I was diagnosed with type 1 35 years ago. About two years ago I started noticing my bg going up about two hours after I ate a meal. Kept mentioning it to endo but it seemed like he never heard me. I now have a new endo! I have lost 20 pounds since my last visit with him 4 months ago. He is concerned about the weight loss and after doing blood work and it all being normal wants me to see GI. I have an appointment in a few days. I do not have much of an appetite. If I drink something my stomach doesn’t seem to bother me unless it is juice. When I eat it doesn’t take long to feel full, and then I get nauseous. I take zofran for the nausea. My stomach feels so bloated and I belch a lot. A lot of gas also. Just wondering if this is what those that have been diagnosed with gastroparesis experience? Thanks
It does sound familiar to me. I would not go so far as to confirm a diagnosis, but these symptoms are consistent with my experience.
Are you having any other issues or complications? Gastroparesis is normally a result of autonomic neuropathy. If you are not sure I would ask to have all of these potential problems looked into. I would definitely be seeing my optometrist (in my case a retina specialist) to make sure I didn’t have anything beginning there.
I have been diagnosed with neuropathy about seven months ago. Saw optometrist a few months ago and besides cataracts no problems.
That is good news about your eyes. I was blessed with the full complement of peripheral neuropathy, autonomic neuropathy and retinopathy. I thought about changing my last name to O’Pathy.
They were all pretty well advanced when I was diagnosed. With good medical attention and tight control I have substantially reversed all of this. That would be my best advice for you. This also has helped to alleviate a good portion of my problem with gastroparesis. Like everything else though, it is better but not gone. Just stay on top of it the best you can.
I have had type 1 for 35 years too. I struggled with trying to determine if I had gastroparesis for several years. Had severe nausea, feeling full without eating very much, etc. Had every test imaginable. Gastroenterologist finally said it was in my head.
Went to a new primary care who said it sounded like a gluten intolerance/allergy. She said just to try no gluten for a couple of weeks. Turns out that is what it was. It took about a month to feel better, but I am amazed by the difference.
Going gluten free is hard, but I don’t understand why no other doctor over the last few years ever thought about it. All the money on tests, all the frustration of doctors not listening/understanding, and changing my diet fixed it. Amazing.
I’ve been T1D for 33 years and received a gastroparesis (GP) diagnosis in year 28. My primary symptoms have been diarrhea and feeling bloated after eating. I have not noticed, to any significant extent, any changes or delays to my post-meal blood glucose traces. I use a CGM.
When I received my GP diagnosis back in 2012 I made radical changes in my diabetes routine. I knew that keeping my glucose levels in a better range was the only thing I could do to enhance my odds of keeping GP from progressing. I started eating lower carb at less than 100 grams per day. I began walking two to five miles every day. Uploading my CGM data to a website for analysis became something I did several times per week.
My BG control markedly improved. My time in range moved up to 80%-90%. My basal rates dropped and so did my meal insulin doses. I ended up reducing my total daily dose of insulin to half my former usage. I felt better, too.
While my GP symptoms did improve marginally, they did not get any worse. It’s been five years now since my GP diagnosis. I think my better control of BGs is responsible for that. I’m lucky to not feel the more extreme GP symptoms and my heart goes out to those who must live with more severe symptoms of this diabetes complication.
It’s never too late to reach for better glucose control. It will give you the best chance for better health. It’s one of the few things within our grasp to reasonably respond to diabetes complications. I wish you the best.
I was diagnosed in 2000 with the primary system being severe nausea. With tight BG control things did get better after several years. I still have good and bad days, but the good days out number the bad.
The things that helped me for nausea are:
Chewing peppermint gum
Peppermint Candy (with peppermint oil)
MIRTAZAPINE taken daily at night.
Domperidone - not sure it helps, but I take it.
Hey honey. My situation is very similar. Gastroparisis has definitely been kicking my ■■■!! I have lost about 25lbs in about a month or two. I get sick every day. I know the struggles darling!! I am struggling with this a lot over the past week. Went to the hospital because I couldn’t keep anything down and the abdominal pain and they literally couldn’t do much for me. They gave me zofran & reglan and sent me home… And sadly zofran doesn’t work well for me but I do have these suppositories (that i wasn’t too fond of initially), but they work best besides medical marijuana. If you ever need to talk or just vent you are more than welcome to message me!
Kristen Marie:purple_heart:
I have neuropathy also. I developed this after only 2 years of having type 1 diabetes. It is a true struggle everyday! What do you do to survive?