OK I still can’t find a home, not on the ADA message boards and apparently not here either. I am 50 yrs old, 5’2, 115 lb woman diagnosed almost 5 years ago. I have always been this weight going on 30 years or so, except for two pregancies ( daughters now 25 and 19)
Almost 5 years ago when I had 2 bouts of pneumonia in a month, GPdid blood tests in office and fasting BG was at 357. Spent day in hospital on fluids and antibiotics, BG down to 110 and they sent me home with orders to see dietician and diabetes educator. Did that, put on too few calories and started losing weight. increased calories and allowed carbs and was doing OK except fotr the nightime crashes and waking up with BG of 52 most mornings. Off to endo, GTT and antibody testing, he says not type 2, really type 1.5 , NO meds, but also no insulin, lots of exercise to keep rest of body healthy and keep weight up with good muscle mass, since I am still making it at about 50 to 75% of normal and he thinks that we shouldn’t confuse the pancreas with outside stuff. He thinks given the level of insulin output I have 5 to 10 years to needing insulin injections
So, I have big post prandial spikes (180’s and higher) if I try to eat normal, but lower ( 130’s) if I control the carbs/ balance with protein. Fasting stays less 105 most of the time and A1c is always about 5.6 or so.
So here I am 5 years into the diagnosis, still doing the same thing: 3 meals and 2 snacks a day, bedtime snack if BG is less than 90, Total Gym 4 to 5 days a week.
Every once in awhile I think this is all a crock , I am in not that bad of shape compared to other diabetics I know and try to eat “normal” and find myself way up high and ready to crawl out of my skin from BG in the 200’s, Oh well back to the controlled intake of carbs and proteins anything is better than needles…
Biggest problem is trying to explain my diagnosis and control methods of keeping BG in check to other doctors. Had emergency surgery last fall and depite their
promise to NOT put a dextrose drip in my arm ( Had lact/ringers going into the operating room, they switched it to dextrose ( its S.O.P)
and sent me soaring up to 300’s where I stayed for about 48 hours. Chewed them out and made them send me home to keep them from killing me.
I tend to tell them Type 2/ insulin resistant because if i say Type 1 they ask me where is my insulin?
Are all you type 1.5’s on insulin? have you been this way since your diagnosis?
OK is there anybody out there like me or am I just a statistical anomaly?