Latest endo appointment

We took O to the endo this week and her A1c has decreased from 7.7 to 7.4. The nurse practitioner said that this did not look like it had come at the price of too many lows which really surprised me because it feels like she has been high all the time lately. In the evening, the smallest snack sends her soaring and we have been doing a lot of correcting in the middle of the night. I know that several parents here have mentioned that same situation with their toddlers this summer. I don’t know what’s going on, but it has me worried. We increased her Levemir again yesterday, but I haven’t seen much effect today. In fact, she’s been above 200 all day and I have been putting cotton balls in her diapers to try and check for ketones. I got a Precision meter from our endo team so that we can check for ketones in the blood because this whole cotton ball thing is dicey. (So thankful for our nurse practitioner - we have yet to pay for a meter, except for the one that the hospital “gave” us at diagnosis for which they probably charged us a grand.) However, I haven’t gotten any strips yet because the pharmacy had to order them.

Paige, did you ever get to use the Precision meter? I haven’t heard of that, but I bet it really helps. It is easier to check for keytones once they are potty trained. I can’t imagine what you are having to go through. I hope that her numbers are back down now since I just noticed this message was posted a while back.

Isabelle’s numbers were really crazy for about 2 weeks and we finally figured out that she had a sinus infection. As soon as she got on the meds for that they got back in line.

I hope everything is going well for you.