I figured I write this as its been on my mind a lot. Right now I make minimum wage in my state and only work at least 15 hours a week. Which at this moment gives me time to go to dr appts. I worry that once I start the CGM and pump that I may not have that flexibility if I get a permanent job. I remembered when I was first diagnosed, I had to go to the dr a few times a week before the dx came about. I got another perm job and had to go to my appts and also get newer hearing aids. I had to go once a week to be sure the newer aids work and my insulin amount was in check and I lost that job too.
The excuses I've gotten was "it isn't working out". I want to get out of where I am working now as I am so behind on bills and such. I just feel I am not the same person I was when I was working. I took a 10.00 pay cut from where I was working to where I am now. I just worry that I may lose another job because of dr appts. You figured in the medical field they would understand. I wished I could work where I go for my Diabetes treatment. It would be easier. A part of me wants to stick out on this job till I am on my own with the pump and a part of me says no you can't do that, you need to get yourself in a better place.
I am excited about getting started on the dexcom CGM. I am hoping I can set it on silence if I go to an interview so I dont be rude during an interview. I am excited about my CGm choice as it will be helpful to me. As far as the pump goes, I am still deciding. I am excited about starting on that. I even bought a sweater that gives me a little room in the belly area so I am not looking weird or anything. Its a comfy sweater as well. I just may get more colors, etc. Anywho, I am nervous. I just need a job where I am able to cover supplies, etc. or even my rent for that matter. I just want to begin life. Being a diabetic and underemployed has been a rough trial. Since I was diagnosed, I was unemployed for the most part. So overall, I want to be employed and start living life and taking better care of myself.
I am hoping it is normal for me to be worried. I just do. I will be speaking to my case worker from Massrehab for assistance in my job hunting and what should I do. All I want is to be happy and to be fully employed and not underemployed. I am thanking god I am working 22 hours this coming week. But the next, who knows.
Sunny my reasons for going on the pump is get tighter control and to bring my A1C down. And of course the freedom. the CGM wont be an issue as I know that it takes a while for a new job to begin and in the process of getting that CGM. Its the pump I’m worried about but need to do it. Its time. The pens aren’t just fitting with me anymore.
In my past I have put myself and my Diabetes on the back burner due to a Job!. I always felt guilty about taking time off during work hours to take care of myself. I was the only one that suffered from it.
I once worked in a Mon - Fri 9/5 job. I loved it. But it is not compatable with Drs hours. Now I have alternative scheduling. Best of Luck to you.
Thanks. I can’t put my diabetes on the back burner. I did that and suffered health wise doing so. And I’m not going to take the chance in letting it suffer again. But I can’t stay at my current job as it just doesn’t help me financially at all for anything.
I can’t wait to work full time. I miss it. It was a routine for me. get up, eat breakfast, get going, work the day, come home, enjoy a dinner, and go to sleep at a reasonable hour. now its like I can work 2-7 or noon to 5, have a day off here, etc but it doesn’t benefit me as I do not get any benefits at all at my job. I do get holiday pay but other than that nothing else.
Amy, you are very lucky to have a job! In this economy, lots of people can’t even get interviews. I have been unemployed for two years with no insurance or no unemployment benefits or anything. I found out I had D 7 months ago, I can hardly pay for anything. Many people would be very happy to even be underemployed and be making any sort of money at all. You sound like you are in field that has a lot of job opportunities even in this bad economy - many people aren’t. Continue to be grateful for what you have right now as it is better than no job at all. So don’t be too worried, it honestly could be worse (look at me!). You are doing good staying employed.
PS. I wear hearing aids too and mine are 8 years old and I should get new ones but there is no way I can. I can’t even pay out of pocket for this sort of thing. I am paying out of pocket to go and get wax out of my ear this coming week at the audiologist! (at least, I HOPE it is wax in there!). No low cost clinics have audiologists.
kimkat, my credit rating has plummeted really bad because of this job. Its NOT where I wanted to be since trying to improve that since I was in my 20s. This job doesn’t provide enough for me to survive. I had my gas turned off as I couldn’t pay the bill. I need to get my hearing aids tuned and cleaned. I cant hear much as I haven’t been able to get anything done to them to keep up with the maintenance. The one thing I hate about my insurance is no one will take it.
I can sympathize with you on the bad credit. I had to declare bankruptcy last year because I couldn’t find a job in time before I ran out of money to pay them. I even cashed in my 401K - I am still paying taxes on that.
I have the digital aids that go all the way in my ear and they don’t even have the software anymore to tune mine so I kinda of have to deal with where they are at now and just hope my hearing doesn’t get any worse. I got one of those electronic drying boxes which I put them in at nightdefinately helps keep the moisture out of them so they don’t get damaged and I have to send them in. Hearing aids are a pain. What kind do you have? Some places that serve the deaf and hard of hearing community, you can sometimes get some free or used ones but they will be the clunky big kind. Might be OK for temp. I would like to get a back up pair myself.
I have the in the ear one. I can’t remember the company. I got them in 2008. So Im overdue for a cleaning and a tuning. I dont know much about bankruptcy but hope I dont have to do that.
I just lost my job Sept. 17 @ 7:30 am in the morning.
I feel your pain. Now pick your self up and start moving. For jobs now and days the internet may be the best option have you looked on twitter, facebook and craigslist? I found a scientific job on Craigslist. While I had a job there were several good jobs that I found on twitter. Just put job titles that your are qualified for in the search and see what is available. With twitter put in hashtags and see what you get.
You might need to check with your states labor board or the Dept of Labor about what are your rights as a diabetic and going to appts. As a diabetic you are covered under the American Disabilities act. In california you would be considered disabilites which may qualify you with some extra priviledges.
I don’t know you very well but have you thought about going back to school and reinventing yourself? I am doing this right now.
If you need some one to talk to please let me know…I will be happy to call you or you call me… I hope this helps.
I manage to work full time, and keep up with all my doctor appointments. Doctors know we have to work, and I have been lucky to find doctors who have late afternoon, early eveing hours. When I went on my pump, I used a vacation day. Maybe I am lucky, but I see a cardiologist, endocrinologist, and primary care doctor all on a frequent basis, and have not had to miss work at all. If you want something, GO FOR IT. Most things are possible if you want it bad enough!
mistressbinky, That you for the links. i have no proof that is why i was let go but i started adding things together and that is what i think. I am glad to have a job where there is flexibility now but I can’t stay working where I am. Once I do have the money to do so, I’ll join ACLU. I am awaiting to hear back from a job now that I applied for back in February and didn’t get it and now I hope I do. I just hope they understand. I’ll even stay later if I need to do make up lost time. I have no issues with staying late. The last job I had I was 2 weeks away from completing probation when they let me go. I was counting on that job for insurance and experience. I’m constantly fighting as much as I can. I am excited and nervous about going on the pump and CGM but I know it will benefit me a lot!
