I have been Type 1 for nearly 12 years now and no one in my family (let me clarify: my parents/step parents and siblings/step siblings) has ever made any real attempt to understand the disease. My husband is AMAZING (he lost his step father, a Type 1, to kidney failure years ago, so he is very well-acquainted with Diabetes) - he educates himself right along beside me, goes out of his way to find new/better ways of management, and stood up to my (previous) GP when I was refused a referral to LMC.
I was diagnosed at the age of 17 and was left alone to navigate through the web of information presented to me. I lost contact with all parts of my family shortly after the diagnosis (during that time, I DKA'd, which included a mild heart attack, coma and brain injury, at the age of 19). However, I was fortunate enough to pull through without too much permanent damage - though my brain injury will never fully recover.
About 5 years ago, I reconnected with my mom and her side of the family. I was hoping things would change, I was hoping there would be more interest in my diabetes or an increase in knowledge, but still none of them seem remotely interested - I really thought this would change when I became pregnant with my (now nearly 2 year old) son. But sadly, they all act like it is all in my head - for example, when I am not feeling well or my blood sugars have given me a rough go, they simply tell me to "fix it and get over it" as if there is some magic button I can push...recently, I came under a lot of pressure (stress is a terrible trigger for me) and asked my family to give me some space, because I was worried the stress was going to cause my kidneys to become inflammed (as they do when my blood sugars run high) and, even after my husband asked them to back off, two members of my family continued to call/email, saying very upsetting things...
I guess my question for you all is, how does one help people to understand Diabetes if they have no interest? How do I continue to build this relationship with people who refuse to acknowledge my health issues?
I apologize if this is not the appropriate forum for such a discussion; I am a new member to the site and was eager for some opinions.
Cheers so much,