So I have mixed feelings about Eric’s pump at the moment. He’s been on it since Monday, and every night since Tuesday we’ve had difficulties. That night, I checked him at midnight to find him in the 400s–figured maybe the basal ratio was too low and gave a correction, only to find him in the upper 300s 2 1/2 hours later with .3 ketones, not good. OK, so something was wrong with the infusion set, perhaps? We changed the site and infusion set, and I looked at it and realized it had lots of bubbles, some of them more than half a centimeter in length. Yikes, no wonder he was high–he hadn’t been getting insulin! I thought, gee, I must have nicked the tubing with the safety pin I used to close the pump pocket, but a new infusion set will solve that problem, and it seemed to… his numbers were terrific all day… until the following night. Midnight came, I checked again, and once more, he was in the 400s, this time with .4 ketones. DAMN. Once again, we changed the infusion set and the site, and for good measure drew up a new cartridge, primed the pump, and within an hour and a half, he was down to 249. Well, OK, I thought, and sent an email off to our diabetes educator saying, in essence, “WTF???” She said she’d never ever heard this particular problem before and was stumped, but I found chats and FAQs that indicated this wasn’t such an unheard of problem. So tonight, after dinner, as Eric sat in my lap watching his movie, I took the tubing out of the pump pocket and gave it a good hard look. Yep: more bubbles. They hadn’t reached the cannula yet but by bedtime they surely would have. So at bathtime, we took his pump off and did a complete reworking: changed the infusion set, the site, the cartridge, even the battery! and started him fresh before he went to sleep. Unfortunately, having had his pump off for over 90 minutes he was over 300, so we gave him a bolus that approximated the insulin he should have gotten from it during the time it was off, and now I’m waiting on the midnight check now to see where his BG is at. I also picked up some Lantus at the pharmacy because if we have the same problem tonight, I’m going to tell the folks at the clinic that I want to do Lantus for his basal until we can find out from Medtronic what is going on with this pump. Occasional bubbles are one thing, but every freaking night? Never during the day? Something is up.
I’m going to put in the effort to make this thing work because the daytime numbers are the best we’ve EVER seen, but oh, these nights are stressing me out!