I almost died Saturday night

This article basically says it all:

“Somebody’s got to do something”

By 2004 Claresa Levetan had pretty well had enough: Enough treating and testing and researching. It was time to just cure diabetes already.

“Diabetes has been my life’s work and yet I don’t personally think we have made that many advances. All the treatments are sort of like a Band-Aid. We are not addressing the fundamental problem,” Levetan said. “Somebody’s got to do something.”

The issue is something called pancreatic islets. When the islets are off, as in diabetes, the body stutters in its ability to produce insulin and thus process sugars.

Fix the islets, cure diabetes. That’s the premise behind Levetan’s CureDM, a Philadelphia-based biopharmaceutical company dedicated to developing an eventual cure for a disease that afflicts millions.

Dr. Irl Hirsch, editor in chief of the journal of the American Diabetes Association, Clinical Diabetes, writes of Levetan: “She is perhaps the most creative physician that I have ever met. Her ideas for developing interesting articles, translating new information to others, and getting physicians, patients and their families involved with diabetes to obtain better outcomes are truly inspired.”

Levetan has had a long career as a researcher, serving as clinical professor and director of islet regeneration research at Lankenau Institute for Medical Research; as an associate editor of the journals Clinical Diabetes and Diabetes Forecast, and winning the American College of Endocrinology’s highest distinction in clinical endocrinology award in 2007.

With all these distinctions, why launch a private enterprise? Short answer: Money.

“It is very, very painful to get any [National Institutes of Health] funding. There are years and years of delays,” she said. On the private side, on the other hand, she has been able to leverage her own substantial personal investment to draw $5 million in angel financing.

As might any new entrepreneur, Levetan has taken a media-savvy approach to her work. Search for “meet the diabetes boss” on YouTube and you’ll hear the doctor interviewing a young patient about his experiences with diabetes.

All her professional efforts have been directed toward helping that boy and others like him.

“Growing up, a very close friend of my mom’s had diabetes,” she said. “I saw this vibrant woman going blind, losing her kidneys, going through amputations and finally dying. I have to feel that experience had some impact on me.”

It’s not enough just to see people merely coping with diabetes. She wants this thing over. “It is my dream you would get three or four shots, take my therapy for three months and then be off everything for the rest of your life,” she said. “It may be a little optimistic, but that is my dream.”

She has no illusions. “Life is tough, the business world is tough, it’s tough being a patient, tough being a doctor,” she said. And yet, she says, “I’ve gotten to live my dream, and I couldn’t be happier.”

Read more: “Somebody’s got to do something” | Philadelphia Business Journal

Very sorry this happened to you Gary. I’ve been living with Type 1 for 47 years and I have experienced hundreds of severe lows, severe meaning I needed help to recover. My husband has become very adept in bringing me out of all those severe episodes. The best thing a doctor ever told me was…“You have to want to get under control.” He couldn’t help me, family couldn’t help me, friends couldn’t help me, I had to help, and do it myself.

I hope that you realize this…Alcohol can cause hypoglycemia shortly after drinking and for 8-12 hours after drinking. So, if you want to drink alcohol, check your blood glucose before you drink and eat either before or while you drink. You should also check your blood glucose before you go to bed to make sure it is at a safe level – between 100 and 140 mg/dL. If your blood glucose is low, eat something to raise it.

The symptoms of too much alcohol and hypoglycemia can be similar — sleepiness, dizziness, and disorientation. You do not want anyone to confuse hypoglycemia for drunkenness, because they might not give you the proper assistance and treatment. The best way to get the help you need if you are hypoglycemic is to always wear an I.D. that states “I have diabetes.”

Another problem with alcohol can be that it may lessen your resolve to stay on track with healthy eating. Contemplate this situation. You sit at a restaurant and sip a glass of wine while you peruse the menu. As you slowly relax your tastebuds might be more easily tempted to overindulge.

It’s easy to blame everything on diabetes, but it’s YOU that has to deal daily with it for the rest of your life. It’s up to you in how YOU want to control your diabetes.

I have been pumping for 1 1/2 years and since I began pumping insulin I haven’t experienced one severe hypo AND my awareness has returned. So, needless to say I recommend going on an insulin pump.

All the best to you.

Even those of us that keep great blood sugar levels from day to day are very close to death. Missing one meal or injecting too much or the wrong kind of insulin can be deadly. I think each and every one of us here are close to death every day even if we appear healthy. It’s a miracle you are alive. It’s a miracle that any of us are alive.



