I was just wondering if it is possible to have stage 2 kidney disease and also general polyneuropathy in legs with normal retinas. I have no damage in my eyes, but recently diagnosed with bad neuropathy in legs and stage 2 CKD. I knew I was going to have nerve damage in the leg that suffered a massive DVT. I can’t do a lot with that leg anymore. It’s like 50 percent weaker than the other one, but the polyneuropathy really threw me for a loop. It says I have no Sural Nerve response, completely dead Sural nerve, but I wonder how accurate these tests are. No Sural Nerve would put me in a wheelchair I think right?
My BP tends to jump around a lot from high, to extremely high, to long periods of being completely normal, even without meds. I have to play musical chairs with medications and my BP. My A1C has been 5.9 for the last year, and now down to 5.8. I started Jardiance 3 months ago and along with a way smaller amount of Insulin for one meal a day, things on that front are pretty good. I limited carbs down to 50-60 grams, or lower on most days.
I may have to go farther on limiting more carbs and maybe go back onto Metformin. I have intermittent gastroparesis-like issues. I am either locked up for days on end, skipping meals, and burping up days old food, or everything is just speeding through me and going to the bathroom up to 10 times a day. I bounce back and forth, and when things lock up, no measures employed can fix it until it relents on it’s own. I stopped my stomach acid blockers because I read they can cause slow stomach emptying. I just deal with the burning throat now and learned how to live with it. I also drink 2 daily doses of Miralax a day and I liquefy and drink one and a half cans of Kidney beans every other day. Deviating from this causes digestion to stop. But when it does stop, these protocols do not get it started again. I have been eating trigger foods for weeks and still stuff is moving. Eating cheese, and also some chicken with the skins on which usually starts a flare. But fingers crossed I can have some more good weeks to come. I live in constant fear of things locking up again, so much so that I am scared to change anything in my daily routine.
Doc wants me back on Statins and Lisinopril despite the BP sometimes going low to 80/66. I am afraid adding those meds and then the metformin back again will lock me back up. I never had an issue with Metformin though. I can literally take it on an empty stomach and have no issues. I just have trouble swallowing now. I chew or drink all my pills. Last time I had a pill stuck in my throat and hacked all night until it came out with some blood was it. I would rather be shot than try and swallow a Metformin pill. All this happened 2 years ago when the start and stop digestion started. Before this really good three week digestion period, I was having trouble for 2 weeks which ended up with me going to the ET severely dehydrated from skipping five days of food. My entire mouth became bone dry and has been bone dry for 2 years is why I can’t swallow pills. I take no meds that cause dry mouth. Only Sjogrens Syndrome or autonomic nerves can cause this from what I’ve read.
I am not sure, but will ask my endo doc tomorrow if it can be maybe diabetic autonomic neuropathy. It would make sense with all the systems starting and stopping. I finally got an endo doc a few months ago and she has been a god send for me. She said I was managing my diabetes like they used to manage it 40 years ago, but that since my A1C was good, she was happy it was working and then switched me to Jardiance. With Jardiance my foot on the floor morning swings have been evened out and my numbers are way better.