We’ve had 11 years of visits. Caleb started at the Yale Diabetes Center. It was a great place at the beginning when we needed our hands held. The 75 minute drive became hard to justify when our meetings became more the clinic wanting to hear how we were able to make OmniPod work for someone so little and less about helping us since we were pretty much on autopilot. At that time, there weren’t many (any at Yale) young kids on OmniPod.
We got a great CDE (previously from Yale) right in our city. That was perfect. We were there for several years, but meetings were lengthy and little more (who am I kidding, nothing more) than a collection of Caleb’s data which I was interviewed for despite the fact I came prepared with it printed out in an orderly fashion with comparative data and analysis. We didn’t go back after she answered her cell phone during our meeting stating, “it was a client.”
My children’s GP is also an endocrinologist. Leading up to the cell phone incident mentioned above, I found Caleb’s annual check ups more useful for his diabetes care than his specialist visits with the CDE. His doctor was interested and provided insight we weren’t otherwise getting. I decided we would use him as Caleb’s endo henceforth.
This doctor has helped us through litigation with Caleb’s school district and provided guidance as Caleb has become more autonomous with his care and given good suggestions as we prepared for Caleb’s solo trip to Europe. For the last several years there has always been something out of the ordinary to ask the endo. I tend to drag out the frequency of Caleb’s visits to as few as twice per year and one of them is combined with his annual visit, so there has always been something “extra” to talk about.
Until yesterday. It had been six months since Caleb’s last visit (just prior to going to Europe) and I figured we really should check in. But I didn’t have anything to discuss. We were there for an hour - nurse updated his records and vitals (he grew two inches in six months), updated prescriptions, he had a blood draw, dr looked at dexcom, Caleb discussed current trends, no recommendations made. I asked about new insulins but he had no insight. There was nothing pressing or unusual to address. Doc suggested seeing a dietician. When I asked why, he said just to see what they have to say. I guess that couldn’t hurt, but I don’t really understand how it can help. Caleb’s A1c is great, and he eats well.
It seemed like such a waste of time.
What do you get out of your endo visits? Maybe I can get a refreshed perspective on how they can benefit Caleb rather than feeling like I’m just checking in with his drug dealer.