Weird Symptoms, Little Support, Struggling


#22

I’m going to my doctor today. She’s a DO its the first time I’ve seen one so hopefully her first response isn’t the “kill it with pain meds” response I’ve gotten from other doctors.


#23

Hi Pixari,

Good luck with your appointment today! I am really familiar with the “kill
is with pain meds” and “it’s all in your head” responses. I hope that she
doesn’t respond that way. In my experience, DOs tend to be much more open
minded to the gaps in our current medical
technologies/treatments/knowledge. Good luck! Let me know if I can help in
any way.

There were a few typos in my last vitamin list, so here it is again:
Vitamin C
B12
Vitamin D (with Calcium and Magnesium)
Cistanche Tubulosa
Ginkgo Biloba
Green Tea
Rhodiola

I also struggle with depression and brain fog, as I’m sure that I mentioned
above. My doc said that Vitamin C binds to toxins and helps them to be
removed from the body. She also explained that some of the brain fog seen
in autoimmune diseases and depression can be linked in some people to
biotoxicity, which she believed was also the case with me, since I was
urinating more often than was usual (even for a diabetic) and was also
constipated (along with the other symptoms described above). I hope some of
that information was helpful. I hope your appointment goes well!

-Alex


#24

It went pretty well. She ordered the tests I wanted and seemed to take my input seriously. It was super low stress.


#25

That’s great! I’m glad to hear it. :slight_smile:


#26

So I am also vitamin D deficient. Hopefully fixing that helps fix all of the symptoms :slight_smile:


#27

Hi Pixari!

I’m sorry for my delayed response. Did taking more Vitamin D help?


#28

So glad that your levels are feeling less crazy up and down! But, I’m sorry about the other symptoms. Now that we are in February of 2018, I guess you have some updates???


#29

Trying to keep up on my vitamins Iron for anemia and vitamin D, mostly failing. I’m in a bunch of psych stuff and taking meds(not sure its helping the emotional stuff but it helps the migraines). Still sad and anxious but that might be because I forgot to take my vitamins seriously for a while. I got sent to the neurologist to check that nothing serious is happening. So right not I’m focusing on my vitamins and trying to keep up with exercise.


#30

Hi Pixari,

Have you ever used a rhodiola supplement? I use the Nutrilite XS Energy + Focus Rhodiola supplement. Taking one a day has dramatically improved my mind and decreased my brain fog. I also take a vitamin C extended release, which works over 8 hours. This also helps with my overall health and brain fog. I also take Vitakin D and a multivitamin. Of course, these will not solve many specific mental health concerns, but they have helped me a lot. I am

Much more functional, happy and emotionally stable than I was before taking these supplements. That’s my experience. Of course, having a team of people that supported me was and is also important-not just professionals, but healthy friends and family relationships. This required me to put up strong boundaries around the kind of behavior and language toward me and my diseases that I would allow. I also drink more water, eat healthy most of the time, and am starting a work out routine. Of course, all of this took time and I’m still working on things.

If you have any questions about this, please feel free to let me know. I want you to know that we support you and we’re here for you. I know that it’s difficult to ask for help and brave to put yourself out there. Thank you for sharing with me! I’m here to listen if you ever need an ear. :slightly_smiling_face:


#31

I haven’t tried that yet. Thank you. The first thing I worked on was exercise, the food thing is constantly complicated by my wonderful chief of a husband. I’m going to a group therapy thing that helps immensely, and I’m trying to increase my presence on here for the same reason.


#32

Hi Pixari,

Your husband is a chef! That’s wonderful. I’m happy to hear that the group therapy is working! That’s great!

:slight_smile: