You are welcome fellow rider!! By the way, my main doc is not an endo...and I've no trouble getting medical care with her. She trusts me to manage my diabetes and makes sure I have what I need to do so. She sees after all of my medical conditions.
I am starting to think I hit the lottery way back when.
My opinion is get rid of this doctor. That is what you needed to do as soon as she misdiagnosed you. She is an idiot! My doctor misdiagnosed me and nearly killed me. He is no longer my doc.
The very worst thing about my diabetes is that after 60 years of seldom having to see a doctor, I suddenly got thrown into the medical system big time. It has been a nightmare. I read and hear about so many diabetics with similar or much worse experiences. The problem is not just misdiagnosis, it's the arrogance and bullheadedness of so many people in the medical profession. I'd almost rather deal with a witch doctor.
Good luck finding a better doc. I'm sure there are some out there. I just haven't seen any of them personally,
I would document all the errors and all the requests for correction and take it to the local medical board. If she can't get and keep a correct medical history she is a danger to all not just to you!
And get a new PCP as soon as possible, I'd almost prefer a trip to urgent care to a trip to someone who has that bad of a track record.
Glad to hear that you PCP is also an Endo. You're not going to believe this but, as I was searching for PCP's on my plan I noticed my Endo is also listed as a PCP. BINGO!!! You know what, I ask myself that same question often. Why do I continue to see this PCP. I suppose the answer to that her office is just down the road from where I live. So, convenience matters to me when I'm sick and can't drive far. Another reason is I've been going there since I was young. At the time, they had a different doctor. He was my friends brother. I knew the family since they also lived down the road from me. I trusted him. My current doctor is really not so bad. I'm just upset about the diagnoses thing and her not correcting it. I THOUGHT all of this time it was corrected. That's why I stayed with her for so long.
My PCP has nothing to do with my D. I only see her once a year unless I need something unrelated to D. I don't even need her to get referrals since my insurance plan doesn't require referrals to see specialists.
I like the new computer records also. It lets you see all the errors that need correcting.
I'm glad to hear that some of you actually use an Endo/PCP. This is the first I hear of an Endo also being a PCP. I had no idea mine was on that list also.
We have 3 Endo office's within a half hour drive from where I live. But, only one (my current Endo) treats T1's and understands us and understands how to work all insulin pumps. The other Endo's in my area don't seem to understand T1's. They're old school and they don't know how to use pumps. Believe me, been there done that (long story).
If, my current Endo retires (which should be a long way down the road). I plan to drive 45 minutes away from where I live. They have quite a few Endo's in that area. Two of them have T1. If the traffic weren't so heavy I would be going there now.
Wow, sorry to hear about you getting blood poisoning. Glad you're better now!
My Endo is great about not rushing his patients. You would think I would have a long waiting time since he spends so much time with his patients but, no. He's great!
I don't have an endo at all. I have an IM with subspecialty credentials for diabetes. I prefer this type of doctor because I am not just a diabetic. I like one doc who can treat whatever comes down my path, and she has no problem with referring to specialist docs if/when necessary.
I'm no longer seeing the Endo that diagnosed me because he moved on to another state. She has a report from him because I hand delivered a copy to her. She didn't even read it. She just stuck it in my records and told me she knew. So, I thought all this time everything was ok and she corrected it. But, I'll admit I always wondered if she did. I suppose, it's partly my fault for not witnessing a change at that time.
Yes, she almost killed me too! I went months living on the sofa sick like a dog. During the week I was reading my very first labs when I was diagnosed. I had very high ketones and high bg's. I was clearly in DKA. I suppose because I was in the honeymoon stage is why I'm still here.
That sound's familiar. After, (46 years for me) of seldom having to see a doctor, I was suddenly thrown into the medical system also. I took pride in seeing my medical folder with only 3 sheets of paper in it. NOW, it looks like a huge binder. So, depressing! LOL
I worry about he elderly patients. Most of them don't have access to PC's to view their records to check for errors. I suppose an alternative would be to bring along a relative or friend to help in that area.
My internist has been my primary Care Physician for 30 years. He managed my diabetes since I was in my late twenties, and I only saw him 2-3 times a year; for general ailments like a sore throat, the flu, and diabetes management. Went to the OSU Medical Center Endocrinology clinic for a couple of years, but always came back to this original internist. Have had my current great endo for 11 years. This endo and the internist are in the same network and they communicate well. I have not been to a general practitioner for ANYTHING since I was around 28.
We are both lucky we survived this. What happened to me was unconscionable. I was in DKA the day my doc diagnosed me, confirmed by my lab work and symptoms, he sent me home over the weekend, I called and told the physician's assistant I was very ill, I think I'm type 1 and I'm running out of insulin etc.- he scorned me and told me that wasn't possible etc. I ended up in the ICU 3 days after my diagnosis in severe acidosis, I had serious complications, very low potassium which required several infusions, a blockage, a dvt and multiple clots. I now have permanent damage to 2 veins in my leg and to my vision. My doc admitted to my father that he made a serious mistake at least and there was no question about my diagnosis after my hospital stay. I'm diagnosed as type 1 controlled now. I'm not sure what he wrote in my charts when he diagnosed me but he told me he thought I was type 1.5 an type 2 which isn't possible, type 1.5 isn't even an official diagnosis as far as I'm aware. I would say I'm extremely lucky to have survived everything that happened to me, I thought more than a few times I would die in the icu. I really would like to sue the hospital for what happened, they released me with a symptomatic dvt, and my doctor and the pa, but I know how the system is stacked against patients in any type of lawsuit with a doctor/hospital. On my second hospital stay when I was there for my dvt, I was yelled at by one of the doctors after emphatically requesting to have an opthamologist look at my eyes. When they told me that my insurance was denying the second stay, I told them I would be forced to sue the hospital and the doctors to pay for it and that they had released me with a life threatening condition. The hospital absorbed the entire cost of the second visit. It is amazing what doctors/hospitals will do to cover themselves when they make a mistake like this.
Your doctor is covering herself and you should request that the diagnosis be changed at the least- it could affect you one day for all you know.
As for my doc I would like to do something because I know of one other terrible mistake he made that nearly killed someone and he is way past the time to practice but I'm leaving it as it is since my father still goes to him and since he was my doc for 30 years and he was pretty good as long as I had nothing really wrong with me anyway,lol.
There were four doctors I went to building up to my dka who failed to do a simple bg test which could have diagnosed my D, one was two years before and he really should have done extensive blood testing. Instead he did some crazy dna testing for a study he was doing which I had to pay $300 for.