I was watching soon of Mike Lawson’s videos and YouTube this morning and came across his video on this topic. And than looked up the same topic here and it’s been a long time since this was discussed.
Maybe because we don’t hate it as much but I am going to open this back up again, because as much as I try, I still hate this disease!
- There is NEVER any time off, EVER! It’s 24/7/365 days. Forever!!!
- There is no spontaneity! I can’t just pick up and go. There is always some kind of planning. Sure I have it wired now, but I still have to think before I go anywhere.
- I always have a bag, purse, backpack, emergency bag etc. No such thing as a cute little clutch. There is always a bag, always.
- The fear and concern of complications. While I have gotten through 48 years with no problems, I can’t say it doesn’t worry me all the time. Just waiting for the first one to drop.
- Always wondering if the pain, sensation, problem is diabetes related or is it just a “normal” person problem. And the frustration when you go to your PCP with a regular kinda problem and it is immediately thrown into the diabetes pool. We do get sick or hurt and it is not always diabetes at the root of the problem.
- Each and every meal out is an exercise in mathematical gymnastics. I can’t just got out to eat with family or friends. My son tells me it sometimes takes me 15 minutes to try and find the info I need before I can do all the math before ordering.
- Always having to explain diabetes to everyone. Whether it is someone asking about my CGM or pump ( that I wear proudly) or so unfortunate many medical professionals. I always feel obligated to try and explain but it can get very tiring, especially with medical professionals.
- No one except those of us who live it everyday truly understand what it is like day in and day out and the burden it can be. No one understands that everything happening may play a factor in how my blood sugars reacts.
- Trash. Holy cow, there is a lot of trash with this disease. And while I try to recycle when I can, it is an amazing amount of trash. And like my diabetes, it will never go away.
Surprisingly I couldn’t think of one!
Now, you all know, I try very hard to stay upbeat and positive but I have struggled for most of my long 48 years to get to this point. But sometimes just putting it in writing makes me feel a little better. Just getting it off my chest. I would like to hear if you guys have things you hate and have they changed or moved on the list. My fear of complications has dropped way down verses where it was maybe 30 years ago.
And yes, I think a 10 (maybe just 5) things I like about diabetes should be next.
And a trip down Mike Lawson’s My Life As A Pin Cushion, was a lot of fun. Laughter is the best medicine!