You know those nurses down there at the clinic are lying to me?

They called me up and told me they had access to the dexcom data when I know that they don’t because i’m not running data through the app because the app doesn’t even install on this phone model.

You think they are lying to the Doc, too? You think they are just handing the Doc somebody’s data?

I think I’m done with this charade. I’m just gonna cancel the appointment

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Do you use the reader and have you fed the readers info onto your computer? If yes and you gave permission in the past they can still access it.

More likely though they have it down they have access and never actually looked that it’s not current info.

Its only on the receiver. That’s the only place it exists.

I called them and called them to try and set up some mechanism of giving them the data because they wanted a virtual appointment. I wanted to drive the reciever to them so they could upload the data.

They called me up and said they had it. They don’t.

But, now I have uncovered the source of all recent problems. I thought it was the Doc or the pharmacy. It’s the nurses.


I am not sure how they could. My CDE uploads my dexcom when I am there and for some reason she cannot do the pump anymore. I used to do it and email it to her but I stopped doing that for a long time- nobody seems to care so I don’t bother anymore. I said I’d do it again last time, so I have to figure it out again. I did it recently with tandem after my original pump shut off twice while I was asleep.

Anyway they never get reports from Dexcom for me, maybe because I haven’t set it up. I don’t want them having unlimited access to my data.

I do get reports from a Dexcom app for weekly bg etc., but they don’t come every week lol.

I suspect they mean they have access to your account on the Dexcom/Clarity servers and that they simply didn’t check to see whether the BG data had been updated recently. Indeed, they probably didn’t even try to log in to the server; Dexcom maintains a list of authorized prescribers (and you can see it in your account).

It is worth going to Clarity. I thought the data came from “Dexcom share” but I disabled that and Clarity still gets it (much to my annoyance; it’s already in NightScout along with the pump information and everything else!) People say the receiver doesn’t have WiFi but it does have a WiFi radio, otherwise it couldn’t do bluetooth. It may be that the receiver actually is uploading to Clarity; the app certainly does this without giving any warning or asking permission, all it needs is your account login.

Nevertheless just take the receiver with you; they can upload it when you get there. When I had an endo he never looked at the data before I arrived.

For other respondents; if you have the app and you provide your login information then all your data goes to that account with Dexcom. I could find no way of disabling this.

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They prefer virtual visits now. Hence the attempts to contact them and swing by with the receiver. All efforts failed. Its OK, I don’t need their analysis and I got a PC to write all the RX’s. The only reason I set up the apt was because those nurses called me up when my insulin RX went dead and said they would not refill unless I setup an apt. The was the start of hard feelings between us. We have been going back and forth (via phone tag) for weeks. Nothing is ever accomplished.


I don’t know where you live, but in my state a prescriber cannot refill a prescription unless you have seen him or her within the last year. Sadly, some of these laws came about because of the opioid addiction epidemic where drug-seeking patients had multiple doctors who were treating their “pain.” Of course, insulin is non-addictive, but now the laws cover all prescribers and all prescriptions.

Personally, I do not care if my endocrinologist has a constant stream of my data. Nothing really is “private” anymore, so what harm does it do if my chosen doctor has access to my data? It just saves time and sometimes trips to their office, and that is fine with me.

Opiods made it so we can’t have paper Rx records either. Its hard to manage that stuff without any access to the paperwork. The medical system created the opioid problem to begin with. Somehow the burden falls back on us. Frusterating.

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So true! We just have to hang in there, be our own health advocate, and do the best we can with what we can control. So breathe, smile at yourself in the mirror (which actually does help!), and make this a good day!

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I haven’t seen any doctor who is actually treating me for well over a year now. I’ve had a few telephone conversations with my PCP, who is apparently doing all his business remotely and there is a possibility of contact with the endo I saw before remotely, but I can’t actually see them.

It’s annoying; I’ve never liked the telephone, it really doesn’t work for me. Email is fine, but not the telephone, just too much misunderstanding.

You can do video calls can’t u.

Video calls don’t work; things like LINE, which my wife uses to talk to her family in Taiwan, are just fine, but whatever the medics use just doesn’t work for us. I think it might be because we are in a rural area and our internet connection has a large round trip (ping) time. The system simply drops out, quite apart from the fact that the UI is hopeless (my wife’s computer has three cameras, it selected the wrong one; not the default).

Well, I don’t know how challenging this has been for you as I am not in your shoes but with as much work as you have put into this, I would keep the appointment and demand to see your reports. I mean, they are your reports. Maybe they do have them. And who knows maybe there will be someone you can connect with.

I do know all my medical teams both endo and research teams has access to both pump and CGM. I use to bring the reports with me and then email them but now he has them when I show up. So he can look things over before I get there.

Generally contact with your physician – whether by video conference or just verbal conversation – can count as a “visit” enough for you to get medication refills. I agree with Sally that you should keep the appointment and demand to see the reports and paperwork. YOU are the patient who is paying the bills, so THEY work for you. They claim they have your data, so call their bluff and ask to see what they have.

@Sally7 wasn’t replying to me (there’s a known bug in discourse where replies to the previous conversation aren’t quoted, but they can still be detected; @Sally7 just posted a new comment for the OP.)

I don’t have a problem getting lab reports with my new PCP because they use a local (newly built, post ACA) Asante urgent care center and Asante use a thing called “MyChart” which emails me as soon as the results are in. This is good; I actually read the results immediately, most likely before my PCP. My previous PCP used LabCorp, but he was really good and I never even tried to find them online (I have an account with LabCorp of course, but that’s for payment :frowning:

I also don’t have a problem getting Clarity data from Dexcom, but it tells me rather less than the much more comprehensive data I have with NightScout. I did delete my Glooko account after my last attempt to get an endo; somehow the candidate endo had got access to it without asking me. I would have given permission anyway but that really weirded me out.

In general I am the one who ends up making sure my PCP has all the data. It took a while with my retina specialist to get the nurses to actually send it. People outside the US will be aghast; yep, we really have to walk our paperwork through the system to ensure it gets to the right place! Centralised records? Duh, we have two competing companies who manage everyones’ data, except that the docs have to sign up for one or the other and that’s where the patient’s data goes… Competition, it’s really grating.

The real problem I’m having is pretty much the same as the OP, @mohe0001; to get anything done I have to battle through a front line of nurses. (In my case I’m battling to get to another nurse who is my PCP!) It’s just taken several weeks to get my insulin prescription refilled; first time my PCP had to do it since I started seeing an endo. Lots of blame, no clear explanation of where the problem was. Fortunately it is fixed now.

I have a PC who comes highly recommended. I already took a day off work to get the BP Rx refilled through him. I glared at him the whole time. I was furious. He just went ahead and refilled every diabetes Rx I had.

Problem solved.

The endos nurses keep calling. I immediately cancelled the apt with them. But, they keep calling. They do not yet realize that they have been cut out of the loop from here forth. ENDOCRINOLOGICAL PRIVILAGES REVOKED!!!


Good news, I am glad you found someone else to do your rx. :grinning:

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Well, guessing, where I grew up a PC is a Police Constabule of all England. Nevertheless the thing about Doctors is that they are Entitled and, with all the problems that brings, there is one blessing; they are totally arrogant and they look at what is happening and just deal with it.

This applies particularly to GPs who have to deal with real emergencies, sometimes overstated but more often understated.

I have to admit I’m in the process of giving up. Dealing with the US medical establishment is not healthy.

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LOL And keeping up one’s ability to laugh at it restores some of our health.


I saw where a pregnant T1 had her appointment cancelled. 8 months along.