I have celiac disease. It was discovered when I had unexplained Iron-Deficiency Anemia. I had no GI issues. About 30% of celiacs have anemia as their only or main symptom. It can also interfere with the absorption of medications (thyroid) and of course, nutrients from foods. It is commonly associated with autoimmune thyroiditis and TD1. You should be screened with a simple blood test.
Gluten free? It is pretty hard to do. If you consume any processed foods or eat out you are at risk of cross contamination. It only takes 20 ppm to start damaging your small intestine. The gluten that triggers a celiac flare up includes wheat, barley and rye. Oats are a huge problem if they are not grown in dedicated fields and processed and transported away from wheat.
Hmmm, I think my iron levels are fine, since my ferritin level is normal. I have low thyroid and have for decades, but I have tested negative for autoimmune thyroiditis in the past.
I eat out out about 6 times a year. I eat rice crackers which say they are gluten free,but who knows for sure. Mostly I eat all kinds of beans,lentils, organic fruit and organic vegetables, some rice. Almost all of the food we eat is made from scratch.
BUT, I eat oat grouts every morning so I guess that is where i could be getting gluten. Thanks for the heads up. I will get tested. I also drink a lot of Teeccino which says that no gluten can be detected in their brewed product.
I think I might come off as a crazy celiac, but the fact that only 20% of celiacs are actually diagnosed is rather shocking. So is the fact that up to 60% do not heal because they have not really mastered the gluten free diet. It is a shame that this is one illness that must be managed solely by the patient.
I donât think itâs relevant to Marylinâs situation, but my father-in-law had an extreme drop in cell counts from some fancy modern platelet aggregation inhibitor he was given by his cardiologist. The drug had to be stopped.
Red Yeast Rice is a natural supplement that naturally contains statins. Which is used to lower cholesterol. There is some pretty good information research to show it works. Years ago the manufacturer I believe it was the first prescription one, actually sued the different manufacturers of red yeast rice to stop them being able to market it, they were not successful, but they did manage to stop it from being a guaranteed potency strength marketed herb. And if any batch is too naturally âstrongâ , they are not allowed to sell it at that strength as it rivals the protected patented forms.
I would not recommend taking it if you ever reacted to statins, plus if you do take it make sure you take CoQ10 as statins block the uptake of CoQ10 and it is a critical nutrient for the heart, liver and other functions in the body. It has been bandied about that in some people statins have been known to raise blood sugar levels.
A safer bet is plant sterols, which are really good for the heart, a little slower say 2 months versus one month, but usually as strong taken in the stronger doses recommended. Moduchol is a good dose at itâs recommended 4 a day. But there are plenty of others too.
Marilyn we are all with you so please keep the vision one day at a time
Interesting that we all have idiopathic hyponatremia I have been in the hospital numerous times for this I am prescribed sodium chloride but will now order salt stick on Amazon
Have any have you connected with a plant-based cardiologist to get their opinion on the heart thing we are all experiencing?
The doctor here at the hospital is a vegan, but that is about all we agree on. I have never met a plant-based cardiologist. I have the name of 4 more cardiologists so I may be more fortunate with the next one. I have no idea what my present cardiologist eats.
I donât know if you read an earlier post saying that my Cologuard test was positive and that I am anemic. My GP is afraid of colon cancer. Just found out Monday that we have to end the life of our almost 15 yr old dog. It has been a stressful week to say the least.
So interesting that so many of us have low sodium levels. I will look up salt stick.
Did have a diabetic nutritionist stop by here at the hospital. She thinks my low fat vegan diet is great and could offer no nutritional advice.
They all have their own views and opinions and the bottom line is we no our bodies better than any of them
Please keep me posted on how you make out with the next couple that you interview
I saw my cardiologist this week and she was pushing a cardiac cath months ago but since I am asymptomatic and really donât want to get it she said letâs revisit the idea six months , I was stunned
I have hypo atresia for 25 years had every test andn they do not know why I have it if ever I need anesthesia I end up back in the hospital because they always screw me up
Currently I take 1 g of sodium chloride itâs a prescription two times a week there were times when I took it two times a day
I also salt everything with Celtic sea salt
Took a fall three weeks ago and have deep contusions in Chest and have not been able to move too well only walk things have been very slow but I am getting better
I too have hypothyroid and take levothyroxin
I am sorry you have to have a colonoscopy let me know when you do it so I can hold you in light
Did you ever get the Dexcom G6 I truly believe it will take some stress off of you in your day-to-day life
More than anything I am so sorry about your dog the grief of losing our animals is the worst grief we experience in this life
I sense that you are as connected to the animals as I am
I can go on and on with chatting but Iâll let you go and know that I am thinking about you and letâs keep in touch in the next few weeks for sure
Hi, yes, I do have a G5 and I like it for the most part. I wish wasnât 40 points different from my glucose monitor at times, and I do not like the alarms. I do enjoy how often I can check though.
Trying to get all my doctorâs visits lined up. Have an appointment set up with a different cardiologist since I donât think the computer information should be ignored.
