Hello! I am looking for some info on something called Type 2 Polyglandular Autoimmune Syndrome. I have been a Type 1 diabetic for 22 years and I also have hypothyroidism.
I took my 5 year old son for his Kindergarten physical today and his blood sugar was a little elevated, and their was protein in his urine. I'm not too worried yet because I haven't seen any obvious symptoms. I am going to monitor him and take him back for more screenings next week. However, this got me "Googling" the statistics of the chances of a child who has a Type 1 mother also having Type 1, I had always been told it was between 4-8%.
I found this info on the ADA website:
Type 1 Diabetes: Your Child's Risk
In general, if you are a man with type 1 diabetes, the odds of your child getting diabetes are 1 in 17. If you are a woman with type 1 diabetes and your child was born before you were 25, your child's risk
is 1 in 25; if your child was born after you turned 25, your child's
risk is 1 in 100.
Your child's risk is doubled if you developed diabetes before age 11. If both you and your partner have type 1 diabetes, the risk is between 1 in 10 and 1 in 4.
There is an exception to these numbers. About 1 in every 7 people with type 1 diabetes has a condition called type 2 polyglandular autoimmune syndrome.
In addition to having diabetes, these people also have thyroid disease and a poorly working adrenal gland. Some also have other immune system disorders. If you have this syndrome, your child's risk of
getting the syndrome including type 1 diabetes is 1 in 2.
This last paragraph led to more googling "Polyglandular Autoimmune Syndrome" where I found there are four types, with Type 2 being the most common... here is the description:
"Type II PAS occurs in adults. Women are three times more likely to develop the adrenal gland insufficiency. It includes the thyroid (hypothyroidism) and pancreas (Type I diabetes). Pernicious anemia and rheumatoid arthritis are also detected with Type II."
This confused me because I am wondering because I have hypothyroidism and Type 1, if I have this PAS thing.... but I have never even heard a doctor use this term. Of course it's the weekend, so I will not bother the doc with this question till Monday. :) But I would really like to know if my son's stats are 1 in 25 or 1 in 2! Kind of a big difference. I realize it won't change anything, but I am just an anal Mom who likes to arm herself with knowledge.
If anyone is familiar with this and has some answers for me I'd appreciate it! Thanks!