Have you not read anything I’ve posted? You people talk in circles. Let go of the idea that anyone is “denying insulin” “starving” or not “checking their bg’s” and read what we are REALLY doing. It would be helpful if people were actually read the thread and be productively debating on here and not just falsely accusing very intelligent, capable parents of the same things that have been answered here over and over.
If you ate a leaf and checked your bg and you were 45 would you give yourself insulin just for fun? That sounds dangerous. When I test my child before a meal and she is 82 and I feed her grilled chicken, steamed broccoli and 2 red potatoes (sound dangerous?) and test her an hour later (no insulin given) and she is 89 and two hours later she is 85 you’re suggesting that I’m being dangerous NOT giving her insulin? I don’t get your argument?
Don’t be so sure of yourself til you read all I have posted here and else where. You must understand that I’m coming from a place that as the child and now adult who has been in all kinds of treatments for Type 1 that I have found that FOR ME (NOT ALL) it hasn’t worked. More power to the one’s it has worked for. I just want to make SURE nobody (expecially a child. See I have a Type 1 daughter too) & I know better than to try some of the things that were put forth on her.
I"M trying hard not to agrue with you but you keep persisting on it. Do what u have to do and hopefully it will start something new that will result in something for our future diabetics. Now let bygones be bygones.
You’re trying hard not to argue? You’ve accused me of endangering my child. I’m just trying to understand what it is that you see is dangerous, you clearly don’t get it. I wish you all the best, there was a reason I stopped coming on this website I shall heed that self talk once again as I feel my blood pressure rising from the few minutes I’ve been on here.
Have you ever thought it was a mis-diagnosis? If you are feeding here and she at 82 and 2 hours later she is at 85? Sounds like her pancreas is still producing insulin, if not then her BS would be a lot higher because of the potato’s!
I’m thinking the same. Maybe she never was T1. Maybe she has MODY - many with MODY are able to go off insulin. This seems a lot more likely a diagnosis than T1, given the information I see…
It can in adults (many adults diagnosed T1/LADA can go years without insulin use)…so why couldn’t it in a child? Just like some people have almost no honeymoon phase, others may have very extended phases.
Another possibility. The incidence of T1 among children has been increasing especially in the last 40 years. Here’s link summarizing a rather long winded article documenting this, if you wish to read about this in more detail scroll up.
At any rate one could postulate something in our environment is causing this increase and these dietary changes are removing that factor.
How many would you like me to ask? I’ve already got 4 very highly regarded endos who will tell you that a “honeymoon” phase can last years.
Just because it’s not commonly heard of, doesn’t mean it can’t happen, right? I’d think you’d be the first to agree with that particular statement.
I’m sure other people have already said this, but if YOU had done this “cure” and had successfully gotten off insulin for even a week, and had PERSONALLY written about it on the list, then I would be interested in what you had to say. But you’re giving us hearsay, and it means nothing. It doesn’t matter if you believe. Belief means nothing. I would want to see scientific evidence, and corroboration of the results by other people, preferably diabetically trained scientists. I would want to see scientists evaluate the evidence that the little girl actually had diabetes in the first place.
I am so sorry that you are ruled by your emotions and feelings for Kim (who is probably well-intentioned), and not by rational thought and science.
As far as evidence, that will most likely never be. The medical industry won't waste money researching because there is no money to be made if you can be cured by food, supplements and a few trips to the Endo.
MM, if the above is not a cynical statement by you, I don't know what is. Also, I think the folks at JDRF who are working hard to find a cure would be very offended by your statement. They're not running a foundation just for the fun of it. It's serious business.
Grassroots efforts that are safe and honest should be commended and supported, but let's not throw the baby out with the bathwater. Scientific medical research is ongoing, and progress is being made. I am amazed at how much technology and quality of life have improved for all diabetics over the past decade alone.
Jeez, I wish I could get numbers like that!! I never managed that even when first diagnosed. I was diagnosed as an adult, and there is no possibility of “leaky gut syndrome” as far as I can tell.