Somehow I lost this post. I am sorry to hear about your fall. I donât know what hypo atresia is, but I will look it up. I am sorry that you have to deal with it. Glad that your cardiologist agreed with you about the 6 months.
I detest how much others wanted to âeducateâ me at the hospital, as if I am not the expert of my disease. Why would they think that locking up my insulin would ever be ok with me? I feel like I am having to emotionally heal from my visit there even though with being strongly determined I got my way. I feel violated. Some of the staff was great and others too controlling.
Spottie is still with us, but not for too much longer. It is heartbreaking.
I didnât let them take over care of my insulin needs, but I ended up having to fight for my rights. It was frustrating to have folks who arenât insulin dependent try to lock up my insulin. I had two different doctors give orders that I was in charge of my insulin but that was hard for the diabetic educators to except.
Vivil, how are you doing with your recent surgery? I hope that you are feeling great with no more tiredness etc,
I found out today that there is a possibility that I might need a pacemaker too. What a shocker. I thought of your post and it gave me hope. My GP went though the treadmill report with me. I had not seen it and in my weakened state hadnât asked for it which is very unlike me.
It looks like the microvascular problem is minute and it is much more likely that there is a possibility of symptomatic sinus nodal dysfunction. My GP said that means there is the possibility of my needing a pacemaker.
Did your doctors think your need for a pacemaker had anything to do with your having diabetes?
Right now I am very fatigued and weak and somewhat light headed. I havenât noticed a problem with my heart rate. I have other issues going on so I donât know if my symptoms have anything to do with my otherwise healthy heart.
Pacemakers are awesome for electrical issues, but it sounds like your heart problems arenât mostly electrical in nature, are they, Marilyn? Iâm a bit confused from your posts just what is wrong.
My mother had a pacemaker installed, which at the time I thought was idiotic as she had congestive heart failure but because she was a hypochondriac she would complain incessantly about palpitations, so the doc gave her a Holter monitor which came out negative. a while later she was sent home with another one with negative results. and another one. That was a case of a doctor being sick of being bothered by her constant complaining. So on the 3rd monitor they decided there was enough of a rhythm disturbance that they gave her a pacemaker. I knew at the time it was a mistake, which it was. She died of COPD/CHF. A lot of money wasted by insurance and money in the doctorâs pocket as a result of a patient that complains incessantly.
Now the next story is about my BIL. He would have died had he not been given a pacemaker because his electrical system had been wonky for many years. His HR would top 200 BPM. They killed his electrical system and made him dependent entirely on the stimulation coming from his pacemaker. For him,itâs literally a life saver. He even jogged for years afterwards and is still alive and active.
You arenât the only one who is confused Dave. I am just relaying what the doctors are telling me.
I feel like I am falling apart.
I can quote what the report says, but would you know enough about heart issues to understand it? I sure donât.
My newest issue is that my sodium level is 124 which is really low. I am wondering if that could have made me collapse on the treadmill. I know that it is helping me to feel really fatigued and lightheaded. My doctor is surprised that I am still able to think as well as I can.
I am so sorry this is happening now. I seem to recall that you were contemplating going up north to a cardiology center. Is that still in the works? Is your GP the one whoâs putting it all together for you now? Well, I will try not to ask too many questions, and just say I am sorry you are feeling overwhelmed.
As for Davidâs comment about a pacemaker being for an electrical issue, sinal nodal dysfunction is an electrical issue. Low sodium can cause a collapse I should think and we need sodium to maintain adequate blood pressure. Last question: were you going to get checked out for pituitary issues?
Senator, I canât get a second opinion until Oct 29.
This is the conclusion of my scan: âLow Risk Study up to trivial apical septal ischemic burden. Inability to reach 80% of maximum predicted heart rate raises the possibility of symptomatic sinus nodal dysfunction. Clinical correlation is advised.â
The cardiologist I will be seeing wrote this. He is was not at the test and he is not the cardiologist Iâve already met with.
I am wondering of my low salt levels of 124 caused all of this and that maybe there is nothing wrong.
The pain in my chest probably costcochondritis confuses me and can make me think it could be angina. It is confusing.
I ate a lot of salt last night and feel better this morning, so I am not as worried.
I feel great! I feel like I just got my life back and its only been two weeks since my surgery-which is a very simple procedure, they will give you a sedation; but you will be awake, covered by a drape so cant see anything. I talked to the surgeon throughout.
It sounds like what you have is called: sick sinus syndrome-its when our own pacemaker sends out irregular beats resulting in your heart not getting enough oxygen, thus causing exhaustion. Google it. I am 75 which is the common age for this to happen.
Marilyn, they have been putting in pacemakers for many years. This is not something new. Mine is about the size of a silver dollar and is located just under my left bra strap. No one will even notice it.
As far as Diabetes playing a part: diabetes plays a part in everything in our lives. I donât think it makes you more prone to SSS; but it does effect the healing process. Fortunately, I am very healthy and heal rapidly.
I can tell you that I felt the change almost immediately. I went home the same day and was out walking the next. I have not needed a nap or felt exhausted since.
Do me a favor, and keep me posted on your progress.
Vivi1
âYou must give up the life you planned in order to have the life that is waiting for you.â Joseph Campbell