I had the paramedics help me in my low blood sugar sleep one time. I made a point of thanking them for saving my life.



I’m grateful you pulled through! Don’t give up! Life gets boring without a good fight to keep you going.

I know how you feel. Besides living over 50 years with D my first encounter with a danger low was in 1997. I had never passed out before 1997 and like you my hubby said the paremedics could get a bs reading. Also like you I was alone in another room and knocked over a phone which sent my hubby running by the time he got to me I was convulsing. I can only imagine how scared he was from what he told me later.

Having an extreme does leave you with a strange feeling for days. It took me days before I felt normal no matter what my bs was. After that initial extreme low I had a coupld more the next year and told my Endo who sent me to a CDE which changed my whole life. CDE taught me things I never knew in all the years of living with D. He also trained me on the pump and I have pumping since and have had no extreme lows.

I went through the same thing a few months back. So strange to wake up in the dead of the night with literally 7 firemen and e.m.t’s all standing at the foot of your bed…and you’re thinking to yourself…“What the heck are these men doing in my room”? That part was kind of funny. It seems when I start to check my blood and do things by the book, I run extremely low. I’ll get low in the middle of the night…and if I lower my insulin at night time…even by a little, I’ll end up waking up in the 300’s or higher. Very frustrating. Like you, this was my first ever low that had me unconscious (severe). I used to be able to wake myself up whenever I felt myself going low…doesn’t seem to be that way anymore. And out of all days for my almost-coma low, my mother just happened to be visiting me. I must agree that slipping into unconsciousness is rather peaceful though. But, I’m definitely grateful my husband was there to call someone. I’m sorry you’ve been feeling sick all the time, and I hope you can have some more peaceful days. Keep your head up!

Thanks for all the support but the truth is I can never be at peace. I may be unique in that I have no tolerance for elevated sugar what so ever. Basically its as simple as this. If my starting sugar is say between 90 and 100 which is really the only pre-meal range I feel well in and I eat anything to boost it over 100 without taking an injection I become wicked irritable. I am not kidding when I say 120 for me is way too high pre-meal sugar. My body knows where the normal levels are and doesn’t want to leave me at peace when it goes out of range. Basically anything under 85 is to low for me not feeling well either. So the way I see it is I royally f*****d. There is just no way as a diabetic to even remotely be in normal range of 80-125 even 50% of the time. So my reality is I will feel deathly ill a good majority of the time for the rest of my life and every dime I’ve ever worked for and saved will be eventually wiped out from this disease. For you married diabetics or those who have soul mates your lucky. I will likely remain by myself and once my now elderly folks go I will be left alone. If they can’t cure it I almost can’t wait till its all over and the suffering will be no more.

I heard a saying:

“Diabetes, I will learn to live with you but I will never be your friend”.

Hey Gary, guess what, I will be your friend. michael

You only got it 3 years after me. Your sooooo lucky this was your first time falling like that I tend to do it waaaay to often. Yes the gluagon can hurt going in but no telling how many times I’ve thanked it for being there. Now I have gluagon kits here just for my family to use during one of my lows. I know what u mean about feeling like ur high and irritable but not being high. I’m just glad u have decided to fight it with all u have. Reality sucks but that’s reality for us. WE are diabetics and have to help other’s & ourselves at the sametime.

Adding my gratitude to the others that you’re still with us. I’ve not yet had a low that required medical help, but it’s a real future possibility. Saw a friend last night who’s with EMS & a volunteer fireman. Told him to be gentle with the shot the day he gets called to my house. He said most he’s seen come to violent & angry.

Hear your pain & the understandable depression. Feeling like hell most of the time is beyond horrible. Like everyone else, I have good days & horrid ones. Even on the good days I don’t feel like myself, the person I was before being diagnosed. Been the strangest, must discomforting sensation, not sick, not well, just not myself…Can’t adequately describe it.

Also hear you on only feeling ok within a narrow range.

Encouraging news about the researcher you posted. Stick around so we can all dance together around the bon fire burning our diabetes supplies.

Thank God your Mom heard you and you are here with us today. I am very aware Type 1 is a balancing act, and it is possible to die from a low blood sugar each and every day. You have had D a long time and it is no wonder you might feel burned out sometimes. Add to that the fact that you feel physically ill at a blood sugar in the 120s, I just hope you are not keeping your blood sugars too low in an effort to feel better, risking hypoglycemia. Not sure if you would consider using cgms or if you already use one. I would recommend Dexcom 7 Plus; I think it can help keep you safe when trying to keep your sugars in a tighter range.

