Hi all . First timer here, figured I’d share my story . Much like every other post I’ve read about LADA, there was quite a bit of confusion about my diagnosis over a span of 5-6 years. Lucky for me my Endo isn’t narrow minded and heavily relied on my input/what was best for me .
Diagnosed as T2 originally five years ago, but as soon as C-peptide and antibody tests came back that quickly switched to T1 (0.5 ng/ml; positive for GAD65 only ). Started MDI, but once I got my basal figured out I was finding I rarely needed to bolus. So I was being well controlled on 10-12 units of Lantus daily . Over the next 6 months I had to keep lowering basal doses due to hypos til eventually had to come off insulin all together . Naturally the “I’m cured” thoughts creep in although you know deep down that isn’t true . This is where I have been over the last 6 years until blood sugars started creeping back up lately which really got my research juices flowing and became convinced that my case is LADA. Doc tried pushing various orals , but I respectfully declined and asked to be put back on MDI which has now made things immensely easier to control . C-peptide is still hovering between 0.3-0.5 so it’s still a toss up when the failing pancreas decides it wants to work, but there is an odd sense of relief that with it losing steam things are more predictable.
Crazy the many masks this illness wears and how everyone’s experience can vary drastically, but reading this forum has been such a huge crutch/resource for me when I was trying to get this thing figured out . Until looking deeper into it I never would
have guessed a 6 year honeymoon to be a possibility. Kudos and respect to all the true Type 1s out there that were completely insulin dependent from the get go . In a way I feel like I got a victory lap and some time to really figure this thing out .