Terry4 started a topic awhile back about “brittle” diabetes & YDMV. And while I do feel there are some out there are some out there who do fall into the “brittle” category, like those that end up with transplants because the drugs are easier than the wild swings in blood sugar, I think the term is over used somewhat. I mean back in the early 70’s I was called brittle but who wasn’t, testing urine and taking one shot of Lente.
But many in that chat brought up some great points swinging both ways which made me think about some of my key learnings over the years.
- What works for me, might not work for the next person. And what works for me right now, might not work for me next week.
- Diabetes is mostly a mental disease. If you can’t wrap your head around the fact that this is forever and that you need to learn how to respect it, live with it and realize that it doesn’t always play fair, you will be in a battle with it forever which could lead one down that dark depression black hole.
- Most of those out of target numbers are not crazy and make no sense. Most of my out of target numbers are very explainable. When I finally started really tracking things & using a CGM, all those crazy numbers had reasons. A miscalculation on carb totals, a mistimed bolus, an extended bolus calculated wrong (% & length), not suspending, reducing or timing in basal for exercise. Most have a reason if I’m completely honest with myself.
- They are just numbers. They are not my failure to do this well. Diabetes feed into my personal belief that I wasn’t good enough and I was a failure. The disease can feed those beliefs. And I have learned that those numbers, high, low or in target are all learning tools. What works and what doesn’t work.
5.With all the research & new tools, don’t be afraid to try new things. Just remember where we were.
-starvation diet to injection of ground up pancreas from cows
-urine testing to visual blood testing to meters
-one injection a day, to 2, to upwards of 5 or 6
-blood testing machines to ones that talk to phones or even your doctor
-exchange diet to carb counting to low carb diets
-sliding scales to insulin correction factors
-old CGM’s, new CGM’s, different types of CGM’s
-old pumps (backpack sized), DIY, AP
-new drugs, Smylin, inhaled insulin, type 2 drugs off label
clinical trials-new drugs, new devices (CGM, pumps, meter), stem cells, vaccinations
Outside of starvation diet & very first insulin used in 1920’s, I’ve done it all and am so much better off with each new thing I tried. Did they all work well for me, no but I tried and learned and am not afraid to try the next new thing. There are many very dedicated, very passionate people trying to find a cure of a better way of life for all of us. And all these new things coming may help make my life and my families lives easier.
I guess my point is to never give up, there is something out there that can help and you should try to keep learning new things. You can teach an old dog new tricks!