It’s a simple correction. When I posted I was cured, I was still in shock at being told I am no longer type 1 but pre-diabetic. The correction is not cured but my type 1 diabetes is in remission!!! Wasn’t thinking really straight after that little bit of news!!!
It’s all good, congratulations and keep doing whatever you are doing!
I’m confused; does that mean you are in the “honeymoon” period? Or are you pre-diabetic? Either way, enjoy it while it lasts, and I hope it lasts a long time!
My Dr. says I am pre-diabetic. I was dx’ed type 1 a little over 3 years ago! Never had a honeymoon, insulin everyday for appox. 2 years and then I started having a lot of lows out nowhere, needed less and less insulin. Now I still use insulin for corrections when above 200 and when I pig out, like a real shake or something. But other than that if I watch what I eat, limit my carbs to about 45 grams at each serving my bs barely get above 150-160 at an hour at 2 it’s like 130-120. Thanks I hope it last a Longggggggggggggg time! LOL
Let me tell you what your doctor is doing.
Your doc is probably looking at your A1C and has some very strict guidelines in his organization. (I don’t think you explicitly said this but I’m guessing… VA). Under those guidelines an A1C below some number is not-diabetic. An A1C between (say) 5.5 and 6.3 is pre-diabetic. And an A1C above 6.3 is diabetic. (I’m not sure what his exact cutoffs are.)
I’m not in that system but I see evidence of it every time I get lab reports from Labcorp and Quest telling me that because I get an A1C of 5.7, that I am “at reduced risk for diabetes”. Obviously 30 years ago I wasn’t at low risk when I spent weeks in the hospital recovering from DKA as a kid.
IN THE SYSTEM HE IS IN, he has no choice but to abandon common sense, your detailed history of DKA and insulin needs, and a century of experience in treating T1’s, and evidently has no choice but to pronounce you pre-diabetic based solely on your A1C.
You and I are not bound by his system in our thoughts.
What I think is most likely considering your sequence of events, and comparing it to my history, is that you are a T1 in honeymoon. In my honeymoon I went for a period of time needing very little insulin and for a while no insulin. Perhaps a better word than remission would be “unstable insulin needs”. Believe me, if you are having bg’s above 200 and use insulin to bring them down, you are not pre-diabetic.
Comparing the term pre-diabetes with Dustin Hoffman’s dad in that documentary: “Is this another one of your half-baked ideas?” Dustin looks his father in the eye and tells him quite seriously, “Oh, no, it’s fully baked.” I think you gotta tell yourself and your doc that you are fully baked 
Keith, That’s great!
I have only one recommendation: continue testing an hour after your heaviest meal of the day. Find the highs.
If you go higher than 140, start to think about delivering yourself insulin. Be cagey. Be wise. If you are a person who knows how to set your insulin doses, do so.
In remission, on honeymoon. All terms that mean something will change.
Remember I’m a tight control person, and I do not treat myself by A1c but by actual blood glucose.
Do a fasting test every week. When they go above 110 start thinking insulin soon on a regular basis. Do not leave your testing skills behind!
Now enjoy!
First being diabetic just means problem with bs ie:high. The rest is for treatment. My last 4 a1c’s were 5.8, 5.8, 5.8, 5.9, 6.1 The reason for the raise is my Dr.'s asked me to bring it up! LOL Last thing, I was told the reason he is calling it pre-diabetes is I don’t have to treat it everyday, I only see 200 if I mess up!! I go weeks without a drop of insulin. Oh almost forgot when I do see 200 and do 1 unit of Novolog chances are I’ll get to 70 in less than an hour, if I don’t correct it takes 2 hours to get to 120.
I am a testing addict LOL My fasting have been less than 100! When I check my baseline and I do, DKA was no fun at all!!, I stay flat. It’s weird cause I use to HAVE to do 30 units of Lantus in the morning to stay flat!! I haven’t used Lantus in a year! You got me to check my bs and before I went to sleep I ate 2 hot sausage with 2 slices of bread (appox. 50 grams carbs) and my bs is 97. No insulin!
Thanks!! They are enrolling me in a study to see how my pancreas is working and they want to look at my immune system!!! I am so hoping that some how what is happening to me can help others!!! Nobody should have live with diabetes of any kind!!!
I think you are oversimplifying things a bit.
The classical definition of diabetes (sugar in urine) has little to do with how we discuss it today. While the old definition was good for thousands of years (literally, look it up) today the definition seems to slip every couple months.
Diabetes (either type 1 or type 2) is more than just a problem with bg’s. I strongly feel that bg problems are just the most well known aspect of diabetes and that there are underlying more fundamental factors.
And being in the honeymoon never ever meant cured. Or pre-diabetic. Those simply aren’t the right words. And it’s not that the honeymoon in T1 is some new advanced concept - my docs knew about 30+ years ago. While they knew that some aspects were likely coming up for me in the honeymoon (reduced, variable insulin needs, maybe even not needing insulin at all for a while) they also made it clear to me that the timing could not be predicted with great accuracy and that no matter how the honeymoon went - it did not mean I was cured, it did not mean pre-diabetes, it meant I was in the honeymoon.
Yay! I’m cured!!! LOL…I’m glad they are straightening you out!!
