I’m so sorry to hear about your struggle Pixari. However I do believe that if you did have the ability to find acceptance in the past…you can find it again It’s not lost it’s just hiding from you at the moment until you’ll find it again Therapy is helping me I hope that you find a good therapist that gets you.
55 years!!! Wow…you’re an inspiration!
You’re right…and I heard many diabetics that feel like you do…but as you said perhaps I do need to accept “life” itself and only then I’d be able to see that there’s a life despite D. Thanks!
This disease really sucks big time, that’s all I can say- I have no advice on how to cope because we are all different. I foresee a daily 24hr a day struggle for the rest of my life until we hopefully get some better treatments. I struggle on as best I can because what is the alternative. But I dream of being released from what amounts to torture. The best is if I can forget about it as much as possible but it’s always there with beeping devices and crashing lows or highs that go in for hours reminding me I’m in this prison of my body and all the stress now for good. The time I tend to forget most is when I’m asleep and also when my pump is off for a shower- I have almost forgotten to put it back on more than a few x.
Greetings… I was diagnosed 9yrs ago so I’ve had diabetes a little longer. This condition as caused me more grief than any of the permanent injuries that I have, and more grief than any other conditions. It affects my life on a daily basis in some way. Lows are the absolute worse and highs suck as well. Often I have had to cancel an activity due to a low. It’s beyond frustrating. I really love reading these forums because, my 9yrs seems like nothing when so many people have dealt with it for decades, which is inspiring.
However, what I have learned… and I learned it here several years ago, is that, even if you do everything right, something can still go wrong and it’s not your fault. So when something goes wrong, don’t blame yourself. Just keep moving forward.
Exercise can be as simple as walking. Start small, just down to the corner or somewhere close, then slowly extend your walk. Walk round the supermarket 3 times, pretend you are looking for something that you can’t find. Park your car at the back of the carpark. LOL just walk. I know about the mind thing and the exhaustion, I suspect everyone on this list has suffered from depression at some time, including me. But you know, you can help yourself, you are worth the effort.
There are two books that I found helpful in figuring out how to exercise and participate in sports without roller coaster blood sugars: Diabetic Athlete’s Handbook by Sheri Colberg and Your Diabetes Science Experiment by Ginger Vieira. They taught me things like what is aerobic (can drop bg fast) versus non-aerobic (smaller impact on bg); when and how to do each type, and how to dose insulin depending on which one I was doing.
Goodness, what a relief to read this. I have no intention to ever accept this darn disease.
Thank you Gary! I have been looking for the words you wrote here for months. I couldn’t find them on my own.
I will have had it for 14 years in February, and let me tell you I’ve been struggling for the last 7 years to get back on the wagon and get my head out of my butt about the fact that I need to start caring and taking better care of myself. If not for me, then my family! I was angry and upset for a long time that I had this disease I didn’t ask for and didn’t want to deal with.
It took me losing some circulation in my hands and feet (enough to make them fall asleep ridiculously easy) to get that wake up call. Habits form easy and die hard, the best advice I can give you is to not let yourself form bad/lazy and self-destructing habits. It’s taken me so incredibly long to get back to a good place and a great insulin pump that’s helping me get there.
Marga, there could be other reasons for how you are feeling which may or may not be related to your diabetes including, enzyme deficiencies,food intolerances and hormonal imbalances. I felt much better once I removed gluten and soy from my diet and added probiotics and digestive enzymes . Also using bio-identical progesterone helped with anxiety and sleep. Consider finding a good functional doctor who could test you for these issues. Good luck.
@Marga, I am really sorry to read about your difficulties now and in the past several years I feel sad to see how unhappy you are, and how much of a burden you labor under right now. I so wish there was a way I could help!
This seems to be an issue beyond diabetes – or am I misunderstanding what you mean? Are you saying that your symptoms are such that it not physically possible to go to your class, or that you feel so depressed that you aren’t able to force yourself to go?
I hope you are doing better.
I am only on year 11, and I was diagnosed at 37 years old…
While not taking away from their struggle, I sometimes think the ones diagnosed as kiddos adjust much better than those of us that get it later in life…
Kids are just more resilient than adults, they may not have the judgement, but they are resilient…