The case worker was here about ten minutes. She said she had to go through the routine, but had already spoken to his pediatrician (we actually used Dr. Gheesling as a reference). She said I was more knowledgeable than any parent she had spoken to. She said the pediatrician said I was one of the most protective parents she knew, funny thing so did the doctor that reported me. They feared that I was not monitoring his sugar intake. I took her into my kitchen. She was amazed that I don't even have sugar.I have wheat flour, and rye flour, scales, measuring cups, a kitchen-aide mixer, and a bread maker. When she saw that I make my own bread and jellies so I will know what is in it, she closed the case. Maybe now they will focus on what is wrong with my child...
Perfect, Shant. I'm so glad to hear this.
By the way, your kitchen sounds like mine. We could probably bond over rising bread. Now on to figuring out how to stabilize your son's blood sugar. Were you able to get an appt. with his Dr. to look into possible celiac?
What is sad is that in the medical community, very little is known about diabetes, specially type 1. Unless the Doctors and Nurses have had extensive training, they do not know. We took our child in to the hospital last year for a head injury and they told us that we needed to handle his BG numbers. We ended up there for about 12 hours.
As for the case workers, we also had an incident where we had the police called in on us for suspected child abuse. We had just switched to the pump and we were doing a pump change. One of the first changes we did, we had messed up badly and scared the kid where he was frightened of pump changes for months afterwards. This time the kid wasn't cooperating and after about 45 minutes of arguing and crying and screaming. I went to hold him down while my wife did the injection. The screaming and blood curdling yelling, brought the police to our front door for some questions. After we explained what had happened weeks before and for every pump change after that, they understood and left. But we still had to deal with the case officer afterwards asking questions and recommending all sorts of classes. Nothing makes you feel like a worthless parent than having the police and case workers prodding you and questioning your kids... Hang in there.
It's always a good idea to handle your child's insulin needs while in the hospital. Everyone is so different and the staff would not be familiar with your child's specific needs. It would take many days of trial and error for anyone but you to figure out proper timing and dosing.
It took 2 of us to hold down our 4 year old for finger pricks (never mind injections) for months after her diagnosis. I know where you're coming from on that. Sorry that others misinterpreted the situation. I suppose it's better than people not caring, but it must be hard to put up with the questioning.
Excellent. They need to figure out what is wrong. From what you described, his blood sugar should not be going that high from just the food; something else is going on.
Did the bloodwork Monday. Waiting on the results. She said to thank you, she completely forgot about that.
Thank you, at least I know I am not alone. Like I told the caseworker, we had perfect control until the last year or so. Do they think I woke up one day and decided to no longer care?
That's great news Shant. Glad to hear they are moving forward. Prayers