I'm afraid I may be providing a little rain on your parade.
I've had a look at the numbers you mention in all your posts. Some snippets just recently:
I was dx'ed type 1 a little over 3 years ago! Never had a honeymoon, insulin everyday for appox. 2 years and then I started having a lot of lows out nowhere, needed less and less insulin. Now I still use insulin for corrections when above 200 and when I pig out, like a real shake or something. But other than that if I watch what I eat, limit my carbs to about 45 grams at each serving my bs barely get above 150-160 at an hour at 2 it's like 130-120.
and
I go weeks without a drop of insulin. Oh almost forgot when I do see 200 and do 1 unit of Novolog chances are I'll get to 70 in less than an hour, if I don't correct it takes 2 hours to get to 120.
Please stop believing you are a type 1, cured or in remission. It is possible you LADA or MODY, but doubtful and would need further testing.
Nor are you pre-diabetic. Those numbers are too high for pre-diabetes and your ability to go without insulin are typical of a type 2 with average to poor control.
If you had good control you would very rarely see numbers over 140 at one hour, let alone regularly over 150, and you would see over 200 once in a blue moon.
My last 4 a1c's were 5.8, 5.8, 5.8, 5.9, 6.1 The reason for the raise is my Dr.'s asked me to bring it up! LOL
Excellent A1cs despite those post-meal spikes. It looks to me like you need a more knowledgeable doctor.
Cheers, Alan, T2, Australia
Everything in Moderation - Except laughter
LaurenB11-
In my opinion you are oversimplifying LADA when you say that it is just Type 1 diagnosed in adults. From my reading, my understanding is that LADA has a much slower onset than “typical” Type 1. Often Type 2 oral meds work for a while. Sometimes the person can go without insulin for months or even years. But if on insulin, usually the dosages are much lower in the early months or years.
Some adults are diagnosed as Type 1 with a sudden and severe onset, similar to how Type 1 manifests itself in children. A LADA label would be totally inappropriate for these adults.
It seems as though on this and other message boards that there are many adults who classify themselves as LADA. Maybe there are some statistics that might show that more adults have LADA than full-blown Type 1. However, in my opinion, the biggest distinction between the two is speed of onset not age.
If you had good control you would very rarely see numbers over 140 at one hour, let alone regularly over 150, and you would see over 200 once in a blue moon. You got it that’s me. I gone 3 mos without any insulin!!! 140 I am usually 135-138 150 is like eating 4 sausages with buns, a trail mix bar and little snickers candy. To see 200 I have to add 3 more little candy bars! and without insulin it goes down in less tha 2 hours. Last c-pep, normal and only positive for gad 65 and at last test (ie; why the remission) gad 65 was almost gone!!! Down a lot since the test before 6 mos before this last visit. The studies I am enrolling in are, Why has my pancreas healed! what function it has now regained! Why it is improving? The other study is to study my immune system to try and find out why my antibody levels have gone done so much or no longer positive!! My Dr. Firek VA Loma Londa!!! check it out! I am going to be in a federal USA study, to see if my immune system can help find a cure!!! Denial I think not at least on my end. Might youhave a look in the mirror. I don’t need to make this up!!! It is what it is and It does happen. Dx’ed type 1 99.99% I am Mr. .01%
OK, Last c-pep, normal, gad almost not there, way down from 6 mos ago the other 2 antibodies are negative! I started on Lantus and till about a year ago stop needing it completely!!! Truth be told the only reason the Dr. let me have insulin is I am not fully believing this yet. Also till my insulin needs started going down I know for sure without it I would have been DKA in less than 2 weeks!!! without my friend insulin. read some of past posts! I was type 1 I even got a tattoo so there could be no denial!!!
I am 6 ft 167, 55 and no to the rest. If my bones weren’t worn out I would one healthy guy! LOL
last c-pep was normal and gad was down to almost not there, from last test
Denial I think not at least on my end. Might youhave a look in the mirror.
Um…whoosh…
I’ll leave the thread repeating just one bit of advice.
Find a competent diabetes specialist. Because you haven’t had one so far.
Good luck mate.
Cheers, Alan, T2, Australia
Everything in Moderation - Except laughter
When I Google LADA diabetes, I got referred to various articles which support my argument. One of the clearest is a March 16, 2010 post at diabetes mine.com: http://www.diabetesmine.com/2010/03/clarifying-lada-type-1-diabetes-in-adults.html
It states more than once in the article that the distinction between Type 1 and LADA is not age of diagnosis but instead the gradual onset. Every other article I read basically said the same thing.
Rather than continue to hijack the original poster’s thread, I will summarize and say that I respectfully disagree with you and feel that most experts and articles on the web would support my argument.
Sounds to me like KPD/ketosis-prone Type 2, Type 1b/Flatbush/idiopathic diabetes.
In some KPDs, after the initial DKA, they can go off insulin and stay normoglycemic.
Most famous KPD - never identified as such but fairly obvious from clinical symptoms - is Halle Berry. Initial dx in DKA, on insulin for a number of years, everyone thinks she is T1 as she is thin, but famously quoted as having ‘weaned’ herself off insulin.
Lots of info and resources on TuD member Mike Barker’s blog.