Hi everyone. I am so hopeful you can help me figure out what I am doing wrong or point me in the right direction to get the help I need. I am a little frustrated by the lack of real life support I am getting right now. We had a pump educator at first but I think she is done with me and my apparent lack of ability, :P. Should I be contacting Insulet- are they good about troubleshooting? I am a pretty introverted person and would so much prefer to not to do all of this interacting in the first place, haha, but I know I don't really have a choice at this point. I just am not sure where to turn and wondered where others have gotten the support they have needed.
My ten year old daughter started on the Omnipod on Friday, Oct. 3rd. Since then we have gone through a box of pods and I am about to put on a new one from the second box (as soon as the Emla has done its job). I think I have all of the adhesive issues taken care of- we have Skin Tac and Tegaderm. We do live in a very humid climate and my daughter does sweat a lot. Lucky girl, she takes after me :).
Many of the pods we have used seem to work at first but by the second day, her numbers creep higher and higher. This last pod was put on Monday at 11:30am and worked great for the first day and evening. I could tell by yesterday morning that something had changed by looking at the Dexcom from overnight- numbers just gradually creeping higher and higher. I could not see in the little window to see the cannula b/c it was fogged up but I did not and still do not see wetness on the adhesive (which I have seen in some of the pods and I am assuming that this is leaking insulin?). She was in the 250s all day and woke up this morning at 308.
What I am wondering is if this is an issue with her settings or if these are failures on my part? Have I pulled the plug on some of the pods before I should have in my desperation to keep her out of the 200s and 300s? The settings are very similar to what she had with Lantus and bolus insulin so it does not seem to me that this is the issue. Then I wonder if this would have happened even with shots- maybe this is a growth hormone issue? Seems like there are so many variables.
I just peeked in the window again on this now deactivated pod (working on removing it for the next one) and the fog has cleared. I see the cannula and it appears to be in her skin. It is angled a bit towards the window- is that the way it should look?
As hard as it was with shots, I felt like I had some measure of control and we were doing pretty well. Now I feel like it is all chaotic and I can't seem to get things right. Is it me? Is it this hard for everyone at first? Am I doing something wrong? Am I making any sense here at all :)? Thank you for any advice you can offer. I don't want to give up yet but I am feeling close to it.