Antigad negative. 2 more antibodies to test. Her bs has been above 100 all day, even eating low carb. Highest above 140… impaired glucose tolerance at best…
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As the child who has type one diabetes, I can’t imagine what this must be like for you as a parent. What I do know, however, is that as people with type one diabetes, we can make it through the rough times and I trust that you will make the best of the situation, even if it seems like there’s not much of a bright side. As a ten-year-old, I knew that my life was changing, but I took the changes in stride. My parents helped me continue to do all the same things as the other kids in my grade, in spite of the challenges. It’s hard to put in words, but I truly believe that you’ll be able to make it, to manage, one way or the other.
Another thing to consider (and that may make life a little easier if you find out that she does have T1D, or may develop it in the future) is a clinical trial to help preserve her beta cells. When I was diagnosed in 2009, my parents and I were able to find a study for an experimental medication to hopefully preserve the beta cells. It was quite intensive (we had to fly to Connecticut for 2 weeks for a daily drug infusion, plus multiple check-ups thereafter), but the bright side is it seems to have helped - even now, it seems like I have smaller / more stable blood sugar fluctuations.
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As part of our monitoring, today we are doing regular carb (Ie. What we were eating before low carb - such was moderate carb, I guess). I think This is necessary to demonstrate to the Dr, my daughter, my helper, the impact of carbs on blood sugar, and that her code to normal levels on low carb, can not be replicated on higher carb
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Ms. 4, younger sister, just tested with an a1c of 5.5. Nothing to be alarmed about, but definitely something to watch, considering normal hba1c in a child should be < 5.0. I tested her to get a baseline ‘for future reference’, when we were doiing long overdue bloodwork for allergy testing (she frequently gets facial rashes after eating). I was not expecting this result. I guess I’ll be discussing her as well when I next see her sister’s endo.
I am wondering about MODY. Need to research more. How can we have 3 persons; 1 mother and 2 daughters with "slightly’ abnormal blood sugar levels (and no previous family history). We;re all going grit to manage this. Hopefully the girls can avoid insulin for a while yet. Though Ms. 8 has had results over 200 twice in the past 2 days (this was with cake eaten at a party yesterday, and then rice and eggs at breakfast today). 
My damn genetics, combined with their father’s, no doubt!
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I feel your pain. With my 2 type 1 children, plus myself (although still waiting labs to determine T1 or T2) and my now 6 year old throwing high PPG’s out on me, I’m wondering how much more I can take. With 9 children total I hope it stops soon. And of course the T1 hubby…lets not forget him 