So, I don’t know how rare I am to be diagnosed with Type 1 at age 28, but I feel like an oddity. I was diagnosed at the end of June of this year, purely by luck after requesting routine labwork of my NP after a routine visit with her.
Three years ago, based on my fasting blood sugar, I was told I was pre-diabetic and asked to lose weight and have an A1C. I lost some weight and my A1C back then was 5.6, so I was made to believe I would be okay.
I really hadn’t given diabetes much thought since that visit three years ago, but decided in June it was time to be reevaluated. Well, my first fasting bg was over 400, followed by my new A1C level at 11.7, followed by a repeat fasting on a different day in the 200’s. Bam, now I have diabetes.
I was extremely fortunate and swiped a canceled appt with an endocrinologist. Only in retrospect did I have DM symptoms, I was getting up multiple times most nights to urinate or chug liquids, I was sometimes ravenously hungry, and I was always sweating profusely and tired constantly.
At my initial endocrinologist visit, I was put on nightly Lantus and they did a GAD antibody test, being that those are the most common in Type 1. It felt like forever (was really like a week to a week and a half) until my test came back, highly positive for GAD autoantibodies. Normal is 1-5, mine was nearly 800 (although I have been told a high number doesn’t really mean much). So, after that test came back, Humalog got added in a dinnertime, and within a week or so, I started dosing at all meals, but never snacks.
My question is, everything I have read about LADA suggests that it is slow to progress and that people with it don’t need insulin right away, so does that mean that more than likely, I do not have LADA? I know it is just for academic purposes and doesn’t change my treatment, but I am still trying to wrap my head around this diagnosis. Also, I have not had a c-peptide nor other antibody testing and wonder how valuable that information is or has been to any of you? Thanks!