I think exploring the possibility of MODY is a good idea, because numbers like THAT really don’t sound like Type 1.
Not a misdiagnosis. My daughter is 100% a Type 1 Diabetic no doubt about it. She was admitted into the hospital at 12 months DKA, she was on insulin for 6 months before I met Kim and started trying/eliminating different foods and using different flours/ingredients for cooking and baking. My point is that my daughter is not effected by red potatoes if it were a white baked potato she would sky rocket. Same with carrots, every time I give her the tiniest bit of insulin to cover carrots she drops really low so I no longer do that. This is because we have eliminated HER trigger foods these are the foods that cause inflammation in her body and cause her body to attack itself. I still have not identified all of her trigger foods which is why she is still on insulin, in fact she uses an OmniPod as of February. Some days because I’m human I crash and burn and don’t want to try to figure it out anymore, I don’t want to make a special gluten free coconut flour cupcake for her to eat at her friends birthday party but I do it anyway, it is VERY hard and it is a process, for us a long one but my daughter is only using about 2-3u of insulin per day because of it (down from 8-10u). I’m hoping that like many of the other families we have MET and became friends with (and who have willingly shared their medical records and stories with me) my baby will not need insulin one day. You have to believe that there are other ways to heal your body-our creator provided us with all we need on this Earth we just have to be open to taking the road less traveled. Please don’t diminish the work and effort I’ve put into my daughter’s care and the sacrifices she’s made by saying she was misdiagnosed anymore.
I can agree with that ANYTHING is possible…only time will tell and I hope for all of us this will one day be shared happily as a choice for parents and T1D’s if it indeed is not a honeymoon extension. Every Endo I’ve talked can’t explain it, hasn’t see a honeymoon last that long and my daughter never had a honeymoon phase so I’m not sure how it could be.
I’m just a Mom I don’t have money to get scientific evidence for other people. All I can do and have done is help my daughter drastically reduce her insulin needs, watched other kids completely get off of insulin safely and under the direction of an Endocrinologist and have tried to share that via my blog. Kim and other Moms shared this openly via their blogs as well. I came across this post a while back and decided I would defend my friend, a woman that is a great Mother that has helped my family and many others beyond words because people were bashing and threatening her. I’m not ruled by any emotions other than anger at how disgusting some people have been on here over this issue. I hope you can see how irrational it is to ask a single person, a mother whose child suffers from this disease everyday to get “scientific evidence” to help you and a ton of other people who are threatening me with CPS and just being outright nasty, why in the hell would I do that. I tried very hard to get information to people that wanted it, I hope I helped someone or at least got some thinking/researching that’s all I can do. By the way its not hearsay, these are facts that I’ve seen and experienced first hand.
MM, there a two major red flags with regard to qualitative-based research, which is what you have essentially been following. The first red flag is that qualitative-based accounts are NOT generalizable. In other words, observations made by a few people and shared in testimonials are worthy of drawing attention to an area that may justify further study; however, such observations do not rise to the level where you should apply those findings to a larger group.
The second red flag is closely associated with the first. Since qualitative studies have subject groups that are too limited (N=1, or N=a few) to draw generalizable conclusions, when such conclusions are made, there is a danger of putting forward spurious relationships within your findings. For example, you may feel very strongly that avoiding these so-called trigger foods is what is keeping your child from needing more insulin. However, without a quantitative study with numerous T1 human subjects to study, such as a true experimental or quasi-experimental designed study, there is no way to know for sure what is controlling your child’s insulin needs. What you and a few others are doing may have no bearing at all on the outcomes you are observing.
I suggest you submit your theory to JDRF. Let them evaluate the merits of your theory. As things stands now, it should come as no surprise to you that what you are proposing is met with skepticism. There is a right way to follow up on your ideas. Email Bernstein. Legitimize your case. We are all really on the same side and want the same things when it comes to diabetes. Move your ideas forward through the right channels and in the right way. Especially when it comes to children, there should be an institutional review board (IRB) protecting their rights and the rights of all human subjects.
