Walking for what type of a cure?

Recently JDRF announced that it was giving money for a Johnson and Johnson artificial pancreas research project. The other day I also noticed that they were involved in another research project with BD. I will readily admit that I have had very little to do with the JDRF since my son’s diagnosis. They are virtually non-existent in my area. I subscribe to some of their initiatives and occasionally follow some of what is being done but I am not involved with them regarding any fundraising or support.

The people that I have seen supporting them however have been very diligent. Families who create walk teams seem to go to great lengths to fundraise and let everyone know that they are “Walking for a Cure”. I therefore began to wonder how these same people felt about their “cure” money going towards diabetes tools research. Don’t get me wrong, tools are what keep my son alive. The great advances in tools are vital to me until that day comes when he or others living with type 1 diabetes can be cured. I spend a lot of time advocating to get these tools in the hands of all people living with diabetes so I am definitely in support of this sort of research. My question however, was for those who had “walked for a cure” and now saw their dollars going towards treatment.

Organizations like the Diabetes Associations openly state that money raised for them goes into a variety of pots including research and development. The JDRF website states that its "mission is to find a cure for diabetes and its complications through the support of research. " For many that sort of a statement would suggest that a cure is its only focus. People that I have spoken with have been rather taken aback by these announcements. Some feel very betrayed while others are shocked but accepting. Many living with diabetes feel that they can still support this and feel that it is okay for them to spread their focus to living with diabetes and well as working towards a cure. Still others are sitting back scratching their heads. These people are not so sure that this is where they want their money and efforts to go any longer. Sadly there are many other organizations that would gladly accept their support.

I have no idea if this public support for techonologically based research will cost the JDRF any support or not. I am happy to see any advances that will keep my child alive, healthy and happy until that day when someone does finally discover that cure.

I wonder about this also. I’d wager their support won’t decrease much mostly because of their many staunch supporters, like the people you mentioned.

Realize we need highly organized groups with clout like JDRF, but I’d rather send my donation dollars where they don’t go towards high administrative costs. I’m always torn when it comes the good organizations do vs. their overhead.

Great post, Barb. Since I work for JDRF, and my sister has type 1, I always like to read as many objective opinions about JDRF as possible. If you are interested, there will be a live Q&A on Wednesday, January 27th with Dr. Kowalski, AVP of Glucose Control and staff lead on the Artificial Pancreas Project. Details: http://bit.ly/70OllC

@Gerri - To clarify, JDRF spends less than 15% of their funds on administrative costs and receives a 4 Star Rating from Charity Navigator, the nonprofit watchdog.

Thanks, for the clarification about JDRF admin costs. That’s great to know.

Barb , Manny has a discussion going on JDRF and artificial pancreas project .
My answer was then : I understand that JDRF 's mandate is the Cure . Artificial pancreas project is a tool, not a cure . …no one has made me see this differently yet , unless I am totally off the wall .