Type 1 Diabetes, Then and Now

A fellow Joslin Medalist recently made a post in ‘The Joslin Medalist’ group page. He wanted to know how we felt about the differences from when we were diagnosed so long ago compared to the present day, and how fortunate we feel that we are in the 21’st century.

I started writing a very long blog to answer his request. The blog kept getting longer, and longer. The other replies were not so long as mine, so I deleted the blog and gave the following summary.

1945-1970…I led a normal life, with no fear, even though I took one shot each day, and tested my urine. No complications, no problem!
Ignorance of the true nature of type 1 diabetes was bliss!

1970-1990…I learned about the possible complications, and saw terribly high numbers on my first meter. I was very scared!! I did not know what to do about that. My doctors were very little help.

1995-2006…I completed my first 60 years of Type 1, and had no diabetes related complications, except for some neuropathy. That, and my joining my first online support groups, gave me confidence, and my fears were gone.

2006-2017…I am using a pump and CGM, and my A1c’s are very good, in the 5.4-6.4 range for about 15 years now. Like someone else said, it is a lot more work, but it is good to know what I am doing, and seeing good results. I don’t mind the extra work with the devices we have now. Good diabetes management, and no serious complications after 71 years of type 1 is wonderful!!

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you are an inspiration to all of us who are just starting out the journey!

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Richard, good on you!! I’m only 45 years in and you are truly an inspiration to me to make it to at least 70 years in. That would put me in my 90’s, but I feel like I’m healthy enough to make it.

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The changes I have seen in over 50 years is that 50 years ago we managed food. Then we learned to manage our pumps. In the next five years, we will manage our CGM’s.

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I honestly…truly…Will never ever get old of your posts. I save them when I feel down. A big smile your way. Keep on living a healthy and wonderful life. Thank you for sharing your journey

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One difference for me in 50+ years is back then we (most) didn’t challenge the medical information. Now we have many more sources and options, and have learned how varied the experience is for everyone. Support groups made a big difference for me.

Congrats to you Richard, hope I can make it to 70 years too.

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