This Saturday, I have the opportunity to bring the patient perspective to a panel at SXSW in Austin, titled "Why HIPAA Won't Save You: Protecting Data Privacy": http://schedule.sxsw.com/2015/events/event_IAP41752
I will be joined by a Health Economist, a person from Industry, and having a long-time Health Care Communications expert as the moderator.
Here's the session description, to give you a sense of the direction the panel is shooting for:
Every day, people are collecting, sharing and leveraging health information -- sometimes without even realizing it. From fitness tracking tools to info shared through social to online search and purchases made online, a wealth of health-related data is being generated about each of us that, if used wisely, could improve health outcomes. But while much has been said about the opportunities, few people give much thought to the digital footprint they leave behind -- a footprint that includes data and information not necessarily protected under existing regulatory guidance (HIPAA). By bringing together key stakeholders who can talk to the needs of patients, manufacturers and entrepreneurs, we aim to tackle both the promise -- and the risks -- of maximizing the wealth of health information generated online.
I would love to incorporate your thoughts about HIPPA and how you feel it protects you or falls short of doing so.