvenile, I can’t even imagine what parents go through in trying to deal with their kids insulin amounts. But I can judge how I feel with lows and highs and making adjustments and knowing how often I need to test to control some of the days fluctuations. As an adult I can make adjustments instead of a parent trying control a childs levels…

I actually feel blessed that I got it later in life than as a child!!! So much is easier now and life spans are so much better! I take a long acting daily and sometimes have to adjust the amount. I have different amounts for a work day and an at home day. I carb count when I can. That can be a guessing game of how much to take, especially if it is an already prepared food that can wildly differ on the amount of carbs. So sometimes I have to take more insulin or sometimes eat more. Just learn to test often, it gives you a handle on what adjustments you need to make, That really is the key to better handling your sugar levels.

I was diagnosed Type 2 at 47. I struggled for 10 years feeling like a total failure until I was seen by an endo and promptly tested and diagnosed as Type 1. So many clues were ignored by both myself and my internist. I’m doing fine now but it was a long, rough road to the right diagnosis. Welcome to the community.

Thank you for advice . I find it a challenge sometimes to match the insulin dose to carbs , but I am getting better at it for sure . I can’t imagine how difficult it would be to deal with this as a child . Counting my blessings .

Thank you for the welcome . It seems so many are in the same boat . I often wonder what our common denominator is as type ones !

I was 63 years old when they diagnosed me as a Type 1. It was soon apparent that the Type 2 meds just made me sick, so I was soon on insulin. For a while they just said I was "insulin dependent. In time the words Type1 began to show up.

Keep having rare and sporadic visits here…not sure why. But, how are you doing now?

I was diagnosed at 28 as type 2 and started on Insulin and later after 6 to 8 months My doc said it is Type 1…

true that david 49 . was dx at 6.6 ac1 with blood work for surgery . it’s a numbers game this # this med .
spoke with dr. about 5 minutes since. was givin 3 med’s to take stopped satin though . thought it was killing body . don’t think dx was wrong family history . bummed about this exersiced a lot but diet could have been a lot better. ate like a teenager wonder if I ate better if I could of avoided this who knows?

The trick to remember is a carb is a carb is a carb!