Omg! That’s awful! I’m sooo sorry you had to go through that! I am getting tired of the swings in my blood sugar too its a pain! I’ve never been that low thank God but I get so high some times I fall into a sleep that I can hardly be wakend from and see double. Its as if I’m drunk. I hate it and it always happens after I eat if I’m not watchful and inject on time. I’m new at all this but I relate to you. I hate the lows the sweating and shaking ! Its really overwhelming at times! I used to be able to go through the day without eating now I have to make sure I eat even when I don’t want too. That’s soo scarey you had gone through that I’m so glad someone was there to help you! I’m so glad your ok now! Hang in there your not alone in this battle you have a lot of people who understand what your going through! Don’t give up! I know at times it seems easier but hang in there! We all care about you! I hope your feeling better. I understand being tired of feeling sick! I’m tired of it myself but we have to go on and deal day by day.I’m glad we have groups like this one of people dealing with the same problems I think it helps a lot. Good luck to you and keep us posted on how your doing ok.

Gary, I am so sorry that you went through this, but like all of us I am glad you are still hear to talk about it. Diabetes is such a difficult disease because of the many ways it effects us. It will be 25 years as a Type 1 for me next year and they have been talking about the “cure” for so long which is very frustrating and I am sure even more so for you considering the length of time you have been living with this rotten disease. I have passed out a few times, but luckily I came out of the lows with out assistance. I too battle many demons with this disease some days better than others. I believe that one of the hardest parts of controlling my blood sugars can result from my sheer lack of consistent control regardless of how many things I am doing “right” some days and how I feel about that. Our emotions, thoughts and stress responses to our feelings towards this disease throw our blood sugars out of wack…how frustrating is that! Are there any ways that you have to relax or find pleasure in life? For me it is my dogs, yoga, meditation and some of my friends. I personally do not drink because it causes to many issues for me to recognize my lows which since I have unawareness is a double whammy and plus I just do not like alcohol, but that is just me. .I was just talking to my CDE the other day about alcohol and diabetes for a paper I am writing. One of the things she mentioned was how alcohol inhibits the body from recognizing lows and can be very dangerous. So please be careful and test a lot when you are drinking and as others have said also to make sure that you are eating.Someone mentioned that there is a reason you came through this and did not die. I believe that. Hang in there and keep up the fight. Life will get better.

I’m glad that you made it through, even if it’s only to come back to a life that seems to be so torturous. It is very unfair that we are forced to fight a battle that we didn’t chose, but hang in there. I do believe that decades of research will pay off, maybe not this year or next, but it will. Keep fighting until that day comes:)

Happy that you are alive. Keep living, it is so worth it.

Thanks for sharing Michael! I am sure all this information is really useful to all of us.

Depression and Diabetes …not a good combo at any time .
I had a chance to listen to Canadian , Grammy and Juno Award-Winning singer -songwriter Dan Hill( living with diabetes ) at an intimate performance , Edmonton , AB . Dan also wrote a book : I am My father’s Son …a memoir of Love and Forgiveness . Dan’s Dad had diabetes .
Gary , please do forgive YOU and Love YOU…what ever it takes .

It sounds as if the key to your feeling well is to keep your BG stable at the right numbers for you. The best way to accomplish this rather difficult feat is to have a pump, if all financially feasible. By perfecting the basal for every hour of the day and night, you have a decent chance to reach that stability. With or without a pump, I wish you the best. For most of us, there is some “fly in the ointment” to deal with; we just all do the best we can while waiting for the Cure. Take care of yourself.

http://www.youtube.com/watch?v=uVf940pO5ME

Gary , I was able to locate a video of Dan Hill …hope this is helpful …his voice moves me :slight_smile:

Gary,
I’m so sorry for what you’ve been through and are still going through. Keep on fighting. As Robyn said, it is so worth it.

Doris, you phrased that so eloquently… I too have noticed being irritable at times with out being super high… It’s a strange one to decifer and I’m only a few months in being a T1 diabetic… Another thing I’ve noticed with a friend who is also T1, is when the sugars are way out of control (with him at least) I have noticed he goes through a type of depression… Gary, all I can say is you are NOT alone and hang in there… I’m still super green to all this but I choose not to let it beat me… Honestly, I’m scared of getting my first flu or cold now that I am diagnosed… I have no idea of what to expect or how my body will react now. Beyond that have you thought of getting a pump or CGM? I’m planning on getting both this January. Again, hang in there… You got all of us pullin’ for you!